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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- kim91380 replied to alannahP's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
TTG-IGA Question
My 8-year-old son just got his blood results back and his TTG level is 20.3. In general, how long does it take to get the gluten out of their system completely? -
- Scott Adams replied to Gluten Free Jeff's topic in Related Issues & Disorders10
Anyone gone through public school gluten free?
We made our kids' lunches throughout elementary school, and a good part of high school, but my daughter ended up straying from the diet in high school due to peer pressure. I think you brought up something interesting, and that is that some kids get mistakenly diagnosed with eating disorders, when they actually may have celiac disease or some other food intolerance... -
- Scott Adams replied to KikiSa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Confused about test results
It's understandable to be concerned about the unit change between your child's test results. TTG-IgA can be reported in different units (U/mL or kIU/L), and some labs use a conversion where 1 U/mL equals approximately 1 kIU/L. However, since reference ranges and assay methods vary by lab, it's best to confirm with them directly. Ask the lab or your doctor... -
- SoBannaz replied to Gluten Free Jeff's topic in Related Issues & Disorders10
Anyone gone through public school gluten free?
No I was 19 when I was diagnosed. And before then I brought my own lunch (usually a sandwich) which I would throw up an hour later. I wish we figured it out sooner. My folks thought I had an eating disorder and was purposely making myself sick. With the way things are going wouldn’t be surprised if people think a kid with celiac disease is just attention s... -
- RMJ replied to Rhenriksen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Just diagnosed with Celiac! Scared and feel alone.
If your celiac antibody tests are still positive that may explain the ongoing symptoms. You might examine your diet and try to get those tests in the normal range before doing something like an MRI or CT scan. It took me almost six years to get all of my antibody tests in the normal range. At first I thought I was eating gluten free by avoiding wheat...
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