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Nyt: The Expense Of Eating With Celiac Disease


The Fluffy Assassin

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The Fluffy Assassin Enthusiast

By LESLEY ALDERMAN

Published: August 14, 2009

You would think that after Kelly Oram broke more than 10 bones and experienced chronic stomach problems for most of his life, someone (a nurse? a doctor?) might have wondered if something fundamental was wrong with his health. But it wasn


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celiac-mommy Collaborator

We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Mskedi Newbie

I liked the article -- the only word I can think of to describe it is calm. It doesn't make the diet sound impossible, nor does it try to get controversial, even though it mentions how care in the US is woefully behind care in other countries. Overall, it sounds doable despite the costs involved, and I like that it ended on a positive note.

mommida Enthusiast

When we were just one the gluten free diet ~ it wasn't so expensive. Now that we are avoiding the full top eight and peas and chick peas ~ YIKES! It's nightmare expensive.

How ironic ~ is food with less ingredients can cost that much more!!?

ranger Enthusiast
We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Ditto for me. I cook a lot, but don't spend much more. You have to be creative and inventive. Or spend a lot of money.

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    • trents
      Do the skin care products that give you a rash list wheat as an ingredient or are you assuming from your reaction that they contain gluten? It is possible that not only do you have celiac disease, which is not an allergy but an autoimmune disorder, but that you also have a wheat allergy.
    • allis
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    • trents
      Sorry, meant to type "or dermatitis herpetiformis for short". What? Every time I try it, the abbreviation for this skin condition is converted to the full length term. I'm trying to type "D" followed by "H". 
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      Welcome to the forum, allis! By "skin response to gluten products" are you saying you develop a rash when you use lotions, creams, shampoos, etc. that contain gluten? One of the classical symptoms of celiac disease is a skin rash known as dermatitis herpetiformis or "dermatitis herpetiformis" for short. Celiac disease is the only known cause for dermatitis herpetiformis. It has a distinct appearance. It has little blisters or pustules in the bumps. Does this sound like what you experience? Is so, it might be possible to get a punch biopsy done when you are having an outbreak. This would be an alternative to eating gluten. If your skin biopsy was positive for dermatitis herpetiformis you could be diagnosed with celiac disease on that basis alone. Apart from that, I know of no other way to get a diagnosis apart from returning to eating gluten for a period of weeks.
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