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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to Sharke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
3 years with Celiac, now I appear fine.
@Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum. Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests. Have no doubt that the... -
- knitty kitty replied to sillyyak52's topic in Coping with Celiac Disease9
Family education
@sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with... -
- Lotte18 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26
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- knitty kitty replied to Soleihey's topic in Related Issues & Disorders8
Gluten Ataxia and Malabsorption
I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg). I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep. -
- knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26
Can food allergies like milk and soy flatten villi?
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia...
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