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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- trents replied to Stuartpope's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Mama trying to help 3 year old!!!
Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form... -
- Stuartpope posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Mama trying to help 3 year old!!!
Hey yall! New Celiac mama trying to help my son! My 3 year old was just diagnosed with Marsh 3b by a biopsy. We started this journey due to him being severely anemic (ferritin levels 1.2) He has had 3 iron infusions to help with the anemia. He has also been gluten free for a month. He is still having leg/ joint pain( he described a burning/ hurting... -
- trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Help Interpreting My Lab Results? (updated)
Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least. -
- trents replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease12
Getting sick much more often
Zinc is also a very important supplement when it comes to infection resistance. -
- Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Help Interpreting My Lab Results? (updated)
I've got my initial appointment with a gastro for a month from now and then I'm assuming we'll schedule my endoscopy from there for a confirmation of the diagnosis. I feel like it's pretty clear since my results are 18x the normal range but I know an endoscopy is the standard. I'll definitely post how that goes. How are you doing with your osteopenia...
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