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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to Mary Miller A's topic in Coping with Celiac Disease1
I am having a very hard time with foods calling themselves "Gluten Free" but in reading ingredients are not safe, cross contamination
Welcome to the forum, @Mary Miller A! May I ask, you say you are new to this online community but how long ago were you diagnosed as having celiac disease? You seem to have a good awareness of cross contamination issues but have you considered cross reactivity issues? Some of your cross contamination concerns should be addressed by FDA disclosure...- cross contamination
- gluten free foods
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- Tracey Thomas replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms21
New and Frustrated
So I’m back. Sorry for delay this has been a very expensive exhausting experience that I feel is still not resolved. So the reason for the B-12 issue is. Doctor tested me for alpha gal my test came back positive but numbers weren’t high enough for doctors. Meaning allergist., family doctor to think I should be having this kind of reaction. So there for the... -
- Mary Miller A posted a topic in Coping with Celiac Disease1
I am having a very hard time with foods calling themselves "Gluten Free" but in reading ingredients are not safe, cross contamination
I am new here. I am really totally frustrated by trying to be as gluten free as possible, only to find out that products being called "gluten free" have serious ingredients that need clarification (like Methocellulose) which can be derived from wheat shafts, "yeast extract" which can be grown on wheat, rye or barley, and issues with companies that claim...- cross contamination
- gluten free foods
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- Jenn D replied to Shireen32's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Still testing positive after being gluten free for one year ?!!
Hi. Did your ema levels ever go negative? My son is 2 years in gluten free and they are still positive. I'm scared he has refractory celiac disease. Please if anyone has any info greatly appreciate it. His ttg is 3 which is considered normal.
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