-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Breaking Celiac Disease News & Info:
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- dixonpete commented on dixonpete's blog entry in Pete Dixon1
Rating of 4 jars for this incubation round
Seven days in the mark from the inoculation is becoming much less noticeable. I expect by ten days all that will be left will be some slight redness. I had worried that the pressure bandage would crush the larvae but apparently they minded it not at all. The wrap made keeping the bandage in place much easier. Highly recommended. -
- trents replied to jayjays's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
Yes, that is the goal. Although, appearances can be deceiving. There are studies that show some dimensions of villous mucosa healing may forever evade the celiac. Somethig thath has been termed "gene scaring".: https://www.beyondceliac.org/research-news/potential-drug-to-treat-celiac-disease-prevents-damage-caused-by-gluten-in-recent-study-of-molecular-action... -
- trents replied to Layu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Help plz with results. celiac?
Your total IGA is normal. Total IGA is not a test for celiac disease as such. The total IGA score simply establishes whether or not you are IGA deficient. If people are IGA deficient, then the individual IGA antibody tests cannot be trusted as being accurate because they will likely yield artificially low scores. -
- plumbago replied to jayjays's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
That is the goal of a gluten-free diet, @SunshineFace. But there is another possibility that you did not list, which is that no damage has occurred yet, and it may be a matter of time. However, if in your scenario, the EGD you reference occurred in someone previously diagnosed with celiac disease who had been eating gluten-free for some time, then... -
- SunshineFace replied to jayjays's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
How to diagnose NCGS / false positive Celiac / extreme fatigue, night terrors
Hello @trents! May I ask the question in reverse? If I present at EGD with zero villous atrophy confirmed with multiple biopsies, that means I am either presenting as a non-Celiac OR I've eaten well enough for long enough to heal all remnants of Celiac-induced atrophy? Is that the goal of a Celiac eating a gluten-free diet? To be indistinguishable from a...
-