-
You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Latest Celiac Disease News & Research:
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Coeliac or not coeliac
Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand... -
- CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Coeliac or not coeliac
Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached. -
- Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Coeliac or not coeliac
Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis o... -
- trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Coeliac or not coeliac
Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope. -
- cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Coeliac or not coeliac
Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal. My TTG score was completely through the roof at the time, greater than 100 which was then the cut...
-
Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Founded by Scott Adams after his own diagnosis, Celiac.com has been a leading authority and supportive community for millions navigating celiac disease. For over 30 years, our mission has been to provide rigorously vetted, patient-focused information to help you achieve health and healing through a strict gluten-free diet. Learn more about our history and our commitment to the celiac community.
What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.