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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to Pinkdoglady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
6 week challenge; How much gluten?
Do you have a reference range for the Serum Tissue Transglutimate? Different labs used different reference ranges so just giving the raw score of >100 is necessarily helpful. And the terminology they employed for that one is unusual. So, I'm not sure if they are referring to what we call "total IGA" or what we abbreviate normally as TTG-IGA? I think it... -
- trents replied to alannahP's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
TTG-IGA Question
Welcome to the forum, @alannahP! Excellent question but I don't know that I have ever seen any TTG-IGA score be "0". But then again, I only see TTG-IGA scores of people who have celiac disease. It would be interesting to know if people who don't have celiac disease would necessarily have a "0" TTG-IGA score or if a very low TTG-IGA score is normal for... -
- Pinkdoglady replied to Pinkdoglady's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
6 week challenge; How much gluten?
Hi my blood result were Ser Tiss transglutimate >100 for the endomysial antibody lga is just says positive I don’t know how celiac this makes me -
- Scott Adams replied to alannahP's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
TTG-IGA Question
For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes: -
- Scott Adams replied to VinnieVan's topic in Introduce Yourself / Share Stuff16
Question
One thing I've learned over many years here, is that everyone needs to be their own health advocate, and that may include not trusting what some doctors may say or do. In my case I had gluten sensitivity issues all my life, but for ~5 years full blown celiac disease and went to many doctors and was not tested for it until I specifically asked for the tests...
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