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Celiac Disease & Gluten-Free Diet Blogs
Still a happy gluten camper
In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming gluten. She's derived other benefits (remission from colitis) but she never took the step of trying gluten. Makes me think I'm braver thaFood Recall of Van’s Gluten Free Original Waffles Due to Potential Presence of Undeclared Wheat Allergen
Van’s International Foods (“Van’s”) is voluntarily recalling certain packages of Van’s Gluten Free Original Waffles, because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The affected products are labeled with Lot Code #UW40193L and have an expiration date of 1/19/2024 with UPC 0 89947 30206 4. To identify the Lot Code, expiration date, and UPC, please
I'm back in remission
I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but as all celiacs know, risking a gluten exposure is not for the faint of heart. Back in the day I've had some hella violent reactions where I becSo far so good
The oatmeal yesterday didn't cause any reaction whatsoever. I decided to take the plunge this morning and ate a whole Wheat Thins cracker. If anything would unambiguously cause a reaction that much gluten would. In the past pre-hookworms an exposure 1/10th that much would have had me sitting on the toilet for a couple of hours. If I don't react by the end of today I'm going to assume I'm good to go. That would imply that for me the ramp up to a non-celiac state after inoculation with the laRe-thinking my reintroduction to gluten
As I've written about before, the last time I ran out of hookworms (or perhaps effective hookworms) was with my first cycle spanning early August 2018 to the first week of March 2019. That end point was when I had to go back on a gluten-free diet. Putting those dates together that's 5 months for 2018 and 2 months of 2019. I was slow in testing gluten that time (because celiac!) but it's reasonable to think I could have gone on a regular diet after 40 days post inoculation. That would have mDay 27 post inoculation
Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days are over. From now on I'll aim for a 5-month cycle between inoculations.Blast from the past
Yesterday I got sick. Twice. Just like I remember being sick in my celiac pre-hookworm days when I was still eating gluten. A colonoscopy cleanse level sick. I had been eating gluten-free this month letting my critters grow and mature into their adult forms so I wasn't sure what happened. Then I remembered I had eaten a new oatmeal. I didn't say gluten-free on the front but I figured a little gluten probably wouldn't phase me. Well I figured wrong. I checked the ingredients list and yep, inSnaktastic Gluten-Free Sea Salt Lentil Bites misdeclared as gluten free
The below batch of Snaktastic gluten-free sea salt lentil bites has been misdeclared as gluten free. This product is labelled as gluten-free but contains gluten, this may make the batches unsafe for consumers who are allergic to or intolerant of cereals containing gluten. Allergen(s): Cereals containing gluten Product Identification: Snaktastic Lentil Bites – Sea Salt; Pack Size 113g Batch Code3139; best before date 13/02/2024 Country Of Origin: United KingdomDay 10 post inoculation
Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the entry wound was ugly enough to scare children. The way the life cycle of the hookworms works after about a week the larvae drill throughThe results 3 days later - warning, graphic pic
This time around I've been using a steroid cream to keep down the inflammation. The results still aren't pretty but I don't have the ugly blisters I usually get. Definitely worth using. The cream I used was a topical corticosteroid called Taro-Mometasone, aka Mometasone Furoate USP 0.1%, applied every 6–8 hours. After a week the mark should be almost gone. After multiple inoculations I've never been left with a scar. It has never hurt, just tingled initially and itched some later. NothA new batch
A couple of weeks ago or so I started noticing GI issues. Occasional bouts of loose stool, stirrings of colitis, incontinence - all completely at odds with my usual experience. It had been more than 6 months since my last hookworm inoculation so I knew it was time to re-up. Things have changed since I started with Helminthic Therapy. I got hooked up with the Helminthic Therapy Support Group on Facebook and a contact there suggested I try another provider, one that used courier tracking andSorry for the delay in writing
So I ordered my first hookworms around July 7th, 2018. The sales and transport of hookworm operates in somewhat of a gray area. Authorities recognize that seriously ill people are trying helminths like hookworms tin order to get better, but the laws in all jurisdictions haven't caught up with what some people see as a medical necessity. Accordingly, providers of hookworm larvae prefer to operate on the down low. Restricting communication by email and payment by Bitcoin work towards that enSecond Nature Brands Issues Allergy Alert on Undeclared Wheat in Gluten Free Reese’s Pieces Brownie Brittle
Celiac.com 03/28/2023 - Second Nature Brands of Madison Heights, MI, is recalling its 4-ounce packages of Gluten Free Reese’s Pieces Brownie Brittle because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled Gluten Free Reese’s Pieces Brownie Brittle were distributed nationwide in retail stores and through online orders. The product cJoy Joy’s Bakery Issues Allergy Alert on Undeclared Wheat in Ube Spanish Bread, Ube Ensaymada, and Ube Roll
Joy Joy’s Bakery Lakewood, Washington is recalling Ube Spanish Bread, Ube Ensaymada, and Ube Roll because it may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume this product. The recalled Ube Spanish Bread, Ube Ensaymada, and Ube Roll are sold at Joy Joy’s Bakery in Lakewood, Washington and sold at Fubonn Supermarket in Oregon. The recalled products are packaged in plasticFSIS Issues Public Health Alert for Ready-To-Eat Hy-Vee Beef Pot Roast Entrée Products due to Misbranding and an Undeclared Wheat
Celiac.com 01/23/2023 - The U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) is issuing a public health alert due to concerns that the gravy component of ready-to-eat Hy-Vee beef pot roast entrée products may contain wheat, a known allergen, which is not declared on the finished product label. FSIS is issuing this public health alert to ensure that consumers with an allergy to wheat are aware that these products should not be consumed. A recall was not requested becauseWorld Variety Produce, Inc. Voluntarily Recalls Melissa’s Pasta Para Duros 12oz Because it Contains Undeclared Wheat Allergens
People with an allergy or severe sensitivity to Wheat run the risk of serious or life-threatening allergic reaction if they consume this product. The product was sold in the produce department and distributed in the states of Illinois, Indiana, Kentucky, Michigan, Ohio, Wisconsin. No illnesses have been reported to date. Melissa’s Pasta Para Duros can be identified by the following descriptions: Melissa’s Pasta Para Duros 12oz Source: fda.govA new journey
In the last blog entry it was late July 2018 and my larvae had just arrived. Before going further there is a fair amount of history leading up to that moment that probably should be discussed. Back in 1999 at age 35 and single again I had my first inkling of what was to come. I was into body building at the time and consumed a fair amount of protein powder. I developed a painful reaction to it. I talked to the vendor. They had never heard of any problems. I shrugged it off. Going forward thA blog for those interested in hearing about my experiences with hookworms and celiac disease
Back in the summer of 2018 I was reaching a pivotal moment in my life. I had had celiac disease and ulcerative colitis since 2006, but the colitis had flared to an 11 and wasn't responding to drugs. Prednisone disrupted my sleep but didn't even begin to take the edge off my colitis pain. Daily I was going into the shower, closing the door, cranking the radio, and literally screaming because I couldn't take the pain anymore. I had talked to my doctor several times about the prospect of colectomylow stomach acid FPIES Model for Celiac disease and or NCGS triggered by Low and or NO Stomach Acid in Children and Adults by the Posterboy of Low and No Stomach acid
FPIES Model for Celiac disease and or NCGS triggered by Low and or NO Stomach Acid in Children and Adults by the Posterboy of Low and No Stomach acid I started a thread about this topic Low and No Stomach Acid as trigger for food alelrgies……. but it was part of a larger more general topic Here it is if you want some background But this topic about FPIES is important enough…..it needs to be explained some more and deserves it own blog post on this topic and/or an article
Phil’s Power Pancake Issues Allergy Alert on Undeclared Wheat
Phil’s Power Pancake of Costa Mesa, CA is recalling its 5 oz. packages of individually wrapped Power Pancakes in all 5 varieties (Mango, Raspberry, Cranberry, Dates, and Chocolate Chip Hempseed) because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. Phil’s Power Pancakes are distributed locally in Orange County & Los Angeles, CA at various gyms andMore info about Vitamin Deficiencies
I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical companies. I've experienced the limbs falling asleep..... Vitamin B12 deficiency neuropathy; a rare diagnosis in young adults: a case re
Cappola brand Genoa Salami recalled due to undeclared milk and wheat
Product Genoa Salami Issue Food - Allergen - Gluten Food - Allergen - Milk Food - Allergen - Wheat What to do Do not consume recalled products to which you are allergic or sensitive. Do not consume the recalled product if you have celiac disease or other gluten-related disorders. Affected products Cappola Genoa Salami 175 g UPC: 0 63100 15111 9 Best Before 23JA03, 23JA04, and 23JA09 Issue The affected product is b-
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Blog Comments
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John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation
Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.
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Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:
@Lauraferleo Simple Mills may have issues and is included in this article:
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- trents commented on Scott Adams's article in Kids and Celiac Disease1
What Parents Need to Know About Raising a Child with Celiac Disease (+Video)
What I liked: 1. Narrator had a good, clear speaking voice and smiled pleasantly. 2. Good practical information that was logically organized and succinct. What I didn't like: 1. Narrator was obviously reading from a teleprompter script, including topic headers, which seemed very wooden and unnatural. Almost like listening to a Joe Biden...- birthday
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- Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages9
Top Brands of Gluten-Free Oat Cereal
In general if you see "gluten-free" on a label in the USA, Canada, Europe, Australia, etc., it does mean that the food is safe for those with celiac disease, and it does NOT mean that there is 19ppm gluten in it, as some people might lead you to believe. Whenever a company detects gluten in the 5-19ppm (most tests can't accurately go below this level... -
- Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages7
Is Coffee Gluten-Free?
Actually if shared equipment with a top allergen, and wheat is one of them, as a best practice it should be disclosed on the ingredient label as "made in a facility that includes wheat" or "made on shared equipment with wheat." Most large companies now disclose any possible risk with the top 8 allergens, but not all companies do this.- celiac disease
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