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Recent Activity
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- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Positive biopsy
Second update: the tTG just came through. Scale is 0-4.99flu. My result is 108.47. -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Positive biopsy
This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand. -
- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Positive biopsy
Just one thing I will add that you need to be aware of. If by some chance you had been avoiding gluten or eating less of it than what would be normal for most healthy people, the antibody results for celiac might still be negative. I understand that one of the symptoms of SMA syndrome is difficulty in eating because stuff isn't moving through like it should... -
- RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Positive biopsy
Your total IgA is normal. This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG,... -
- pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Positive biopsy
Hi all. Thank you for the responses. I hope I’m responding right, lots of new things this week. I also thought it was a long shot to get any real responses. Clarifications — the positive biopsy was an accidental finding. I had an endoscopy as a precautionary measure. I was recently diagnosed with SMA syndrome and before surgery they wanted the upper end...
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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.