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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Wheatwacked replied to kate g's topic in Coping with Celiac Disease12
So worried about 11 year old daughter
Why the iron? Have the doctors tested for vitamin D. Is she eating enough eggs, milk, meat? Start her on the Thiamine today. The minimum for a child of four years is 0.6 milligrams. That's 600 mcg. That is 3X the minimum folate (200 mcg). fThere is no established upper limit for thiamin intake in humans because there is no evidence of adverse... -
- trents replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
4 year old with a negative Celiac test
Looks like what was not done that should have been done was Total IGA. If total IGA is low, it can drive other IGA scores down toward the negative range. Was he avoiding wheat-based foods by any chance when the blood draw was taken? -
- Deborah123 replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
4 year old with a negative Celiac test
We did these: Antigliadin Abs, IgA Antigliadin Abs, IgG tTg IgA Endomysial Antibody IgA -
- trents replied to Deborah123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
4 year old with a negative Celiac test
Welcome to the forum, @Deborah123! Can you be more specific about which blood test for celiac disease was done? Do you have a record of the testing that you can access? There are several that should be ordered by many physicians will only order the tTG-IGA which may not be a good choice for a child so young because their immune systems are immature. ... -
- Deborah123 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
4 year old with a negative Celiac test
My 4 year old was tested for celiac last summer (blood test) & it came back normal / negative. Can the blood test be wrong? I was surprised that he was negative - there are many things going on which would indicate celiac. - He is very tired & irritable - He is quite small for his age - He has enamel hypoplasia He had amino...
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