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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- cristiana replied to Farralley's topic in Related Issues & Disorders1
Sore mouth lining and Coeliac Disease.
Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I... -
- Farralley posted a topic in Related Issues & Disorders1
Sore mouth lining and Coeliac Disease.
Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia. I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist. My concern is a... -
- trents replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Inconclusive biopsy results
In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores... -
- Lizy487 replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Inconclusive biopsy results
Thanks for the reply, I will ask for the antibody test. FODMAP does not eliminate gluten so it shouldn’t affect the results. -
- trents replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Inconclusive biopsy results
I would ask to have celiac antibody blood tests done. These tests would not be valid, however, unless you were eating normal amounts of gluten for weeks or months leading up to the blood draw. So, not sure how the FODMAP diet figures into that. Ask for a minimum of 1. total IGA and 2. TTG-IGA. "Villi are swollen, congested, and shorter." "Moderate...
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