Nutrient Deficiencies in Adults and Children with Treated and Untreated Celiac Disease

iron supplement along with daily women's vitamin gummy. The gummies are so concentrated it ends up tasting like barf! YUM.

Multivitamin, and a number of things to battle "brain fog" which is commonly associated with Celiac. Extra Vitamin B. 

I was diagnosed due to severe anemia leading to an endoscopy, and was immediately given high dose Vitamin D, iron supplements, B12 and calcium while going on a gluten free diet.  It took me several years and then dropping dairy and other grains to get my tTG below 4.  It has been 12 years plus since going on the diet and I've added some gluten free cereals, but I still take a "regular" multi-vitamin, B complex, iron and D3.  Are they essential at this point I can't say, the only one I stopped was iron and after having some leg cramps and restless legs I went back on it and they've gone away.  I haven't had a blood test in quite a few years.

I have been on a gluten-free diet for 15 years and still have vitamin deficiencies. Mostly magnesium, vitamin B's, and D. I eat a wide variety of foods and take supplements but still struggle to keep the numbers up.

I was diagnosed about 15 years ago. I’m on a strict gluten free diet and I am still anemic. I have to take an iron pill every day.

2 hours ago, Guest Patty F said:

I have been on a gluten-free diet for 15 years and still have vitamin deficiencies. Mostly magnesium, vitamin B's, and D. I eat a wide variety of foods and take supplements but still struggle to keep the numbers up.

Have you had follow-up testing to determine wither your celiac disease is still active?  

59 minutes ago, Guest Lori said:

I was diagnosed about 15 years ago. I’m on a strict gluten free diet and I am still anemic. I have to take an iron pill every day.

My anemia resolved within a few months while on the gluten-free diet.  Have you had follow up testing?  Leading celiac centers recommend repeated antibody testing annually and a repeat endoscopy as needed.  You should find out of your celiac disease is still actively flaring.  You may have refractory celiac disease or another autoimmune disease or illness.   Talk to your GI.  

I have had celiac disease for more than 12 years. And I feel the best I ever have felt. I do take a woman’s multi vitamin and magnesium, calcium, D3, and lutein. I struggles with anemia but have had good levels for the last few years. Maybe I have filled the gaps. I hope!

Diagnosed in 1992. Follow a strict gluten free diet. Sometimes 20ppm is still too much for me.

Blood tests every six months show that the following keep my blood levels as 'normal' as they are going to get after being anemic for years.,

A regimen of 2 iron pills, calcium, potassium, D2 with zinc, turmeric, Coq10, Omega 3-6-9, multivitamin for women, vitamin C, vitamin B.

2 hours ago, Guest Aims said:

Diagnosed in 1992. Follow a strict gluten free diet. Sometimes 20ppm is still too much for me.

Blood tests every six months show that the following keep my blood levels as 'normal' as they are going to get after being anemic for years.,

A regimen of 2 iron pills, calcium, potassium, D2 with zinc, turmeric, Coq10, Omega 3-6-9, multivitamin for women, vitamin C, vitamin B.

My only symptom was anemia when I was diagnosed.  It resolved quickly on a gluten free diet.  Years later, I was diagnosed with my third autoimmune disease — Chronic Autoimmune Gastritis (which can cause iron or B-12 deficiencies).    This was found (Biopsy) during a Repeat endoscopy.  My small intestine was healthy, but not my stomach.  I learned that not all things are due to celiac disease.  Doctors tend to box you into a diagnosis.  Maybe a repeat endoscopy would benefit you as well.  Find the root cause.  Oh, did I mention my DGP IgA was highly elevated when I had that repeat endoscopy.  So, blood tests do not always provide a clear picture as to what is going on. Thankfully, my GI pushed for that repeat endoscopy (I resisted!). 

1 hour ago, cyclinglady said:

My only symptom was anemia when I was diagnosed.  It resolved quickly on a gluten free diet.  Years later, I was diagnosed with my third autoimmune disease — Chronic Autoimmune Gastritis (which can cause iron or B-12 deficiencies).    This was found (Biopsy) during a Repeat endoscopy.  My small intestine was healthy, but not my stomach.  I learned that not all things are due to celiac disease.  Doctors tend to box you into a diagnosis.  Maybe a repeat endoscopy would benefit you as well.  Find the root cause.  Oh, did I mention my DGP IgA was highly elevated when I had that repeat endoscopy.  So, blood tests do not always provide a clear picture as to what is going on. Thankfully, my GI pushed for that repeat endoscopy (I resisted!). 

3 hours ago, Guest Aims said:

Diagnosed in 1992. Follow a strict gluten free diet. Sometimes 20ppm is still too much for me.

Blood tests every six months show that the following keep my blood levels as 'normal' as they are going to get after being anemic for years.,

A regimen of 2 iron pills, calcium, potassium, D2 with zinc, turmeric, Coq10, Omega 3-6-9, multivitamin for women, vitamin C, vitamin B.

I was diagnosed in 1999. Damage from my undiagnosed celiac's was so bad that I had my gut resected twice, fluid drained from my abdomen, and my appendix removed because of calcifications. Took years to get back to what is now normal for me despite still having some trouble processing sugar. Now it's metagenics probiotics, S. boulardii, omega-3s + D, zinc, iron, a multivitamin and pepsin supplements every day. As healthy as can be now!

My husband was diagnosed in 2003 at age 59 after extensive testing because he was experiencing TIAs even after carotid surgery. Endoscopy showed the evidence. His doctors prescribed high dosage B-12, folic acid, vitamin D, calcium and a high dosage (high priced prescription) multi-vitamin. When the high dosage vitamin became unavailable due to some paperwork issues at the manufacturer, our pharmacist researched it for us and found that it was almost identical what is in a pre-natal vitamin - which costs significantly less as well - so he has been taking that instead. Their explanation regarding the TIAs was that he was so deficient in especially the B-12 and folic acid, in spite of being without significant celiac symptoms, because of the mal-absorption from his diet of those needed vitamins, that it was triggering the TIAs. Our normal diet was rather restrictive because of some of my food preservative allergies and his heart history, so that perhaps kept most of the symptoms at bay for a long time. The addition of these along with a gluten free diet has kept him in good shape ever since thanks to a cardiologist who was determined to get to the bottom of the issue! Since then, 2 of my grandchildren have also been diagnosed after exhibiting mild symptoms (and being very aware because of the family history) and are doing well now that they are strictly gluten free.