Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Being gluten-free In Las Vegas


MegHaligh

Recommended Posts

MegHaligh Newbie

I just moved to Las Vegas from Indiana late last September. So far I'm loving it, but getting together a support group would be awesome. I visualize dinners at safe restaraunts and gluten-free potlucks, so I'm really hoping that there's a few of us lurking in the area.

My boyfriend of over a year was diagnosed with Celiac a number of years ago, and - while researching things about it for him recently - I've decided that I'm going to try a similar diet to see if it makes me feel better. It was amazing (and, honestly, a little bit of a relief) reading down the lists of symptoms and whatnot you guys have. I'm hoping that it'll make a difference. Also, now that we're living together I'm frightened that I'm accidently poisoning him just by eating things with gluten in them around him.

I'm 21 years old and he's 23, and would love to meet anyone and everyone in the area that's interested. :)

-Meg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



b91hd7fjk Apprentice

Hi Meg,

My name is Staci and I too live in Las Vegas, originally from Ohio. I have been diagnosed for almost 3 years now and have been looking to get involved with the support group here...there is one but getting a hold of them is next to impossible. I am 21 and my boyfriend is 30. He is able to eat gluten but is also (like you) very respectful of my disease. We have been talking a lot about moving in together but I dont know if he really understand what kind of commitment that would be....anyways, I live down by the south point and work at the forum shopps in ceasars. Because I work retail and my boyfriend works at Green Valley Ranch on the night shift our schedules are a little crazy. However, I would love to get together for dinner and compile a group for potlucks!

I am also in a desperate search for a Celiac Disease Specialist here in town...if you guys have found someone good please please let me know. Ok, bye for now! So glad I found you!!

-Staci

angel-jd1 Community Regular

Do a search for Broncobux (Chris), he's a member here on the boards. He lives in vegas, is your age group and has wonderful suggestions for places to eat and how to get the service you need out there!!! Good luck!

-Jessica

MegHaligh Newbie

-Staci

We're actually in the midst of finding doctors at the moment as well. My boyfriend, Mike, does want me to make sure you avoid a gastro named Dr. Fayadh for a number of reasons. After having him for upwards 6 months, barely any progress was made at all. Also, his bedside manner is absolutely atrocious. He had some very scary episodes back when he was in the process of being diagnosed and it seemed like his doctor didn't care at all. When he prescribed Mike penicillin - which he's allergic to, and had made sure the doctor was aware when he first went to him - he knew he had to find a new doctor. We'll keep you posted on our search and you make sure to do likewise. ^^

We're located pretty much at the opposite side of town, it seems like. I work at the Santa Fe and he works at a restaraunt off of Lake Mead and Rainbow. We'll see what we can figure out about meet ups and whatnot, but just knowing someone here that's going through the same things as we are is going to be awesome I think.

Also thanks for the information, Jessica! ^^

-Meg

  • 1 month later...
VegasCeliacBuckeye Collaborator

Sorry it took me so long to post, let me know if you need any help in Vegas.

I have lived here for the last 4 years and can give decent advice on where to eat.

email me for access to the list serve in town

broncobux2000@yahoo.com

Chris

  • 5 months later...
LVsupportGroupLeader Rookie

There is a local LV support group. My signature is the website for it. We have a Pei Wei gluten-free event tomorrow 9/6/08 at 1311 Sunset Henderson, NV 10:00am to 11:00 am. A great Primary care physician is Michelle Conger (you can google her for info she is inside of Spring Valley Hospital), and a great GI is Dr. Vish Sharma at Great West Medical Associates. He is very knowledgeable about celiac disease. His address is 5915 S Rainbow Blvd #105 LV NV 89118 phone 702-220-9865. Hope this helps!

  • 3 months later...
nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.