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Celiac Disease & Gluten-Free Diet Blogs

Diagnosed with Celiac Disease and Still Sick

Diagnosed with Celiac Disease and Still Sick

Hello Everyone! I was diagnosed with celiac disease about six months ago or so. I was doing well. I felt a lot better right away. Then in August I messed up a number of times by eating out. Now I have been very strict. Although still a learning curve with hidden gluten/cross contamination. My number went from 37 to 10. My thing is I have been getting very nauseous for about a month now. My GI doc thinks it is because I still have gluten in my system (the number being 10 still).
Kathleen Smith

Kathleen Smith

35
Wendy Cohan, RN's Gluten-Free and Dairy-Free Cooking Classes

The Chronic Prostatitis and Celiac Disease Connection

I'm writing a book about the bladder, and one of the points I came across in my research, perhaps not too surprisingly, is a link between gluten intolerance and/or celiac disease and chronic prostatitis in men. I've also run across a comment posted regarding this link on the Open Original Shared Link on this site, but I really want to learn more about this link to document it for the book. So, what I'm wondering, and asking, is if anyone would be willing to share their story with me? My guess
Wendy Cohan, RN

Wendy Cohan, RN

36
Suzy-Q's Blog

Have To Eat Gluten For Testing

I have been gluten free for 4 months and my doctor wants me to eat gluten for 3 weeks in order to test for celiac. How much gluten a day do I need to eat? I'm not sure I'm gonna be able to handle this for 3 weeks!!
Suzy-Q

Suzy-Q

3
cyoshimit's Blog

Good Morning!

It's is a better morning. Woke up shaky and weak ate some food and took some remedies and wow wow I'm feeling better. I think my thoughts are clearer. Not 100% yet but getting further away from 10%. That's a good thing. I'm gonna keep updating my blog today on how I feel so that I can keep track of it.
cyoshimit

cyoshimit

0
cyoshimit's Blog

It Feels Like Forever.

I am learning to accept that I am a sensitive person. And that I need to take care of my body. I am a painter and I recently found out that the medium that I work with that I thought would be harmless to me is actually harming me. I had a really rough morning today. Apparently my adreanal glands are working overtime on getting the lead that my body absorbed from when I paint. I was angry because I poisoned myself with the medium. When I first started painting I didn't think anything of the lead
cyoshimit

cyoshimit

0
mailmanrol's Blog

I Think I'm In Mourning!

Having just been confirmed that I have Celiac Disease a few days ago, the doctor had me make an appointment with a nutritionist which will be this coming Thursday. The nutritionist is having me make a list of foods that I eat and like. As I was making this list it occurred to me that many.....MANY of these foods I will no longer be able to eat and that makes me very sad. I think of going to IGGY's and having clam cakes and chowder....that luscious New England chowder...thick and creamy white,
mailmanrol

mailmanrol

2
Eeyore's Blog

Writing

For those of you who don't know, I'm a fantasy fiction author. I love to write. I can't communicate all that well by talking, but writing suits me perfectly. Poems, songs, books, even papers -you name it. I love to write. Well, with a combination of starting a story around Feb/March, writing (this is all by hand) 181 pages in April, and writing 150 pages last month and several misc. pages in between, I've finished my first book. Funny. It's also the last book in the series. It's not getting pub
eeyore

eeyore

1
siren's Blog

I'm Just Not Well..

I went for the blood test some years ago, after finding celiac.com on the food net work.. I was amazed I had all but one symptom. So I stopped eating wheat glutens for 2 months to see if that would change anything in how I felt. It surly did. I then went to the doctors to let them know my findings since they could not for the life of them figure out what was wrong with me.. 8 doctors and 100,000.00 in tests previous to that. I finally get the blood test and they tell me it is inconclusive. I
siren

siren

11
Living with a Gluten-Free Husband

Marching on Gluten-Free!

Good Morning Everyone, It has been sometime since I have checked in and for that I apologize. The gluten-free diet is going well but a little boring. I did discover a new product (well new to me). I was shopping at my local Redners a few weeks back. I was picking up the cookies my hubby likes. upon my arrival I noticed 2 men standing right in front of my (LOL) gluten free section of the aisle. I say mine because I never see anyone else standing there. I became very curious as to why they
Nancy Kotlowski

Nancy Kotlowski

0
rochesterlynn's Blog

I Am Trying To Help My Daughter

This is my first time trying to use this site and I fear I am making a mess of it !!! I need help in knowing how to help my daughter who is 38 years old. For the past 23 years she has suffered with an illness that has been undiagnosable. Her initial symptoms were in her words, "my hands hurt and feel different; my elbows hurt, but the pain is not in my joints, it is all around my joints; I'm very tired; I have a lot of drainage and it is making my throat sore". From that point, her symptom
rochesterlynn

rochesterlynn

2
rochesterlynn's Blog

I Am Trying To Help My Daughter

This is my first time trying to use this site and I fear I am making a mess of it !!! I need help in knowing how to help my daughter who is 38 years old. For the past 23 years she has suffered with an illness that has been undiagnosable. Her initial symptoms were in her words, "my hands hurt and feel different; my elbows hurt, but the pain is not in my joints, it is all around my joints; I'm very tired; I have a lot of drainage and it is making my throat sore". From that point, her symptom
rochesterlynn

rochesterlynn

0
allybaby's Blog

Excruciating Stomach Pain

its 5:55 am here in New York and I have been awake since 3 am with EXCRUCIATING stomach pain. I have been gluten free for two weeks now and feeling SO much better until right now. HELP!! what is this pain? It is right under my ribs in the center and shooting to the back. Nothing makes it feel better. I have tried going to the bathroom, walking around, drinking water, and every position lying down. I feel very nauseous and im so uncomfortable. What should i do????
allybaby

allybaby

4
Gluten Free Breeze (formerly Brendygirl) Blog

Ice Cream Cones. Serious Summer Goodness!

Dating Island Boy encouraged a couple trips to L.A., so I multi-tasked...got to taste goodies from The Sensitive Baker (everything was frozen, which was disappointing), but I tried several things, and the only things I'd repeat are the cupcakes and the cookies. I also tried Mani's Bakery and Cafe, which is supposed to carry gluten-free selections in the bakery, but all they had were peanut butter cookies, which were fair. Crumbly as all get-out. So, I walked down the road, chatting on my cell
brendygirl

brendygirl

0
Eeyore's Blog

Eating Out

Yesterday night was the first time I'd ever eaten out since being diagnosed. (I'm not counting flavored ices at stands and stuff like that.) We (my dad and I) had a GREAT time at the Outback. The food was absolutely delicious, cooked to perfection (their wasabi -soy free - was GREAT!), but that's not what we paid for. The customer service was super, and a waiter that helped us figure out exactly what I could and couldn't have on the menu. He even went into the kitchen to make sure that they di
eeyore

eeyore

2
GloriaZ's Blog

The Complex World Of Luxury Quality Safe Skincare!

As someone who is afflicted with Celiac Disease I
GloriaZ

GloriaZ

0
Wolicki's Blog

Edema During Recovery

I was recently FINALLY diagnosed with Celiacs. I was suffering from malnutrution, and was very, very thin. Not too long after I started the gluten-free diet, I got "refeeding edema" and gained 25 pounds overnight. It's been 6 weeks and it hasn't resolved itself. My doctors are stumped and say "give it time." Did anyone else have this experience? If so , how long did it last? Is there any effective treatment? I am miserable and feel like an overstuffed sausage! ThankS
Wolicki

Wolicki

0
Living with a Gluten-Free Husband

A Gluten-Free Trip to Hershey Park

Last weekend all 5 of us went to Hershey Park. What an experience to have with a celiac! We did search the official website for Hershey Park and was happy to see they offered a page listing all the ingredients of the food at the park. There was one place that had gluten free hamburger buns. Over all we did have a good time but worrying about what a person can eat and be at an amusement park is difficult. Mostly because the one of the best parts to being there is munching on the junk food. If
Nancy Kotlowski

Nancy Kotlowski

8
Tabasco's Blog

One More Day Till Friday...

Irritable at work today. Very tired in the afternoon. Not sleeping well. Some insomnia. I'm trying to go to sleep earlier but I have a hard time falling asleep then I wake up at least twice a night. This insomnia is new onset. Rash not too bad today. No BM yet. Sorry, I know it's gross but I want to track how I feel on a regular basis.   Fruit and hard boiled eggs for breakfast. Pad Thai for lunch.   4 cups of coffee...I have to have my coffee.
Tabasco

Tabasco

3
Tabasco's Blog

Rash Rash Go Away...

Tired of this rash on my back and chest. I'm not treating it until after I get tested. Very itchy!!!!! My head has been itchy as well. Belly is...not too bad. Some constipation. I also have a rash on my eyelids. And it seems that a headache is never far away.   Gluten free is going to be quite an adjustment but if I will feel better then it'll be worth it.
Tabasco

Tabasco

0
kalie's Blog

Information

I have celiac disease and I am looking for a nonalcohol gluten free beer and wine. I also am looking for a recipe for a home made pasta that can be made in a pasta machine.   I did find out that Micky's sub and pizza place in Brainerd MN has gluten free pizza and it is very good. I as told that the Black Bear bar and grill has gluten free breads.
kalie

kalie

2
bashalove's Blog

Celiac Fever And Rash Any Ideas?

My daughter is 15 months and has had a fever running between 99 - 101 DEGREES for the past 2 months. She has also had a rash that is recurrent appearing on her ankle, back, belly and armpits. Our family has a history of celiac disease. We are already treating her as if she has it. Both my son and I are also celiac positive. What we are wondering is if she is having a reaction to the dog's food or my husbands food that is in the house that is not gluten free. So far we've been to an ENT (fo
bashalove

bashalove

1
Carri Ninja's Blog

My Son

My son is 7 now.   He occasionally {about 3 - 5 times a year} has random pain, fever and unexplained clumsiness.   I see this and think of all the times I went through that as a child.   I have had the Dr give him the blood test for Celiac and it came back negative. I know that blood test isn't always accurate.   I am on a very strict gluten free diet. He eats gluten free - by choice - for the most part.   It still worries me because of all the genetic problems that run in my family.
Carri Ninja

Carri Ninja

0
Carri Ninja's Blog

My Story

"I'm sick but I'm pretty." I was always told not to complain because I had it good compared to my autistic cousin and aunt with Cerebral palsy. Agreeing with this I suffered year after year silently as I could imprisoned in my own body knowing something was wrong.   So here it is about the real - sick - me. If you take the time to read this I thank you. There are several stories on this board that have been truly inspiring. I hope I can do the same for at least one more person!   I ha
Carri Ninja

Carri Ninja

0

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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