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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to Larzipan's topic in Related Issues & Disorders31
Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
@Milarynn, Welcome to the forum! Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies. Be sure to have your Vitamin D level checked. Vitamin D helps prevent bone loss, including loss from the jaw and teeth. Magnesium and calcium are both important to bone health as well. Magnesium helps keep the... -
- trents replied to Larzipan's topic in Related Issues & Disorders31
Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody... -
- More2Learn replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Celiac Maybe a Possibility?
Thanks, yes, I've gone back and forth. There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews. I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating... -
- Milarynn replied to Larzipan's topic in Related Issues & Disorders31
Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease... -
- kopiq replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.
I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
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