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Celiac Disease & Gluten-Free Diet Blogs

Gluten-Free Petition to Disclose Rye and Barley on Food Ingredient Labels

I sent a Open Original Shared Link and their derivatives in the list of Common Allergens that require disclosure in labeling. The following letter was sent by me today in response to one received from Barbara Schneeman at the FDA: Barbara O. Schneeman, Director Office of Nutrition, Labeling and Dietary Supplements Center for Food Safety and Applied Nutrition Harvey W. Wiley Building HS820 5100 Paint Branch Parkway College Park, MD 20740-3835 Ref: Docket No. FDA-2008-P-0509-0001/

Hallie Davis

Hallie Davis

Joint Pain No Better - 2 Wks Later

Hi   Well went to dr. today for joint pain. had a ton of blood work done including for lymes disease, parvo virus, RA and others, still in pain, been 2wks. Will update with results. Celicac remains under control. But who knows. after work sunday on feet for 12 hrs., terrible [ain, esp in ankles and feet/ walked to parkin lot looking like an elderly patient. hope it gets better soon. started on naproxen.

Theresa Marie

Theresa Marie

The Beginning, Or How Long Have I Had This?

On April 18th, 2009, I attended a friend's wedding across the country. Halfway through the flight home on the 19th (a Sunday), I was miserable. I had stomach pains, and they seemed to be mostly in the lower right section of my abdomen. I thought: Oh god, it's my appendix. Oh god, what if it ruptures? Is the change in air pressure when we land going to make things worse? I was in pain, upset, and slowly freaking out more and more.   We landed about 2 or so hours later, and my hubby took m

celiacinseattle

celiacinseattle

G1, Guys, And Glutenfreelosity

Bigg Papi is what the charm on his thick, gold chain necklace reads. Take away one g and you have his license plates. What can I say? He makes me laugh. So, I took him to my friend's house to a barbeque and it was funny. I begged him to tell everyone about how, being raised as a foster kid in NY, his siblings think he has big $ out here and call him Hollywood, they always call him when there are funeral expenses in the family. He says, "I'm tired of paying for caskets. Next time we're ju

brendygirl

brendygirl

Celiac And Joint/muscle Pain?

Hi!   Im new to this and new to celiac since Jan of this year, now my GI symptoms are under good control, following the gluten free diet strictly, now Ive got what seems to be like a fibromylagia. Terrible joint and muscle pain, started about 2wks ago, and has been brutal, no sleep, living on motrin-barely, wrists, ankles, both sides of body and all muscle groups.   anyone have any ideas if there's a definate connection between celiac and possibly RA or fibromylagia?

Theresa Marie

Theresa Marie

Help! Joint/muscle Pain

Hi,   I started reading everyone's blogs in January when I was diagnosed with celiac. Since then I have been completely gluten free and have turned into a label reading lunatic. Hearing so many people going thru the same kinds of issues, pains, and symptoms made me feel more normal.   Within the last 2 weeks, I started having severe joint and muscular pain. So bad in the morning was walking like frankenstein, ankles, wrists, hands, hips, everything, all large muscles so bad. Kinda loose

Theresa Marie

Theresa Marie

Lever 2000

My boyfriend talked to a nice person on the phone at lever who informed him that lever will state on there packages if there are any of the top 8 allergens in there products I personally use the lever pure rain numerous times a day with no issuses.But they do suggest reading the label each time you buy it because there formulas do change.They also said they would put something on there website to help people who have allergens make it easier to pick a soap.Hope they werent just saying that....

aheartsj

aheartsj

Clearasil....

I have been using clearasil for two years and didnt want to have to give it up.I love there products I emailed them the other day and got a great list.Hope it helps.   RECKITT BENCKISER.  P.O. Box 224 Parsippany, New Jersey  07054-0224  (973) 404-2600  Fax (973) 404-5699 REV. July 06 CLEARASIL GLUTEN FREE PRODUCTS (Contain no Wheat, Barley, Rye, and Oats) The following products contain no Wheat, Barley, Rye or Oats: CLEARASIL GLUTEN FREE LIST  Clearasil

aheartsj

aheartsj

Petition to Add Rye & Barley to Food and Drug Administration's (FDA) List of Common Allergens

You may have recently seen my blog asking for comments on my FDA petition to have FDA add rye and barley to the list of most common allergens that require disclosure on food labeling. The fact that FDA added wheat to that list without adding rye and barley is total idiocy, for as we know we are all just as allergic to the gluten of rye and barley as we are to wheat, and the omission of rye and barley causes great difficulty when shopping for food. It has recently come to my attention that my pe

Hallie Davis

Hallie Davis

Bloating And Weight Gain Questions

I have a few questions concering bloating and weight gain.   I was dignosed wit celiac disease at the end of April and have been gluten free since the beginning of February.   Right when I think things are getting better and my stomach starts to get back to a some-what normal size I get glutened by traces...I usually am only sick for 2 days, sometimes 3 depending on the amount I accidentally consumed.. however my puffy pregnant looking stomach seems to stay around for a few weeks. Not only

Swpocket

Swpocket

Dealing With This Alone In A Room Full Of People . . .

I never thought that living with someone could make you feel so alone. I have been diagnosed with Celiac about 3 months ago and even though I have been

Jesse'sGirl

Jesse'sGirl

Newbie~help Could This Be Celiac Disease?

My story~ have always suffered from dark circles sometimes they would get darker ,which could never be explained.These I figured I'd be doomed with the rest of my life..At age 34 came down with Shingles.Have had trouble with yeast infection,vaginal and skin.   In Jan/09 my health seemed to deteriorate at a rapid rate ,one thing after another searching for answers I began to search the net.I came across this site after almost 4 months of searching,I grateful as I am ,I'm also sad to see so man

persistent~Tami

persistent~Tami

Celiac Disease in Africa?

Let me introduce myself. My name is Lionel Mugema. I was born in a small hospital in Kigali, Rwanda in the month of June in 1981. My mother tells me mine was a C-section birth and she wanted to name me Caesar. I was diagnosed with celiac disease in Brussels, Belgium when I was about 6 years. My family ensured that all my meals were gluten-free. However, now that I am all grown up it has changed. There exists no gluten-free food here in East Africa. The little that comes from South Africa is un

Lionel Mugema

Lionel Mugema

A Mother’s Reflections of Raising a Child with Celiac Disease

Yes, it would have been more appropriate to celebrate Mother’s Day with this post, but ironically (or is it coincidentally) the job of being a mom has really prevented me from preparing this post before now. On this Mother’s Day, I found myself thinking back to all those times during Emma’s illness, subsequent celiac diagnosis and eventual permanent lifestyle change where the Mom really came out in me, both quietly and ferociously. Here’s my list starting with before diagnosis and goes chronol

Amy Leger

Amy Leger

Gluten-Free Fast Food

You deserve a break today! You just might not be getting it at a fast food restaurant. Most fast food places are very slow in getting the gluten-free picture, while some are slowly coming around. Following is a list of some fast food joints and their allergen info. Feel free to contact the individual restaurants for more info, and to bug them about providing gluten free items. Arby’s: Open Original Shared Link Arby’s is great about packaging the roast beef

Trish Deitemyer

Trish Deitemyer

Planet Celiac: Pasadena Celiac Convention May 2nd

My lofty expectations for the Celiac Conference were met! It was AWESOME! People just like ME! Vendors cooking and catering to ME, and chucking copious samples my way. (I did have to spit some in the trash, but there were some very tasty morsels as well.) Doctors delivering diatribes about dx and diarrhea and DQ8 and disease and deflated villi and developments in process for protection against gluten. I enjoyed the clarification and question-and-answer sessions with those docs. A formal,

brendygirl

brendygirl

Celiac.com Thanks Elisabeth Hasselbeck for Raising Celiac Disease Awareness

Very few people have the star power that Elisabeth Hasselbeck of ABC's The View commands, and among those who do have it even fewer put this power to positive use. Over the past two days Elisabeth has openly discussed celiac disease and the gluten-free diet extensively on Open Original Shared Link, and on Open Original Shared Link. Elisabeth's appearances are timed to promote her new book: The G-Free Diet: A Gluten-Free Survival Guide, which is now a national best seller. I have no doub

Scott Adams

Scott Adams

Are Mcdonalds Fries Gluten Free

I don't really know why there is a debation on wheher mcdonalds fries are gluten free there website clearly lists the ingredients and under the french fries section it specificallly states there is wheat in the beef flavoring they use and at the end of the list it clearly states in bold caps CONTAINS:WHEAT AND MILK.I dont know why people are so between this subject when there website clearly states it has wheat they wouldnt say that if it wasnt true they would just let people buy it.There websit

aheartsj

aheartsj

Listerine

does anyone now if listerine cool mint contains gluten? have had a couple of attacks lately, just wondering if thats what is causing it. thanks

april anne

april anne

Little Rant. Lots Of Pain.

I have been lurking here and learnt so much with still much to go, what a wonderful site   My story truly began forever ago with what my mother called, "Teddybelly". I waded through my teens with anorexia, ADD sort of symptoms and later, wild weight changes over the years. I am 38 now and in retrospect my twenties seemed quite calm on the health front.   It all really began at 33 when my belly was swelling and being commented on in the street! Usually asking if I was pregnant.   At 34 I h

Guest

Guest

Tattoo Reactions?

Due to the major weight loss that i am going through( i have good from a size 8 to a size 4 in 2 months), i am thinking of getting the Tattoo's that i have always wanted, (stars on my hips). But i wanted to see if anyone has had celiac reactions from getting tattoos? is there anything in the Ink that i would need to watch out for? i do not suffer from DH (yet) but if anyone have information about celiac's getting tattoos i would love to hear it!   Thanks!!

Jesse'sGirl

Jesse'sGirl

Any Good Bread Recipes Out There?

I was wondering if anyone knew of a good bread recipe? I haven't had any luck finding a nice one yet...   the flours I have right now are: White rice Arrow root Corn flour But I can buy some more if I need to.   I also cant have eggs..which I made a replacement but It doesn't work for egg whites..

Swpocket

Swpocket

Celiac Wake-up Call...and Recent Gluten-free Foods From My Brave Boca

My celiac group leader's brother died of celiac complications a couple weeks ago. It's sad and it brings to mind how seriously we have to take our treatment, which is our gluten free diet. Today I read the thread here about Joe C, the rapper who died of celiac. It makes me so somber. I wish celiac was diagnosed quicker and more accurately, before it reaps so much damage. I agree with other post-ers, that it would be great if celiac had a relatable famous spokesperson. At least Elisa

brendygirl

brendygirl

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  • Blog Comments

    • dixonpete

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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