Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tocopheryl Acetate

GFLindsey

By GFLindsey
in Coping with Celiac Disease

Recommended Posts

GFLindsey Explorer
GFLindsey
Posted

I just realized that I start nearly every meal with hand sanitizer that has tocopheryl acetate in the ingredients list. I didn't know that this ingredient could be derived from wheat. After lots of online research, I am still finding conflicting information, so if someone can clear the air for me it would be much appreciated!

Basically I have found sites that say tocopheryl acetate is derived from soy. Others say it is unsafe for celiacs because it can be made from wheat. Still another said that it was processed to the point where it is probably safe. Then to top it all off, I found several gluten free products available with tocopheryl acetate in the ingredients.

Someone help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Heidi S. Rookie
Heidi S.
Posted

From what I understand, Vitamin E or Tocopheryl can be derived from wheat, soy, or corn. If it is derived from wheat is it not safe for Celiacs. It can be safe if derived from corn or soy (I am assuming that is why it can be found on gluten free products). It is commonly found in lotion and make-up for the skin. I avoid Tocopheryl (Vitamin E) when possible, unless I email the company or it is label gluten free. For hand sanitizer I use burts bees or purell, they are gluten free. I believe on this forum is a school products list with gluten free wipes and hand sanitizer like Equate, Pampers, etc, you should check it out! gluten-free school supply list Scroll down to the updated 2009 list!

Hope it helps!

jerseyangel Proficient
jerseyangel
Posted

Whenever I see tocopheryl or vitamin E on an ingredients list, I call the company to inquire about the source. Most times, they have to check and get back to me since the reps don't always have that information in front of them.

Lycopene Rookie
Lycopene
Posted

Germ-x hand sanitizer is gluten free too, and it smells FANTASTIC.

buffettbride Enthusiast
buffettbride
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

GFLindsey Explorer
GFLindsey
Posted
  • Author

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

jerseyangel Proficient
jerseyangel
Posted

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

The only Cetaphil product that is gluten-free is the Gentle Skin Cleanser. I've been using it for a while now with no issues, and I'm very sensitive. When I inquired about their moisturizer, they told me that all of their other products can not be considered gluten-free. Here is the email from them--

The Cetaphil Gentle Skin Cleanser does not contain ingredients that may be derived from grains and therefore does not contain gluten.

The other Cetaphil products contain ingredients that may be derived from grains and therefore possibly contains gluten.

A cleansing validation of the production lines is performed between runs of different products. However, we cannot claim with 100% certainty that cross contamination has not occurred.

Best regards,

Special Services Specialist

Galderma Laboratories, L.P.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


buffettbride Enthusiast
buffettbride
Posted

Is it sad that this information makes me happy?! I have been gluten-free for 3 months since my diagnosis and still dont feel 100%. I definitely use a lot of products with tocopheryl acetate -- specifically ALL of my hand sanitizers that I use before each meal! This new info will def. help clear out old lingering CC issues.

Of course, thank you for your responses and helpful information about safe products. Also, I have used Cetaphil several times because its hypoallergenic. DUH. Can get rid of that one!

We tend to use Eucerine or Aquaphor as a moisturizer. Good for sensitve skin and free of the bad stuff.

  • 4 weeks later...
melblondin Apprentice
melblondin
Posted

My eye shadow (Revlon Cream to Powder Eye Shadow) makes my eyelids red and burn every time I've used it. I've just been looking to see if it contains wheat and tocopheryl acetate is the best that I can come up with. Has anyone already contacted Revlon to know if their use of T.A is derived from wheat? If not, I guess I'll be contacting them. I can't use it either way because I'm reacting to it, but I'm curious to know if it's because of wheat/gluten.

  • 1 year later...
amieb Newbie
amieb
Posted

I use a facial cleansing product I buy at Walgreens called Cerave. I can't use Cetaphil - I break out in a rash. Hope this helps.

Coleslawcat Contributor
Coleslawcat
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

Please don't tell me this about cetaphil. It's the only cleanser that doesn't cause my skin to break out.

Takala Enthusiast
Takala
Posted

The beginning of this thread is a year old.

However....

Was listening to the television news this morning and they had a story about how if you used hand sanitizers at the rate that doctors and nurses are supposed to use them in a clinical setting, i.e., like over 4 times an hour, after several hours of this there's enough alcohol absorbed thru the skin that you could set off a breathalizer test.

Happy next thing to worry about !

Chiana Apprentice
Chiana
Posted

Tocopherol acetate is a pain in the butt. I have to call about that ingredient more than any other. I know that it is in Cetaphil lotion and it is NOT safe. I've also found it in make-up, called the company, and many times it IS safe. It's a booger, that's for sure.

Cetaphil? Damn it. >_<

cap6 Enthusiast
cap6
Posted

Tocopherol acetate ~ Well, this does not make me smile. I didn't know about this one! Also I use hand wipes on the tables at restaurants all the time. Guess I need to rethink those as well. grrrrrr :(

sherrylynn Contributor
sherrylynn
Posted

Well heck, I am a nurse, I only work the weekends but I use a LOT of alcohol sanitizer. Now I am going to have to look at the ingredients. I didn't even think that it could contain wheat. I can't win for losin. :(

  • 4 years later...
Coltsneck24 Rookie
Coltsneck24
Posted

ops - see below

Coltsneck24 Rookie
Coltsneck24
Posted

Hi, 

I was just reading the label on a bottle of Kirkland Signature Vitamin E, 400 I.U. that contains dl-Alpha Tocopherol Acetate.  I've read that this chemical contains gluten; however, on the table it states "No starch, yeast or gluten."  Should I assume that it means it's a gluten free product (stating the obvious) or should I be concerned because there is no gluten-free stamp on the bottle.

Gemini Experienced
Gemini
Posted

Open Original Shared Link

Here is an article that will explain why tocopherols are safe for Celiac's to consume.  There does not have to be a gluten free stamp on the bottle for it to safe.  The company stated there was no gluten and tocopherols are not unsafe for consumption.  I have used countless vitamins and supplements that contain this ingredient and have never once gotten sick and I am very sensitive.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jess270
      - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...
    2. cristiana
      - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

      I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that...
    3. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    4. GeoPeanut
      - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...
    5. trents
      - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,058
    • Most Online (within 30 mins)
      7,748
    Magali
    Newest Member
    Magali
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      Vaccines

      By trents · Posted

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Vaccines

      By GeoPeanut · Posted

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...