Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fodmap?


RideAllWays

Recommended Posts

RideAllWays Enthusiast

Hi everybody. I have been having symptoms daily for almost two weeks now, and I am careful about what goes near my mouth, and live in a gluten-free house. Somebody suggested fructose malabsorption, which could be a problem.

So what is "Safe" without:

Corn

Soy

Gluten

Dairy

Shellfish

Fructose

I like veggies, fruit (which I guess is a problem now), rice, quinoa, meat...

Any suggestions would be lovely!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dada2hapas Rookie

I don't know if this will be helpful, but I had a similar experience. Turns out, besides the gluten issue, I'm allergic to many fruits/veggies. :)

http://www.celiac.co..._1&#entry629036

Skylark Collaborator

Mom has fructose malapsorption. I can tell you how she was eating when she came to visit last.

She eats eggs and sausage or ham for breakfast. Mom eats corn so we were having grits and corn bread, but maybe you could eat Cream of Rice. You also might be able to make yourself bread from tapioca starch or white rice flour. Mom says that brown rice has too many fructans and a lot of the commercial gluten-free breads are made from brown rice flour and don't agree with her.

She would eat a little fruit, with a trick. She mail orders bags of dextrose and came with one in her suitcase. When she has a little fruit, she sprinkles dextrose on it to shift the fructose:glucose ratio and make it easier to absorb. She also puts dextrose in her coffee although it's not as sweet as sugar.

For lunch, she usually has salad. Lettuce and greens are great on the FODMAP diet, and she can have limited amounts of enough other veggies to make interesting salads. She found some mayo without HFCS and made tuna salad and chicken salads a lot. (I think there's soy free mayo?) She checks labels for gluten-free dressings with no HFCS. She was eating hummus with corn chips too - you could probably use potato chips or celery.

For dinner, she eats meats and fish, white rice, potatoes, or sweet potatoes, and lot of cooked greens because they have almost no fructose. When she visited, we had kale, chard, spinach, and collards. She also finds that green beans are pretty easy to digest and she might have been eating peas. She'll also eat bean soups or white chili (no tomato!) if she takes a little Beanzyme. I had some frozen, homemade chicken with rice soup that she liked too.

She doesn't eat much sugar or sweets. She does have a square of Dove chocolate every night after dinner. B)

Hope this helps a little.

georgie Enthusiast

FODMAP is great. I am dxed Gluten Intolerant probaly Coeliac. Then Dr thought Dairy was a problem so I went DF for a year or two. But every now and then I would get worse. I finally had lactose tests and fructose tests and found I was lactose and fructose intolerant. Then Dr suggested I am FODMAP and I knew as soon as I read it - that it was me. Onions are one of my biggest allergens and they are Fructans. Sorbitols are another. Fruit upsets me but berries are fine.

This list helps.

Open Original Shared Link

Another good read.

Open Original Shared Link

Dr Sue Shepherd developed FODMAP in 2001. Open Original Shared Link There are lots of links here which explain the different groups as as one poster said - you can often tolerate small amounts of the intolerance if you mix it with glucose/sugar/dextrose. And lactose free means you can have cream, butter and hard cheeses as they contain virtually no lactose. Sue even suggests small amounts of milk are OK if taken with a meal. And fruit is fine if cooked with sugar as in an apple pie for instance. Its all about finding the level that suits you. And some fruits are worse than others.. It does mean reading the labels a bit more carefully though as many commercial gluten-free foods have onion powder or other nasties.

I feel SO much better since eating FODMAP and I have only been on it about a month. I have an Australian made commercial pre mix which is brilliant. Cakes, muffins, waffles - all just add an egg and water and mix. Brighterlife mixes. They are no Wheat, Soy, Egg, Gluten, Corn, Artificial Colours, Preservatives, Yeast, Salicylates, Amines, Casein, Fructose, and are low in Fat and low in Sugar. Open Original Shared Link You may have a similar company there.

As Sue explains - make sure you are lactose intolerant - as it is important to keep to have some dairy in the diet if you can. And there is no need to be dairy free if you are only lactose intolerant.

Its worth it to feel healthy and I don't miss the FODMAP foods at all.

vbecton Explorer

FODMAP is great. I am dxed Gluten Intolerant probaly Coeliac. Then Dr thought Dairy was a problem so I went DF for a year or two. But every now and then I would get worse. I finally had lactose tests and fructose tests and found I was lactose and fructose intolerant. Then Dr suggested I am FODMAP and I knew as soon as I read it - that it was me. Onions are one of my biggest allergens and they are Fructans. Sorbitols are another. Fruit upsets me but berries are fine.

This list helps.

Open Original Shared Link

Another good read.

Open Original Shared Link

Dr Sue Shepherd developed FODMAP in 2001. Open Original Shared Link There are lots of links here which explain the different groups as as one poster said - you can often tolerate small amounts of the intolerance if you mix it with glucose/sugar/dextrose. And lactose free means you can have cream, butter and hard cheeses as they contain virtually no lactose. Sue even suggests small amounts of milk are OK if taken with a meal. And fruit is fine if cooked with sugar as in an apple pie for instance. Its all about finding the level that suits you. And some fruits are worse than others.. It does mean reading the labels a bit more carefully though as many commercial gluten-free foods have onion powder or other nasties.

I feel SO much better since eating FODMAP and I have only been on it about a month. I have an Australian made commercial pre mix which is brilliant. Cakes, muffins, waffles - all just add an egg and water and mix. Brighterlife mixes. They are no Wheat, Soy, Egg, Gluten, Corn, Artificial Colours, Preservatives, Yeast, Salicylates, Amines, Casein, Fructose, and are low in Fat and low in Sugar. Open Original Shared Link You may have a similar company there.

As Sue explains - make sure you are lactose intolerant - as it is important to keep to have some dairy in the diet if you can. And there is no need to be dairy free if you are only lactose intolerant.

Its worth it to feel healthy and I don't miss the FODMAP foods at all.

Great post! This is exactly the type of information I was needing for myself. I started 2 days ago eliminating fructose to see if that was the cause of my unrelenting symptoms. Seems it was indeed as I am gas free for the 1st time in...well, maybe my life B) . And great information about the lactose intolerance. I was just wondering about dairy because I had eliminated dairy when I went gluten-free, but I love dairy and definitely want to reincorporate if possible. Did you purchase the Sue Shepherd book? I probably need to do that.

RideAllWays Enthusiast

Thanks guys! Georgie, I'm pretty sure it's a caseine thing since things that are supposedly lactose free bother me.

I went grocery shopping and bought blueberries, celery, spinach, chickpeas, rice, white potato, eggs, and some herbal tea. anything wrong with those?

Skylark Collaborator

All is fine, but go easy on the blueberries. :) I really hope you've figured out something that helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

Go easy with the chick peas... Try hard cheeses first and see how you go. Once the onion , fruit and sorbitols were removed I found the casein was 'not' the problem. Berries are fine. Fruit is OK if you share it with glucose. I try to have less sugar these days so avoid the fruit/glucose idea. I do like FODMAP though! The Sue Shepherd books are really good. I have just bought her latest - lots of good ideas.. The idea she stresses is that although you need lactose free - this does 'not' mean you cannot tolerate low amounts of it... once all the other FODMAP allergens are under control and you start to heal. I disagree with her low gluten idea but she does say that some people have Coeliac + FODMAP and need the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Reverse Osmosis (RO) Water

    2. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    3. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    4. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    5. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748

    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.