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Celiac Disease & Gluten-Free Diet Blogs

Celiac Wake-up Call...and Recent Gluten-free Foods From My Brave Boca

My celiac group leader's brother died of celiac complications a couple weeks ago. It's sad and it brings to mind how seriously we have to take our treatment, which is our gluten free diet. Today I read the thread here about Joe C, the rapper who died of celiac. It makes me so somber. I wish celiac was diagnosed quicker and more accurately, before it reaps so much damage. I agree with other post-ers, that it would be great if celiac had a relatable famous spokesperson. At least Elisa

brendygirl

brendygirl

Will It Still Come Up Positive?

I had my first set of test done today, however I haven't eaten gluten for 2 months now. My doctor said it would be okay, considering I am still mildly sick. Would it still come up on the test? They said if it came back negative that I would have to eat gluten and then get the biopsy..but I know if I eat gluten I will be sick for awhile afterwards, which usually ends up equaling me missing work and school. I guess I'm just stressing out about it and was hoping for some clarity. What do you guys t

Swpocket

Swpocket

Internal Or External Resorption

I have recently found out that I have what the dentist called external resorption. Basically, the tooth is reabsorbing itself. Usually this happens following trauma to a tooth, like being hit by a ball or a car accident. The other cases are a mystery to doctors as to why the tooth is turning on itself. I was wondering if anyone else has run into this - is this another celiac curse. My only treatment options are pulling the tooth or surgery followed by either a filling or a crown. The dent

gardener1

gardener1

Not Feeling Any Better

Help!   i have been gluten free for over a month and i am not feeling better. some symptoms have stopped but other are still here and it driving me nuts! Night time is the worst! the gas keeps me awake at night and makes me sweat and not be able to sleep. my body hurts from right under my rib cage to my uterus to the point where i where i have to un button my pants when i set down even though all my pants are 2 sizes to big from the 20 lbs i lost from the Celiac Disease. i have checked everyth

Jesse'sGirl

Jesse'sGirl

I Crave Milk....any Suggestions?

I have always been lactose intolerant I guess but I absolutely love milk. I've tried Soy milk some make me sick some I'm not sure. I'm still so very new to all of this. Does anyone have any suggestions on a brand of Soy milk, rice milk etc. that works for them? This has been the hardest part of the transition for me. Should I just give up on the milk?

Jkrupp

Jkrupp

How Long B4 I Will Start To Feel Better?

I was just wondering.....How long b4 I have no more problems? when can I wake up and feel ok, not fatigue, no in pain bones or belly,no fogginess or irritabilty? I feel somedays as though I'm losing my mind. I feel tired all the time and I just want to feel ok. I'm glad I finally have an answer other then its' all in your head. That makes me feel better . I've heard that some people start to feel better in anywhere from 3-6mths. Is this true? If I'm strictly eating gluten/wheat free foods from

Jkrupp

Jkrupp

Looking For Answers

Hello everyone, I am new to this site and was hoping to get some feedback regarding the relationship between gluten intolerance and possible soy intolerance. I just recently started a gluten-free diet (about 3 days ago) as a result of the constant GI symptoms I have been experiencing for the past month. The last few days have been a positive indication that the diet is working, however, I had a very bad reaction today and I'm trying to pinpoint what it could be from.   I have been suffering f

Louisa

Louisa

Gluten-free Corn Chex in Stores Now

After I wrote that last blog entry, I went to my local Giant Food store and there on the shelf was a box of Corn Chex marked "Gluten-free"! So distribution is ahead of schedule!

Hallie Davis

Hallie Davis

Getting Over The Past

I just have such a hard time reckoning with my experience...I ruminate over the past and the lost years and lost opportunities because of it. I think of the wasted time in school because I was too sick to actually learn. I think of the lost youth and try to reframe my experience to be positive but in my heart I just think, what an awful waste of time. I really don't think it was necessary yet there is noone to blame, really. I mean celiac is just coming into the awareness of the general populati

hcg

hcg

Newly Diagnosed

Ah.... I'm 32 yrs. old I have 2 lil boys 10+11 my first son was born blind (now i wonder the cause) I had a positive blood test now waiting for the G.I. consult. I am trying to be very conscientious of every ingredient I get confused. I had soy milk today that i swear almost killed me. I feel like I'm getting worse w/ the gluten free diet. I have a lot of support from my in-laws b/c one has celiac. My mom is in denial I keep hearing it's the new "Designer Disease" I fear that my siblings and my

Jkrupp

Jkrupp

"silly Ass" Disease

Last night Travel Dude came over for our indulgence night of American Idol, chili dogs (we pour Wendy's chili over Hebrew National lowfat hot dogs he bakes in the oven and I use Kinnickick gluten-free bun), and romancin. He also brought over Ruffles and (gluten-free) brownies from the pickup window at Outback Steakhouse, but I was too stuffed to eat mine! My student teacher and I are getting more used to one another. I like her. I just wish she were a harder worker. She's 28, a mom, and

brendygirl

brendygirl

General Mills, I love you! More Gluten-Free Cereals to Come!

Probably all of you know that General Mills has reformulated Rice Chex to make it gluten-free. The new and wonderful news was that this apparently turned out profitable enough that they are now in the process of reformulating other Chex cereals. Here is the letter from them that I received today: Dear Valued Consumer: Thank you for contacting General Mills regarding Rice Chex cereal. We appreciate the time you have taken to share your positive feedback with us. We will be very happy to pass

Hallie Davis

Hallie Davis

Help?

Okay so... The doctors said I have like a 90% chance of having celiac disease, but I haven't eaten any gluten for awhile to show up on the test, I don't think..and I am super scared of needles so I don't want to get tested for it. I keep on getting really sick, to the point that I cant sleep or do my school work...And I don't even know when I had gluten..other then maybe a few crumbs by accident. Its starting to get on my nerves and my stomach is swollen to the point that I cant stand up straig

Swpocket

Swpocket

Australia: More than 250,000 people suffering from Coeliac Disease

In Australia today there are more than 250,000 people suffering from Coeliac Disease - and not all know it or know how to deal with it. There are also many who experience other difficulties with wheat, gluten and bread improvers including Autism sufferers. Through our research and experiences, we understand that those with the disease, often in the first instance, are overwhelmed with all the changes they need to consider and make. However, we guarantee that as time passes and your knowledg

Paul Smith

Paul Smith

Gluten Free Restaurant Experiences

Travel Dude looked online and found that The Original Pancake House serves gluten-free pancakes! He drove me 30 minutes away to try them. They gave me six (WAY too many), and only AFTERWARD told me I could order a half-order. They were ok. Travel Dude (who's finicky and usually hates gluten-free food) tried them and said he'd eat them himself. It was cool that there didn't have to be much fuss or weirdness when I ordered and I got to eat something fairly tasty. The lingonberries were prett

brendygirl

brendygirl

I'm Baa-aack!

Aloha! I'm back on the blog and back home. I went to Jamaica in Jan. and again in Feb. and just returned from 11 days on Kauai! I also went to the Super Bowl. I've been having tons of fun, as well as tons of stress, and not much gluten! Let's get you up-to-date: I flew to San Antonio over Turkey Day 2008 and the city was kindof a letdown. The RiverWalk seemed to be the only draw and I wasn't too impressed. I was shocked that my best friend (I hate the acronym bff) whom I like to call M

brendygirl

brendygirl

I'm A New Celiac

Hi, I'm a new member to this group. I've been avoiding gluten for almost one year and a half, except for accidental ingesting. I was technically diagnosed via blood test about about 7 months ago, and there was still gluten in my system obviously. My sister is gluten free even though she has never taken the test and she swears that she is a new woman. She talked me into going gluten free. I have severe fibromyalgia and am overweight. When I went gluten free, I lost a little weight, my skin

prettycat

prettycat

Is there a link between Parkinson's Disease and Gluten Intolerance/Celiac Disease?

I caught a spot on Oprah today with the actor Michael J. Fox discussing his battle with the neurological symptoms of Parkinson's Disease. He's always been an engaging persona, and I enjoyed the segment. As a nurse, I've always had a strong interest in neurological disorders, and have done a lot of reading on the links between Celiac disease and neurological disorders, especially gluten ataxia. At this point, Michael's symptoms are very noticeable and greatly affect the day-to-day activities o

Wendy Cohan, RN

Wendy Cohan, RN

9 - Bleh.

I FINALLY did my morning routine this morning. It's either run the red light or just don't do anything. Ugh. . .I feel awful. I absolutely need to call the manager of the restaurant we went to Monday night. At least for the FIRST time, I had a normal bowel movement. . .**happy dances**. That's such an amazing rare thing. Heh, things to get excited about, who knew. **smirk**   We're stripping our kitchen down this weekend. Hubby will put up a few more shelves in the pantry - we're disc

quietmorning01

quietmorning01

8 - Edjumicating Myself

The books came in the mail yesterday. I bought these: (from (Company Name Removed - They Spammed This Forum and are Banned) - though I was a little frustrated with the delivery time. I should have ordered them from my local book store and kept the money here in town, they would have gotten here the same day despite my paying extra to get them here faster.)   Celiac Disease: A Hidden Epidemic The First Year: Celiac Disease and Living Gluten-Free: An Essential Guide for the Newly Diagnosed C

quietmorning01

quietmorning01

Cold Medicine

I cant breath!!!!   Hi everyone !!!!   I have a sinus cold, in my head all stuffed up.. Is there any cold medicine over the counter I can take that is gluten free, My pharmacist suggested Mucinex DM but i read on internet that it is not certified gluten free, been taking tylenol cold and sinus, but it's killing my stomach,, you have to look up each ingredient separately to find all the little hidden stuff they put in medicine..I really need some help or the next step is to the doct

bugs

bugs

7 - Sigh

We're back from seeing the kids.   Youngest son thinks his mother is a 'whack job' because there's something wrong with her AGAIN. Actually. . .this is the only thing that's BEEN wrong. Get misdiagnosed too many times and it ruins any future reality of what's truly wrong.   Sigh.   And this is a whole heck of a lot easier to deal with that the OTHER THIINGS.   Grrrr.   I have a headache.   I'm going to bed.

quietmorning01

quietmorning01

6 - Busy Week, Busier Weekend

Saturday morning. I have a long day ahead of me. I'm going back down to Chattanooga where my children are to spend some time with them. My daughter and her fiance are staying with my youngest son for the week.   We are all supposed to go over to my daughter-in-law's (youngest son's wife) family for a cook out tonight. Heh. . .it's supposed to be raining today/tonight, so I don't know how that will turn out. I had to kick myself in the brain to remember that I need to prepare something t

quietmorning01

quietmorning01

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  • Blog Comments

    • dixonpete

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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