Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Being gluten-free In Las Vegas

MegHaligh

Recommended Posts

MegHaligh Newbie
MegHaligh
Posted

I just moved to Las Vegas from Indiana late last September. So far I'm loving it, but getting together a support group would be awesome. I visualize dinners at safe restaraunts and gluten-free potlucks, so I'm really hoping that there's a few of us lurking in the area.

My boyfriend of over a year was diagnosed with Celiac a number of years ago, and - while researching things about it for him recently - I've decided that I'm going to try a similar diet to see if it makes me feel better. It was amazing (and, honestly, a little bit of a relief) reading down the lists of symptoms and whatnot you guys have. I'm hoping that it'll make a difference. Also, now that we're living together I'm frightened that I'm accidently poisoning him just by eating things with gluten in them around him.

I'm 21 years old and he's 23, and would love to meet anyone and everyone in the area that's interested. :)

-Meg

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


b91hd7fjk Apprentice
b91hd7fjk
Posted

Hi Meg,

My name is Staci and I too live in Las Vegas, originally from Ohio. I have been diagnosed for almost 3 years now and have been looking to get involved with the support group here...there is one but getting a hold of them is next to impossible. I am 21 and my boyfriend is 30. He is able to eat gluten but is also (like you) very respectful of my disease. We have been talking a lot about moving in together but I dont know if he really understand what kind of commitment that would be....anyways, I live down by the south point and work at the forum shopps in ceasars. Because I work retail and my boyfriend works at Green Valley Ranch on the night shift our schedules are a little crazy. However, I would love to get together for dinner and compile a group for potlucks!

I am also in a desperate search for a Celiac Disease Specialist here in town...if you guys have found someone good please please let me know. Ok, bye for now! So glad I found you!!

-Staci

angel-jd1 Community Regular
angel-jd1
Posted

Do a search for Broncobux (Chris), he's a member here on the boards. He lives in vegas, is your age group and has wonderful suggestions for places to eat and how to get the service you need out there!!! Good luck!

-Jessica

MegHaligh Newbie
MegHaligh
Posted
  • Author

-Staci

We're actually in the midst of finding doctors at the moment as well. My boyfriend, Mike, does want me to make sure you avoid a gastro named Dr. Fayadh for a number of reasons. After having him for upwards 6 months, barely any progress was made at all. Also, his bedside manner is absolutely atrocious. He had some very scary episodes back when he was in the process of being diagnosed and it seemed like his doctor didn't care at all. When he prescribed Mike penicillin - which he's allergic to, and had made sure the doctor was aware when he first went to him - he knew he had to find a new doctor. We'll keep you posted on our search and you make sure to do likewise. ^^

We're located pretty much at the opposite side of town, it seems like. I work at the Santa Fe and he works at a restaraunt off of Lake Mead and Rainbow. We'll see what we can figure out about meet ups and whatnot, but just knowing someone here that's going through the same things as we are is going to be awesome I think.

Also thanks for the information, Jessica! ^^

-Meg

  • 1 month later...
VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Sorry it took me so long to post, let me know if you need any help in Vegas.

I have lived here for the last 4 years and can give decent advice on where to eat.

email me for access to the list serve in town

broncobux2000@yahoo.com

Chris

  • 5 months later...
LVsupportGroupLeader Rookie
LVsupportGroupLeader
Posted

There is a local LV support group. My signature is the website for it. We have a Pei Wei gluten-free event tomorrow 9/6/08 at 1311 Sunset Henderson, NV 10:00am to 11:00 am. A great Primary care physician is Michelle Conger (you can google her for info she is inside of Spring Valley Hospital), and a great GI is Dr. Vish Sharma at Great West Medical Associates. He is very knowledgeable about celiac disease. His address is 5915 S Rainbow Blvd #105 LV NV 89118 phone 702-220-9865. Hope this helps!

  • 3 months later...
nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

nickjc055 Rookie
nickjc055
Posted

I am 27, relatively new to Vegas and have been recently told I have celiac. I have tried to learn and research as much as possible online as how to follow the diet for past month and on celiac in general. I am going to have an appt with the GI doctor recommended below because I have been having bad nausea that is really killling my job, work, social, and overall quality of life in general. I dont know too many people up here much less someone who has celiac. I know I am in the early part of the learning curve(trial and error) but any help or tips would be much appreciated to help alleviate my extreme frustration.. My aol email is nickjc055@aol.com.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    2. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    3. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    4. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748
    Jane Margaret
    Newest Member
    Jane Margaret
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.