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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to sadiec123's topic in Coping with Celiac Disease4
mental health struggles
How are you doing, @sadiec123? Did you get through the holidays alright? Have you been checked for nutritional deficiencies? Many newly diagnosed Celiacs are low in Vitamin D and many of the B vitamins like thiamine. Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood. Benfotiamine has been shown... -
- knitty kitty replied to Sarah Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Bloodwork Help for my Teen
I agree, @Sarah Marie, it's best to keep eating gluten and get on the doctor's cancellation list. Some people have extreme symptoms when reintroducing gluten after a brief abstinence. Be sure she consumes six slices of bread or gluten-y equivalent a day in the two weeks prior to the endoscopy. There are different amounts of gluten in different products... -
- knitty kitty replied to emily 1's topic in Coping with Celiac Disease11
Black Pepper Reactions
Those are links to articles on this site. I don't do Instagram either. https://www.celiac.com/celiac-disease/cross-reactivity-between-anti-gliadin-antibodies-and-proteins-in-spices-may-trigger-symptoms-in-some-people-with-celiac-disease-r5900/ And https://www.celiac.com/celiac-disease/beyond-gluten-exploring-lesser-known-triggers-and-cross... -
- emily 1 replied to emily 1's topic in Coping with Celiac Disease11
Black Pepper Reactions
Wow! That's really good information. I have noticed that my Celiac symptoms are ever increasingly seeming like allergy symptoms as well. Stuffed up head, horse throat post navel drip symptoms. I'm afraid I'm not sure I understand how to follow the links you sent for the expanded version of non-histamine diet? Are those Instagram addresses? Because I don't... -
- knitty kitty replied to emily 1's topic in Coping with Celiac Disease11
Black Pepper Reactions
Canker sores can be more frequent if deficient in zinc, Thiamin B1, Riboflavin B2, Pyridoxine B6, Cobalamine B12, Folate B9, iron and Vitamin D. Following a low histamine paleo diet helps heal. Mast cells in our body make histamine and release it as a part of the inflammation process. Foods that contain high histamine levels can make inflammation...
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