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Celiac Disease & Gluten-Free Diet Blogs

Blues Boulevard

How Long In The Penalty Box?

3-12: I eat two slices of a three cheese gluten-free pizza. | | | ¥ 3-20/21: still paying for it daily with changing symptoms.   Even things I normally eat hurt. Argh   I feel like one of those squeeze toys where, when you squeeze the stomach, the eyes pop out.   Never again cow dairy. In time, I'll have some goat yogurt but never again cow cheese. "Said the Raven...". 8-o   Maybe it's stress compounding it too. The things I'm dealing with, worrying about. Who's stomach wo
CaliSparrow

CaliSparrow

1
The Educational, Dietary and Social Experiences of College Students with Celiac Disease

The Educational, Dietary and Social Experiences of College Students with Celiac Disease

Recruitment Notice! College students are invited to volunteer for a study conducted for research purposes and approved by the Pennsylvania State University. The purpose of the study is to determine what educational, dietary, and social experiences college students are having as a result of their celiac disease and what accommodations colleges and universities are making to meet the needs of these students. The study will also help to determine what recommendations college students have for
Kay A. Chick, Ed.D.

Kay A. Chick, Ed.D.

1
Blues Boulevard

Angry That I Can't Find The Words

This forum group is a godsend. I'm very comfortable here and wish I could speak up for myself better out in the real world. Things come up, people ask things of me that I cannot give because I don't look sick on the outside. Well, I look tons better after eliminating gluten but, you know, I look normal to others regardless. People make assumptions and a lot of them.   A caregiver of my Mom's asked me to come (and bring her) to his kid's birthday party on Saturday. I don't like to say "I'm
CaliSparrow

CaliSparrow

5
learning2cope's Blog

Things Are Going Well - Mostly. :d

Well, since my last post things have really turned around in a good way. My mom is now on my side fully with going gluten-free. I feel so much better, though I am now having huge flare-ups of new and typical allergies, and also now having loose stool and gastro pain. I think it's my daily pills... I'm having issues with lactose still, gluten (of course), my tea tree organic castile soap (Dr. Bronner's Tea Tree Bar Soap), any shampoo (currently am using Mane and Tail), an organic body wash called
learning2cope

learning2cope

3
onceandagain's Blog

Traveling In China & Japan

I will be traveling in Japan and China and am looking for advice, cautions from those who have already done this.
onceandagain

onceandagain

1
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Hilarious Article by Gluten Dude About Gluten Free Society

This post is outstanding. I've been thinking much the same thing for months now, but was too lazy to actually write something about it. Obviously there is no need to now, as Gluten Dude says it all...perfectly. Open Original Shared Link On one hand I am reluctant to further publicize the "Society" site in any way. After more thought, however, I realized that getting the word out may help some poor celiac not waste their money, and may prevent them from going on an unnec
Scott Adams

Scott Adams

2
Trust Your Gut!

Check Please!

So my story begins with me planning a special dinner to surprise my husband for his birthday. Now as you all know being gluten-free, we have limited resources when it comes to eating out, however, I was bound and determined to find some place new and exciting to dine. I will not mention the name of my chosen destination due to the fact that they had only been open for a month, and my intention is not to destroy their good name, but rather to help keep people like us more engaged when it comes to
Jennifer Cottrell

Jennifer Cottrell

0
March On

1 Year Ago

Ok so here goes..   A year ago I was having all these problems with my health. I used to be very fit and active. However, I had to relocate and became very stagnant and caught up with my situation and improving it. I started to eat 'on the go' which I had not really done so much previously. After about two years of eating mostly fast food, with no exercise and oversleeping my body started to fight back.   My body became really ill, I started sleeping all the time, had no energy even when I s
itsmebiancap

itsmebiancap

1
learning2cope's Blog

Wow Huge Shocker Here!

I am surprised! Mom had been not really all that willing to help me go gluten-free. She was saying "you'll be fine" in regards to cross contamination. I had sent her 2 emails to maybe spark her willingness to help out.   Here is what I included in the first email:   Here is what I included in the second email:   Just copied and pasted from celiac.com   I think those emails helped her to understand this is real and this is a real lifestyle change for me and hopefully them at home. I do
learning2cope

learning2cope

2
learning2cope's Blog

Second Day gluten-free And Got Glutened :(

Well I was doing great until lunch today.   Yesterday I decided right after I woke up to go gluten free to see if my mysterious symptoms resolve. I had no gluten yesterday (that I am aware of).   Since we really don't have much in the way of gluten-free foods here, I ate:   Breakfast: Isopure Zero Carb 100% whey protein isolate vanilla powder + water (smoothie) - couldn't finish it because mom had made it with tap water and our tap water is awful tasting.   Lunch: Isopure powder + soy
learning2cope

learning2cope

2
The Patient Celiac

Celiac Disease Can Be A Pain In The Joint

Unexplained joint pains (arthralgias) were one of the main symptoms that I dealt with prior to my celiac diagnosis. Throughout my twenties I had pain and stiffness in my fingers, knees and ankles that would come and go with no apparent explanation. I ran track for part of high school and continued to run for fitness during college, but shortly after graduating had to stop running for a long time due to my joint issues. I was evaluated over and over again for lupus, rheumatoid arthritis, Lyme Dis
jebby

jebby

0
moosemalibu's Blog

I Went Camping For The 2Nd Time Since Diagnosis

Well... my boyfriend is a HUGE 4x4 truck enthusiast. He has 2 rigs that are specifically for off roading purposes. Consequently we take these rigs to remote places and drive over lots of rocky terrain. He has rock crawler and a prerunner or something like that. It is very confusing keeping all the classes straight. It's his hobby that I support but not quite understand. He has a forum for his trucks. I have a forum for my bowel. LOL   Anyway... we went to the big King of the Hammers race in Jo
moosemalibu

moosemalibu

2
w8in4dave's Blog

Cutting Out Processed Foods

Today Is Friday Feb 7th 2014, I have decided to cut all processed from my diet. I am blogging this because I want to remember the date. If in 2 months I am still having problems I will cut rice out of my diet. If two months after that I am having problems I will cut Beans out of my diet. If after 2 months after that I will cut potatoes. I am really hoping that cutting processed will be the answer I am hoping for Wish me luck So hopefully April 7th will tell.   Not sure how to keep this Blog
w8in4dave

w8in4dave

15
Trust Your Gut!

Trust Your Gut!

Have you ever had a conversation with someone about being gluten free, and in the middle of explaining they look at you like you're crazy and ask how something could possibly contain wheat? I find it happens to me quite frequently. It's easy for people not living the gluten free lifestyle to view our lifestyle as extreme, however if you have done the research and you know what is proven to be safe for you then you have to trust your gut! in other words never let someone dictate what is safe or
Jennifer Cottrell

Jennifer Cottrell

1
1desperateladysaved's Blog

Here I Am, Send The Other Guy

I am not a volunteer to my current position of transitioning from a life of relishing gluten to lady that shrinks back when gluten is near. When the teacher mentioned "health" or an internal organ in elementary school, I felt weak! Sometimes, I would get dizzy and the field of vision turned black! Once a nurse came to school to take our pulses. The teacher helped some, and she tried to take mine. She couldn't find it, so she called the nurse over. The nurse found the pulse for a brief instant, b
1desperateladysaved

1desperateladysaved

3
KCG91's Blog

Three Months In - Blood Test Results

So I collected my blood test results after three months gluten free. When I was diagnosed my ttg IgA was >128u/ml, with 'normal' being <7. Today it is at 22u/ml! Poor doc was a bit confused because for many people this would be high, but obviously for me it's a massive improvement. I wasn't expecting it to be that good, as I live between three non-gluten-free houses and although I do my best with CC, I know it could be better (Hopefully just a few more months til I get my own place!)   I
KCG91

KCG91

5
moosemalibu's Blog

Celiac Rage

If there was such as thing as Celiac Rage-- I've got it today.   I am still healing my bowel from diagnosis last year. I thought I was making progress when I had a normal stool this morning. But then I had BM after BM after BM. And each one got progressively worse. Can I not be a human cesspool of Poop all the GD time? I just want one normal BM. I want it to be large in diameter, firm but not dry, and not some stupid pinky sized piece of poo pretending to be a normal poo. I know you're not th
moosemalibu

moosemalibu

11
Posterboy's Blog

Not Eaten Gluten In 4 Years . . . Is It Safe To Now Eat Gluten Again

I was/had been gluten free for 4 years.   I have heard that (maybe urban myth) that gluten doesn't bother me anymore.   How do I know gluten is bothering me again before it is too late?   I am still regular even when I ingest gluten accidently or can't resist cheating.   All I can think is my gluten allergy has gone away.   Is this possible? Or am I just pressing my luck for I relapse in to gluten sensitivity again,   Posterboy,
Posterboy

Posterboy

8
KMBC2014's Blog

If You Have An Intolerance To Lactose, Soy Can You Develop A Gluten Intolerance.

I started off with a lactose intolerance( not diagnosised by doctor) But every time I eat or get any dairy or soy into my system I get very sick!!! Nausea, diaherra, Pain in stomach sometimes on a scale of 1 to 10 is a 9, weight loss (some), bloating, weakness, tiredness and dizziness. I asked my doctor if it was a lactose Intolerance they said sounds like it!! That was it, no tests, nothing. stay away from dairy of all kinds so I did and no soy because I get the same reaction. Then I started to
KMBC2014

KMBC2014

2
The Patient Celiac

Celiac Disease In Children

Drs. Guandalini and Assiri have written a summary of pediatric celiac disease that was published in the online edition of the journal JAMA Pediatrics last week. In this post I will share some of the highlights of their review article.   Although the overall prevalence of celiac disease is 1% in the pediatric population, only 10-15% of children with celiac disease have been diagnosed and treated.   The celiac genes (HLA-DQ2 and DQ8) contribute 40% of the risk of developing celiac. Environment
jebby

jebby

0
alfgarrie's Blog

What Do I Do Next?

Ok, so this is all new to me. I have never done a blog, or dealt w/ Celiac til just recently. Never have I worried about the food I have put in my body, and didn't give much thought to what my kids had either. My middle child showed signs of having an allergy. We took him and had him tested, and the only thing that showed up was a mild wheat allergy. I talked to the doctors and they said don't worry if it's not causing too many problems. I didn't worry until it really seemed like he was ha
alfgarrie

alfgarrie

3
Swimming Breadcrumbs and Other Issues

Gluten-Free: Fad or Future?

I’m not sure when I became part of the “in crowd” but suddenly I find that I’m not weird anymore. Gluten-free is now “cool.” I go to restaurants and grocery stores and whole sections are labelled for people just like me. Stranger still, I meet people who are joining my dietary crowd. They want to be gluten-free. At first I thought they were crazy. Why would anyone want my life of intense dietary restrictions if their health didn’t require it of them? But, then I’ve seen those same pe
Jennifer Arrington

Jennifer Arrington

1
The Patient Celiac

Mast Cell Activation Syndrome Madness....

At this time last year I had never heard of mast cell activation syndrome (MCAS) and the first time that I heard the name I thought that it was a “made up” disease. Since then I have come to realize that it is a real diagnosis and I have learned a ton about it, including the following:   MCAS is a newly recognized disease of the innate immune system (our bodies’ first line of defense against bacteria, viruses, parasites, and other invaders). Women make up the majority of patients with MCAS.
jebby

jebby

4

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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