Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nyt: The Expense Of Eating With Celiac Disease

The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted

By LESLEY ALDERMAN

Published: August 14, 2009

You would think that after Kelly Oram broke more than 10 bones and experienced chronic stomach problems for most of his life, someone (a nurse? a doctor?) might have wondered if something fundamental was wrong with his health. But it wasn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Mskedi Newbie
Mskedi
Posted

I liked the article -- the only word I can think of to describe it is calm. It doesn't make the diet sound impossible, nor does it try to get controversial, even though it mentions how care in the US is woefully behind care in other countries. Overall, it sounds doable despite the costs involved, and I like that it ended on a positive note.

mommida Enthusiast
mommida
Posted

When we were just one the gluten free diet ~ it wasn't so expensive. Now that we are avoiding the full top eight and peas and chick peas ~ YIKES! It's nightmare expensive.

How ironic ~ is food with less ingredients can cost that much more!!?

ranger Enthusiast
ranger
Posted
We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Ditto for me. I cook a lot, but don't spend much more. You have to be creative and inventive. Or spend a lot of money.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,792
    • Most Online (within 30 mins)
      7,748
    Rhenriksen
    Newest Member
    Rhenriksen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rhenriksen
      Just diagnosed with Celiac! Scared and feel alone.

      By Rhenriksen · Posted

      In 2023 I had a colonoscopy for blood in stool. Turns out that it was internal hemorrhoids but at the same time they found something near the terminal Ileum and took a biopsy of it. Pathology report came back as lymphocytic colitis. I was not having chronic diarrhea or other types of common symptoms so no treatment was necessary. Shortly after I started having excessive gas all the time, and diet didn't change anything, I've had floating stools forever and rarely does a stool sink. My stools alternate from cow patty like to constipation but have been more on the constipation side even though I go every day or 2. Last week I found out that my B12 was at 275 (3 years ago it was at 695). My folate was good. Iron/iron binding Saturation was good, ferretin good but in low end and same with vitamin D. I eat pretty clean and I've also been loosing weight (190 to 175 in about 2 months). I sometimes have mild discomfort in my lower right abdomen which to me coincided with the ileum part of the intestine (where b12 is absorbed and where malabsorption occurs)  a few month ago I tested positive for celiac on a blood panel. I wasn't extremely high, only twice the limit.  last week I had an endoscopy and colonoscopy done with random biopsies of each. I ate gluten equivalent to 1 slice of bread for 2 weeks prior to this exam.  I met with my primary yesterday to tell him that I retested my b12 and it went up to 375 (100 points) naturally in a week, but I was also going to start B12 sublingual daily to help. It was at this time that he said had my pathology report (I haven't seen it yet in MyChart Sutter and I haven't heard back from my GI) was conclusive of celiac disease from a biopsy taken in the deudondrum and that I had mild reactive gastrophy in the Antrum. Ironically, he said multi biopsies were taken of the colon as well as in the first part of the ileum and that no evidence of Microscopic Colitis was found. Although, that part is good news, a lot of my research and symptoms were leading me to Chrons Disease. I feel that my small intestine (mostly the Ileum) is compromised and I'm not sure how much celiac plays a role in that. I know that scopes can only go so far each way. Should I request or ask for video capsule endoscopy or MRI (I think it's called MRE) on the small intestine, or is that getting too crazy!?? prior to loading up on gluten for 2 weeks, I went gluten free for 3 months after the serum test and felt ZERO changes, still gassy everyday and floating stools all the time. Any advise, support or thoughts are greatly appreciated !   
    • fritz2
      Question

      By fritz2 · Posted

      I just felt more poorly all of the time.  I did notice that on Sundays when we usually had pancakes for breakfast I felt worse but my mom blamed the eggs and milk so we switched to soy and quit using eggs.  (this was over 60 years ago).  The symptoms changed some, but I still didn't feel very good and the constipation diarrhea cycle didn't change much either.  No doctor ever suggested wheat issues and I had never heard of it.  After the head/neck cancer chemo and radiation 30 years ago, the RA like trouble with painful joints and entire area of my body inflamed to the touch, a doctor decided I had fibromyalgia and prescribed vicodin.  That was the only pain-killer that ever worked and allowed me to go to work again.  After my grandchilds diagnosis, I looked into celiac and wondered what-if?  I asked my doctor and he suggested I try eliminating all wheat for a few weeks.  Within 10 weeks my fibro was gone.  I still had the constipation issues.  And then they discovered I had Hashimoto's from the radiation.  Only on this website have I discovered there's an issue with it and celiac.  I'd like to know more about what this issue is. I'd also like to know more about how to clear this damned swollen joint problem so I can get on with living.
    • Katya773
      Previous Biopsy Results

      By Katya773 · Posted

      Hi thank you so much for your input. It’s been very difficult to navigate this whole Celiac thing with everything that’s happened. What you said makes sense. I  have a better understanding of how my doctors NP was able to give me a diagnosis.  Yes I agree that staying gluten-free is best, I’ve been doing some research and it seems like DQ 2.5 homozygous does make folks extra sensitive to gluten even without a celiac diagnosis. My new gastroenterologist put me in touch with a nutritionist but I’ll have to inquire if they specialize in Celiac. Appreciate the advice 🙏🏼 
    • trents
      6 week challenge; How much gluten?

      By trents · Posted

      Okay, then. It definitely looks like TTG-IGA to me and your score far exceeds the 10x or greater that is becoming the new standard for official celiac disease diagnosis criteria without biopsy.  Talk to your physician about this.  
    • Pinkdoglady
      6 week challenge; How much gluten?

      By Pinkdoglady · Posted

      Thank you the reference range was 0.1 to 3.9
×
×
  • Create New...