Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease & Gluten-Free Diet Blogs

1desperateladysaved's Blog

Don't Forget The Enzymes: Because

I guess many know, but I better be up front to say that I am having allergies most likely from long-term celiac symptoms not diagnosed. At any rate I have healed my villi and had figured that I could stop taking my enzymes. I noticed the following symptoms:   More easily irritated. Overwhelmed Increasing Fatigue , Weight loss 10 lbs in a few months. (This certainly could be something else) Stool containing food fragments and capsule pieces. (At least the capsules were empty) Increased
1desperateladysaved

1desperateladysaved

6
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Bell & Evans Gluten Free Breaded Chicken Product Recall

Murry’s Inc., a Lebanon, Pa. establishment, is recalling approximately 31,689 pounds of gluten free breaded chicken products that may be contaminated with Staphylococcal enterotoxin, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The products have a best by date of August 9, 2015. The following products are subject to recall: [View Label (PDF Only)] 12-oz. boxes of “Bell & Evans Gluten Free Breaded Chicken Breast Nuggets.” 10.5-oz. boxes of
Scott Adams

Scott Adams

0
sillyker0nian's Blog

Well - Now I'm Just Scared, Confused, Angry And Emotional

Last night - was the first time I have cried for that long in years.   ----   I finally got to visit my now official endocrinologist yesterday morning and it has completely left me shaking to my core. I don't want to bore everyone with tiny details so I'm just going to talk about the most important facts - if I don't vent and cope, it's going to eat me. She told me, that my first doctor who ordered my hormone tests should have, is that I basically have no more estrogen in my system. It was
sillyker0nian

sillyker0nian

6
Edgymama's Gluten Free Journey

Almost Lab Draw Day-Gluten Challenge

Well only a couple more days until I can get my labs drawn. I go on Saturday morning and cannot wait. I am eager to hear the results and hopefully get to go off this poison in early November for good! I am dreading that I may have to go for an endoscopy and have to stay on gluten even longer though.   I was only off gluten for maybe 2 months before my challenge but the drastic difference I felt taught me that no matter what I do not need gluten in my life no matter what the tests say!   Sin
edgymama

edgymama

1
Celiac Ninja's Blog

Cut Out The Extras And Get The Enzymes!

That's exactly right!   Meat, rice and vegies.   The only extras were the ones that I knew and tested before and still feel confident about; Silk coconut milk (for my calcium/magnesium/etc), CeliAct vitamins and my MRM gluten enzymes.   *I added my Rice cheese later, kept up with the Waluby Greek yogurt and drank water from the tap. Then the Rice Dream Organic vanilla ice cream.   There were slip ups of course: #caffeine- I am totally allergic! Symptoms never fail. # not rinsing off my
Celiac Ninja

Celiac Ninja

0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

New Hope Mills Issues Allergy Alert on Undeclared Soy in New Hope Mills Gluten Free Chia Pancake and Waffle Mix

New Hope Mills Manufacturing of Auburn, NY is recalling all Gluten Free Chia Pancake and Waffle Mix because it may contain undeclared soy. People who have an allergy or severe sensitivity to soy run the risk of serious or life-threatening allergic reaction if they consume these products. New Hope Mills Gluten Free Chia Pancake and Waffle Mix was distributed to distributors and retailers in NY, PA, NH, OK, and FL. The affected product, New Hope Mills Gluten Free Chia Pancake and Waffle Mix, can
Scott Adams

Scott Adams

0
moosemalibu's Blog

Colonoscopy

Well... my diarrhea has continued and not improved despite resolution of most of my other celiac symtoms. I'm going in to be tested for microscopic colitis next month. I just want to have a normal phucking bowel movement. It's been soo long I don't even remember what one looks or feels like! Hoping for answers.
moosemalibu

moosemalibu

4
Edgymama's Gluten Free Journey

Pre-Diagnosis, Gluten Challenge 1/2 Way Mark

My story is similar to many where I have been diagnosed with IBS. I got the diagnosis I believe in 2003 by military doctors. I was having weird rash flare ups including bubbles all over fingers and very swollen joints, the rash was ruled as contact dermatitis. My IBS was the combination of C and D. C would never get that bad just was pretty irregular. It has become more and more a common thing for me since then that every time I go my norm is very loose. In fact I knew after having take out or c
edgymama

edgymama

2
PeachPie's Blog

Symptoms Of Going Gluten Free And Hidradenitis Suppurativa

Hello all...My name is Shanna AKA Peach and I am new to this site. I wanted to ask about a few things concerning HS (hidradenitis suppurativa) and other symptoms I have experienced during my 1st week of going gluten free. Like many others with HS I have been to multiple doctors, have taken millions of pills and been offered surgery in an attempt to fix my HS. None of which have worked in my 17 years of suffering from this disgusting and debilitating disease. About a year ago I went gluten fr
PeachPie

PeachPie

2
kelcat's Blog

Gluten Free Since Feb. 2014

I have had stomach problems for as long as I can remember. I was told I had IBS & put on medication which didn't seem to help. I started putting on weight & my belly was really bloated. I was even asked if I was pregnant. I went through some very stressful times from 2009 until 2011. I lost my husband then daughter next my mother n law. I was barely eating, I was so stressed. I noticed I hadn't had any stomach pain during this time. When I did start eating regular again my legs were th
kelcat

kelcat

2
sillyker0nian's Blog

(Update) Got My Blood Test In!

Hey, everyone!   So, thanks to the amazing people of this site I took their advice and convinced my doctor to order my Celiac Blood Panel and she did. She was so sweet and tested me for H. Pylori before we even discussed Celiac (which - I knew it wasn't it because I was on antibiotics last month!). She listened to everything I had to say, knew that I had to be eating gluten for the tests to be accurate, and even let me show her the entire Celiac panel and offered to add them before she found o
sillyker0nian

sillyker0nian

4
1desperateladysaved's Blog

Clash With The Doctors On My Colonoscopy Prep

I am normally a very shy person just wanting to blend in and willingly do what I am asked. However, when doctors told me that I needed to drink high fructose corn syrup, corn in my medications, and plastic (Mira lax) they had overstepped their power and I felt threatened. I swell up if I smell corn, so I knew I couldn't eat it. They dismissed my concern about this saying, "You can do it for the test." I set out to figure out a safe alternative for me to prep for my colonoscopy. This process took
1desperateladysaved

1desperateladysaved

1
JesikaBeth's Blog

3 Weeks Today

Today marks 3 weeks since going gluten free. Overall I feel a world better!!! At first, I was sleeping really good (like the first week and a half), but for the last week and a half or so, I've had horrible insomnia. Now, I am a chronic insomniac anyway, but I was rather enjoying that week and a half of restful sleep   Not sure if it's a gluten thing or not, and hoping the constant waking up/not being able to sleep, doesn't continue on as regular of a basis as of late.   With that said, ov
JesikaBeth

JesikaBeth

3
The Patient Celiac

Hope For A Less Challenging Gluten Challenge

The current “gold standard” tests for celiac disease include testing for celiac antibodies in patients’ blood and performing an endoscopy to obtain small bowel biopsies. In order for these tests to be accurate, one has to be eating gluten up until the time of testing. If a patient is already on the gluten-free diet when these tests are done, the diagnosis of celiac disease can easily be missed. I’ve encountered many people who have decided that they’d like to be tested for celiac disease after
jebby

jebby

1
The Patient Celiac

Celiac Disease Autoimmunity

I first came across the term “celiac disease autoimmunity” a few weeks ago as I read summaries of the article “Risk of Pediatric Celiac Disease According to HLA Haplotype and Country” that was published in the July 3, 2014 issue of the New England Journal of Medicine(NEJM). Based on my reading and interpretation of the article, it seems that celiac disease autoimmunity is interchangeable with the more commonly used term “potential celiac disease.” Both are used to describe cases in which people
jebby

jebby

0
JesikaBeth's Blog

Thanks, Doc

So I went to my follow up appointment with my doctor today, 2 weeks since going gluten free. After HE said to go gluten free and it will help a great deal. So I go in, all excited, that in 2 weeks time my health has improved drastically (I was also put on Savella for fibromyalgia, and taken off my other fibromyalgia medication.)   Anyway, I love my doctor, he's the only one who has ever listening to me - really listened - and he's overall good with a great bedside manner. Anyways, so I'm exc
JesikaBeth

JesikaBeth

2
1desperateladysaved's Blog

Damage Assesments At 2 Years Gluten Free: Colonoscopy/endoscopy Prep

Quite possibly I suffered from celiac all of my life. I say 30+ years since I am older than that and can recall bloating and fatigue beginning undeniably at age 19 after a bout with mono-nucleosis. I have been working with my physicians to relieve my symptoms naturally and attempting to get to the roots of problems and solve them since realizing I had a gluten problem about 2 years back.   I haven't been too interested in Medical doctors for years since they could make my eczema go away, but i
1desperateladysaved

1desperateladysaved

3
JesikaBeth's Blog

Coincidence? Starting To Think Not...

So I am starting to think that several of the things I have beend diagnosed with, and/or are struggling with (including severe insomnia) are directly tied to gluten.   Just over a week in, my insomnia has gotten noticeably better. My fibromyalgia pain has gone from constant pain to, seriously, being decreased by over half (granted, I am also on a new fibro medication, but whatever it is is working, so I'm not going to question it!) I have noticed my focus has been slightly better, although it
JesikaBeth

JesikaBeth

3
Celiac Ninja's Blog

Stay At Home Mom

With two kids to tend to, glutened by who knows what, and allergic to other stuff, I am finding it hard to survive. At night I have horrible nightmares, have had since I was a kid, but the glutening makes them worse. Also having heart palpitations, tightening, lethargy. Very tired all over as well. The last few weeks the glutening has damaged my gut and I guess I am consuming things that make it swell normally, so going to the restroom is defiantly difficult and painful. I'm loosing quite a lot
Celiac Ninja

Celiac Ninja

2
JesikaBeth's Blog

7 Days Down... A Lifetime To Go!

Well, 7 days down... a whole week gluten free... and I'm feeling hopeful. Good sign, considering I really thought I'd be down in the dumps over this (thank you to this forum and the book 'Living Gluten Free for Dummies by Danna Korn for the push in the hopeful direction!)   We are making our very first grocery store trip this Friday, since my diagnosis. Surprisingly, I'm kind of excited.   I think the prospect of feeling better (which I am already starting to feel MUCH better) is contribut
JesikaBeth

JesikaBeth

2
JesikaBeth's Blog

Getting A Sleep Study Done!

I am getting a sleep study done tonight. My Oncologist referred me for one. I have had chronic insomnia since I was 15 years old. I am now 34. My sleep is awkward, and I go through phases where I literally can't sleep at all (despite being on sleep medication prescribed by my psychiatrist), or I will sleep too much. I also have very little energy. My partner, who works in the medical field, believes I have sleep apnea. I'm interested to finally be having a sleep study done because this wacky
JesikaBeth

JesikaBeth

3
JesikaBeth's Blog

Here We Go!

Here it is, July 2014. I have been going through the run around since 2009 with possible celiac and/or gluten intolerance diagnosis. Over the years, I have not gotten a solid answer; and in the meantime other health issues had taken front seat to my possible gluten problems.   July 3, 2014: Diagnosis received.   So far so good with being gluten free. Today will be day #4.
JesikaBeth

JesikaBeth

2
Gluten Intolerance Doesn't Exist?!

Gluten Intolerance Doesn't Exist?!

Last night, I heard David Sax speak to a packed crowd in Los Angeles to promote his new book, "The Tastemakers: Why We’re Crazy for Cupcakes But Fed Up With Fondue." As a Toronto-based journalist who's written for publications such as New York Magazine, Vanity Fair, the New York times, NPR and GQ, David's won a James Beard award for Writing and Literature, has written before on food topics and has credibility as a food writer. David's topic was food trends, in this case why Angelenos love Kogi B
Miriam Reiss

Miriam Reiss

13

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

×
×
  • Create New...