Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Record is Archived

    This article is now archived and is closed to further replies.

    Wendy Cohan, RN
    Wendy Cohan, RN

    For Persistent Fatigue on a Gluten-Free Diet, Consider Adrenal Dysfunction

    Reviewed and edited by a celiac disease expert.

    Celiac.com 03/02/2009 - Many people suffer symptoms of fatigue prior to being diagnosed with celiac disease or gluten intolerance.  For some, fatigue is a major reason for initially seeking medical attention.  In both Celiac disease and gluten intolerance, malabsorption of nutrients can result in weakness, lack of energy, and even iron-deficiency anemia.  Iron-deficiency anemia can be compounded by gynecological conditions, especially in peri-menopause.

    A thorough physician will test for and sometimes treat underlying vitamin and mineral deficiencies common in malabsorption disorders such as celiac disease and gluten intolerance, and after three-to-six months, many symptoms related to such deficiencies will resolve.  Some alternative practitioners even offer injectables such as B-Vitamins and Magnesium.  Oral supplements range from plant-based liquid concentrates, to sublingual drops, to tablets and capsules, allowing a range of options for sensitive individuals.

    Celiac.com Sponsor (A12):
    Recently I spoke to a gluten intolerance group where a woman raised an important question.  She described her symptoms, which included profound fatigue and asked, “What can you do if extreme fatigue persists on a strict gluten free diet and supplements, even after a year or two?”  At the time, I wasn’t sure how to answer her, other than to suggest, off the top of my head, that she ask her Naturopath to do a saliva-based adrenal function panel.  I guess my reasons for doing so were based on fifteen years of nursing experience and the fact that she was probably about my age, and possibly in peri-menopause, which I knew places an additional strain on the adrenals.

    In women the sex hormones are produced in varying amounts in both the ovaries and adrenal glands.  A smooth transition through menopause would involve a gradual transition that decreased production of sex hormones by the ovaries, and increased production of sex hormones by the adrenal glands.  But, what happens if there are other factors in a woman’s life that prevent the adrenals from assuming this additional burden?  Coupled with the added strain that menopause places on the body and indirectly on the adrenals, a triggering event like a significant accidental gluten exposure, an increase in food allergies, or infection with a virus or bacterial illness, could simply tax the adrenals beyond their ability to meet this increased demand.

    The Gluten Connection

    Although relatively tiny, the adrenals have a very big job.  Adequate levels of the adrenal hormone cortisol are required by the body to help prevent inflammation and tissue destruction, keep blood sugars level, moderate nervous system responses, and attempt to maintain homeostasis, or the steady-state of balance in the body.    Periodically experiencing incredibly painful episodes of inflammation and tissue destruction from an accidental exposure to gluten, the protein found in wheat, barley, and rye, places a huge strain on the adrenals, including a sudden demand for high cortisol levels to help moderate the inflammatory response.  Each time, the body is able to cope, but with each experience it may take longer for the adrenals to recover.  When stress is prolonged, these high levels of cortisol must be maintained.  And if there is no significant recovery period during which the adrenals can rest and replenish themselves, adrenal fatigue results.

    After doing some research for a new book I’m working on, I found another possible connection, especially for those with celiac disease.  Many of us are aware of the strong, well-documented association between celiac disease and autoimmune thyroid disorders like Hashimoto’s thyroiditis.  We also know there is a relationship between celiac disease and another endocrine gland, the pancreas.  (Diabetes has a strong correlation with celiac disease.)  Autoimmune hepatitis affects the liver – the body’s largest internal organ. Nephropathy, which affects the kidneys, is a very serious, less familiar disorder linked to celiac disease.  But, we rarely hear about the adrenals, especially in relation to celiac disease. Could there be a connection?  In fact, there are several important connections that are often over-looked.

    In researching autoimmune disorders, I learned about a disorder called “Autoimmune Adrenal Hypofunction” or “Autoimmune Hypo-Adrenalism”, which sometimes occurs together with other autoimmune disorders.  As in other autoimmune disorders, the body produces antibodies targeted against its own tissues, in this case, the two walnut-sized adrenal glands that sit atop the kidneys.  While thought to be relatively uncommon, Autoimmune Hypo-Adrenalism is most closely associated with celiac disease.  In fact, I was quite surprised by the wealth of information on this association, based on many studies done in Italy and Ireland, both countries where celiac disease is common.  While the connection between other autoimmune disorders and celiac disease is generally accepted in the U.S., the case for adrenal insufficiency in relation to celiac disease has not appeared to have received as much attention.  So, it can’t hurt to mention this link here, since it has the potential to affect those with persistent fatigue and/or chronic inflammatory disorders such as interstitial cystitis, in which low cortisol levels may play an important role.


    Stress, Food Allergies, and Nutrition

    As anyone who has studied stress and the allergenic response knows, diet does matter.  One of the least recognized forms of stress is untreated or unidentified food allergies and sensitivities. 

    In Dr. Wilson’s book, “Adrenal Fatigue – the 21st Century Stress Syndrome”, he writes, “It has long been observed that people suffering from adrenal fatigue have a definite increase in allergic responses or become allergic to things that did not previously bother them.” This is because levels of the adrenal hormone cortisol, the most powerful anti-inflammatory substance in the body drop, making it “more likely that the body will have severe allergic (inflammatory) reactions and that these reactions will be more severe.”

    Another factor in adrenal function through is nutritional status.  As we know, many people with Celiac disease or gluten intolerance do have some underlying nutritional deficiencies, and these become more difficult to address as we age.  Certain vitamins and minerals are essential to replenishing and nourishing the adrenal glands.  Ideally, we’d obtain these essential nutritional components through our diet.  In cases of adrenal fatigue, it is important to discuss with your physician what you can do to help your adrenals recover, both by eating an ideal diet, and taking recommended supplements, including B-Vitamins, Vitamin C, Magnesium, and specific herbs and amino acids.

    Symptoms of Adrenal Fatigue

    Ten relatively common symptoms of adrenal fatigue are listed below:

    • Fatigue
    • Depression and memory difficulties
    • Sleep Disturbances
    • Migraine Headache
    • An increase in allergies or the development of new allergies
    • Alcohol Intolerance
    • Low Blood Pressure and Low Body Temperature
    • Blood Sugar Regulation Problems (Hypoglycemia)
    • Low Libido & Hormonal Imbalances
    • Inflammation

    Adrenal Testing

    Testing for adrenal insufficiency isn’t rocket-science, but an established and useful diagnostic tool that might have important implications for poor regulation of inflammation as well as for general health.

    The first step is to check for a low cortisol level, in combination with other hormones, including DHEA, Progesterone, Estrogen, and Testosterone.  This is easily done with a safe, reliable, and cost-effective serial saliva test, with four samples taken at specified time periods throughout the day.  Your physician often stocks these kits in the office, and can provide one for you to use and then mail to the laboratory.  The laboratory will perform the tests, and send the results to your physician, who will discuss them with you.  The whole process takes a week or two, and can be repeated every few months to track your recovery.  It is not expensive, and may even be covered by your insurance.

    In fact, you do not need a doctor to order the test, but the results will be of little value without a physician to interpret them, make a plan to address any abnormal findings, and support and monitor you in your treatment.

    Blood tests, including and ACTH challenge, may be indicated, but a serial saliva test is a good first step.

    Adrenal Recovery

    Any program of adrenal recovery must incorporate lifestyle changes that include avoiding stress or dealing with stress in healthy ways, such as exercise, relaxation, and meditation.  Eating an anti-inflammatory diet, free of sugars and alcohol, is essential, as continuing to follow a strict gluten-free diet.


    This article is partially excerpted from “The Better Bladder Book – a Holistic Approach to Healing Interstitial Cystitis & Chronic Pelvic Pain through Diet, Lifestyle, & Self-Treatment”, available soon through my website.  The book provides documentation for all research and factual content, including the information in this article.



    User Feedback

    Recommended Comments

    Guest Debbie

    Posted

    I very glad to see this article to raise awareness of these issues.

    Link to comment
    Share on other sites
    Guest Maryl

    Posted

    Wow thanks for linking these two concerns of mine. I've been on a gluten free diet for 4 years but am still having trouble that all points to adrenal problems. This is a big help.

    Link to comment
    Share on other sites
    Guest Dr. George

    Posted

    Excellent article. I think that the celiac - adrenal (and also, diabetes) connection is poorly understood, and hence, seldom investigated by traditional medicine.

    Link to comment
    Share on other sites
    Guest vbousquin

    Posted

    informative article

    Link to comment
    Share on other sites
    Guest Glenda

    Posted

    I have celiac and my husband has Crohn's. HE is the one who has 7 of the 10 symptoms of adrenal fatigue! He has mentioned fatigue to his G.I. specialist and was told it was 'part of having Crohn's'. Now I am going to print this article and show it to him at his next appointment. Thanks for the detailed article!

    Link to comment
    Share on other sites
    Guest Heather

    Posted

    Very informative, a real eye opener for me! I had undiagnosed celiac disease for 25 years. Recently my husband stumbled across an article which lead to my diagnosis. Since going gluten free I have still noticed the symptoms you mentioned. I have a sibling and cousin who have serious adrenal gland problems and never though I may also. Thank you so very much, I am going to have the test done as soon as possible.

    Link to comment
    Share on other sites
    Guest nun ya bidnes

    Posted

    I suffer daily due to Addison's Disease - the actual medical diagnosis of true adrenal insufficiency that, left untreated, will kill you. I call BS on adrenal FATIGUE - for those with celiac disease, imagine someone with mild gas saying they have "gluten sensitivity," or someone with sunburn claiming "PRE-skin cancer."

    Link to comment
    Share on other sites
    Guest plop

    Posted

    Post withdrawal syndrome for opiates can last a couple months or more. Gluten binding to opiate receptors and with the similarity of symptoms I would guess that one would experience more severe symptoms of fatigue, fluish, emotional unrest the first couple of weeks and then a gradual lessening of these symptoms over the next month.

    Link to comment
    Share on other sites
    Guest connie

    Excellent.

    Link to comment
    Share on other sites
    GFinDC

    Another thing to try for adrenal fatigue is selenium.

    Link to comment
    Share on other sites


    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Wendy Cohan, RN

    An RN for 14 years, I have been following a strict gluten-free diet for six years of improving health! Now I help others as a Celiac Disease/Gluten Intolerance Educator. I work one on one with people on meal planning, shopping, cooking and dining out gluten-free. I will also work with children who have behavioral issues related to gluten or other food sensitivities. 


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Destiny Stone
    Gluten-Free Foods are Improving
    Celiac.com 05/10/2010 - Celiac is a genetic autoimmune disease which affects 1 in 100 people worldwide, making it one of the most common food intolerance's in the world. Celiac disease is triggered by the ingestion of gluten proteins, and for those sensitive to gluten, digestion of gluten grains results in an immunological response in the small intestine, destroying mature absorptive epithelial cells on the surface of the small intestine, and creating side effects ranging from severe illnesses, to no obvious symptoms what-so-ever. Regardless of your symptoms, if left untreated, celiac disease can be life-threatening.
    There is no medication to cure or alleviate celiac disease, and the only cure is complete gluten abstinence for life. Avoiding gluten, means avoiding wheat, rye and barley...


    Jefferson Adams
    Celiac.com 08/08/2013 - I've happily reported the occasional story about a food bank here or there that has rallied to provide gluten-free food, or about the occasional gluten-free advocate who has helped to collect gluten-free donations, but the truth is that most food banks have minimal gluten-free options for those in need.
    That fact, and some of the challenging realities faced by people with limited incomes living with diabetes or celiac disease have been driven home in a new poverty survey by Women's Network PEI.
    Over the last few weeks, Women's Network has surveyed people with limited incomes living with diabetes or celiac disease. That survey has turned up stories about people facing difficult decisions about what food they can eat.
    Mike MacDonald, manager of Charlottetown...


    Jefferson Adams
    Progress on Gluten-free Campus Food Options Uneven, but Steady
    Celiac.com 06/13/2014 - As the number of students eating gluten-free continues to rise, colleges and universities are scrambling to keep up with an increasing demand for gluten-free options.
    The latest news comes from the University of Wisconsin, where the Net Nutrition program enables students with food allergies to more easily navigate the cafeteria.
    The program allows people to screen for allergens and food intolerance, and offers an easy way to subtract menu items a person cannot have, she said. UW’s dining halls have incorporated gluten-free items such as pizza, pasta, deserts and various baked goods, while Union South has also incorporated gluten-free options at its restaurants.
    The result has been a dramatic increase in the number of gluten-free UW student food options.<...>

    Jefferson Adams
    Celiac.com 05/07/2015 - Are chefs are improving their awareness of gluten-related disorders? That's one of the questions addressed in a new 10-year follow-up study in the UK.
    The study was conducted by a team of researchers headed by I. Aziz of the Department of Gastroenterology in Royal Hallamshire Hospital at Sheffield Teaching Hospitals in Sheffield, UK. The team also included M.A. Karajeh, J. Zilkha, E. Tubman, C. Fowles, and D.S. Sanders.
    The team set out to measure any changes in awareness of gluten-related disorders among the general public, and among chefs. To do so, they compared results from face-to-face questionnaires on celiac disease and gluten sensitivity on the general public and chefs based in Sheffield, UK. The survey was conducted in 2003, and repeated in 2013. They...


  • Recent Activity

    1. - trents replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Gluten free vitamins

    2. - Wheatwacked replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Celiac Maybe a Possibility?

    3. - Wheatwacked replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Gluten free vitamins

    4. - trents replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Gluten free vitamins

    5. - llisa replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Gluten free vitamins


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,229
    • Most Online (within 30 mins)
      7,748

    DogMom3
    Newest Member
    DogMom3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • llisa
      11
    • CeliacPsycho246
      4
    • CeliacChica
      45
    • ellanataliw
      6
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...