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Celiac Disease & Gluten-Free Diet Blogs
Not So Clever Deception
My not-so-personal, so-called Life...Well, things the boyfriend was saying hadn't been adding up. He began staying up weird hours. He had no trouble spontaneously getting off work to go on trips with me. His responses to "how was your day" didn't make sense. So, I decided to call his work and found out he was no longer employed there. And, of course, he hadn't told me. So, my mysterious scorpio traits kicked in, and I kept this secret. I sat beside him as he'd call his "sarge" and call of
Eating Out Gluten-Free and Without Fear
Now...I've been intending to sit down every evening for the past two weeks and post a new entry, but the time slips away...warm evenings have caused me to linger a bit too long in my backyard, but it's been worth it. In addition to this blog, as I mentioned last month, I've become an author on Celiac.com's website which is really exciting, but finding the time between working full-time, having a social life and exercising, and researching Celiac news, and...well, you get the picture. I nee
Getting Ready To Run
I am 1 1/2 weeks away from my first gluten free marathon. I really don't think food wise it will be any different than the others I have done. I use Cliff Bloks and Power Gels as food during the run...I had found previously I could tolerate Power Bars as well, but I think they have oat flour...if they don't I'll probably start using those for my next round of training. I am gunning for a sub 4 hour time, so we'll see how it goes. My PB is 4:00:21 so if I shave even 30 seconds off my time I'l
Help Finding A Good Gastro In Washington State!
My wife has Celiacs. She was diagnoised 5 years ago. Last year she started to have seaver lower right quadrant pain. she went to the gastro that diagnced her. he did a colonocopy and found that she had a cycset in her colon. it was removed but that did not relive her pain. So he refered her to a doctor at Virginia Mason in Seattle. well that guy did 3 colonocopys 2 indocoopys. a time trnasit study, that camera pill study, a doulble ballon Coloncopy, 3 CT sacans . After all that. all he could say
Motivation
If the spring weather hasn
How do I get the Celiac.com podcast on my mp3 player?
Q: So how do I get this podcast file on to my ipod or other mp3 player? A: There are so many ways to do this. First, if you're using a Windows computer, use the right-click (you can learn a lot about what's going on by highlighting things and right-clicking them) to "download link target" and let it download on to your desktop. If you don't see "download link target" but you do see "save link as," that means that your browser just sees the link to the file and n
So Much To Learn!
Wow, I had no idea that you had to even worry about SHAMPOO!! Something I just basically take for granted, but apparently I will have to make sure that my stepdaughter's shampoo and hair products are gluten-free. I'm honestly beginning to wonder how ppl afford such a restrictive allergy. I mean, we are a family of 7 when all are here. MOST of the time we are a family of 5. If she comes to live with us full time, which it sounds like she will be, we will have 6 here full time. (The 7th childPreparation
So, I am thinking about when YSD is here and what needs to be done before she arrives. I wish I knew for sure if she would be LIVING here full time or here just for a month, because I probably would not go to as much effort to change as much for a short time span... but I also don't want to wait til the last minute to start changing things. I thought I'd make a list of sorts to get me on track and keep me on track. go through pantry and freezers, finding gluten-free foods we already haveNewbie To gluten-free
We recently found out my 14 year old stepdaughter has celiacs disease. My goal is to find gluten-free recipes I can cook that will feed us all without breaking the bank to do it... or finding gluten-free foods similar to what we normally eat and making it normal for us and making her gluten-free portion separate. For example, spaghetti. I can make two pots, one regular and one with gluten-free pasta. To me that makes more sense and should be less expensive, hopefully. Anyway, I am hopiSouthern California Stops for Celiacs
Awareness of Celiac disease is spreading, by Joe, and restaurants are taking full advantage of the added patronage! Some stops that are required for the weary traveller, or simply the local resident, are listed below: In N Out- Now, I know they have these guys all up and down the coast, but the one in Laguna Niguel is very aware of Celiacs' needs (I go there all the time, and they are more than willing to accomodate)! Skosh Monahans. The owner's son has autism, and because of his condition, they
Gluten-free Food Trials Cont'd
I've been baking and heating and knoshing and eating: 365 Pancake and Waffle Mix- Good, not spectacular Whole Foods Market Frozen baguettes- Amazing. A new favorite. 365 Chocolate Chip Cookie Mix- yuck Kinnickinnick White Cake Mix- yuckity yuck-o; had to toss it- "egg-y"flavor-eww! Trader Joe's Brownie mix (in brown bag)- good, but I reacted (and no, I didn't have milk with them) Kinnickinnick Chocolate Donuts (frozen)- ok, but I reacted (and no, I didn't have milk or other ?able itemsSneaky gluten free goodness!
So I was reading the Joy of Cooking today. Yeah, I'm a weird food freak like that. Anyway, There is a gluten free section that I had no idea about! It's in the 1997 edition. You can look up gluten free in the index. It's got a pie crust, pizza crust, and bread. Pretty cool stuff. I love the Joy of cooking so you can imagine how excited I was to find gluten-free recipes.
Gluten Free - I Mean I Guess....
Truthfully, I am just testing this blog out right at the moment. I am a blog addict. I have another blog (two actually) on two other sites. But I am thinking writing about gluten all the time will begin to bore me as well as others. It's okay sometimes. But I can't write about gluten as much as I write in my other blogs so this blog may only have 3 or 4 entries by the end of this. It's not like my photography where it changes all the time or video editing, or life. I mean gluten is gluten
Celiac Support
I became a Celiac "Blogger" at the beginning of this year. For months I had longed to take the time to put my words to paper or keyboard and write snippets about my life's journey as a Celiac and in doing so, offer up all kinds of fun food, product, and restaurant tips to others who are searching or just curious. Being a Celiac has been such a tremendous journey of transformation, observation and consequently learning so much about myself. I look my diagnosis now as a blessing - a gift, reallyDelicius Draeger's for Gluten-Free Products
This past weekend, I was taken to brunch by some family members. Aware of my gluten restrictions, they decided to take me to Draeger's in San Mateo, a wonderful market that not only sells produce, but also has numerous amounts of gluten-free items for purchase! A gigantic banner on the front of their store even proclaims that the store is a supporter of those who are gluten-free. On the second level of the store, above the shoppers and tucked away in a little corner, is a magnificent restaurantI Think I Know Now....
Okay, so I think I now have an understanding of my results.... I am HLA DQ 1,1 (5,6), which means I am a double DQ1 with subtypes 5 & 6. According to Enterolabs (who I did not test through as I got genotype testing done for free here in Canada) I am positive for genes that predispose to gluten sensitivity and having the double copy DQ1 increases the sensitivity. Had I not had the option for genotype testing here, I probably would have gone the Enterolab route...I know that they can doAwaiting Biopsy Results
So I finally had the biopsy about 2 days ago, so I am now gluten free YA! I am so excited about that, Finally. The biopsy went pretty good, it takes like 5 mins to do, and you go home like an hour later, so that was good. The doctor said it looked "Normal" but that they usually do look normal until a pathologist looks at them under a microscope, but I was free of ulcers anyway. He said the results can take up to 3 weeks, so I won't really know anything until then, but he said start the diet anyw
Answers Lead To More Questions
So now I have more questions (you would think I could just let it go at this point!!). I have been digging around for more info on what DQ5 and DQ6 actually mean. It looks like they are a subtype of DQ1, so am I actually DQ1 (subtype 5,6) which would make me a double DQ1? This is so confusing...if anyone knows the answer please post it here for me and if I find the answer I 'll post it so those looking in the future can maybe stumble across it. Thanks everyone!!!Start Feeling Great, Then I Get Stupid
I had a not so nice little scare tonight. I was really hungry so I grabbed a couple of crackers. WHOA! I started getting a knot in between my nose and throat, my right ear felt like it was going to explode from pressure, I had immediate flood of sinus drainage and rapid heart rate. Most the symptoms are lessening except the drainage and I still have a bit of a knot in between the nose and throat area. Ok, do I really have to go thru this again to realize wheat is as serious as peanuts to my
Answers At Last!
I got a call from the GI the other day indicating that I had not tested positive for either gene that would predispose me to Celiac disease...I requested a copy of the results be mailed to me and I am so glad that I did...and they arrived so quickly. Turns out I don't have the HLA DQB1 08 or 02 which are the 2 main celiac genes. However, what the GI didn't tell me is what I did have which is HLA DQB1 05 and 06, which I have discovered are two of the genes implicated in gluten intolerance...The Fun of Gluten-free Breastfeeding
For nine months I ate high protein, lots of fruit and veggies and saltine crackers. With my beautiful baby girl born and my second, and last, nauseousness filled pregnancy over, I was on cloud nine! My plan was to eat healthy so my baby girl would be as happy and healthy as my son was while I was breastfeeding. After about three weeks we went out for lunch and I ordered I large plate of hummus, grilled veggies, crackers and French bread. The next day my baby girl started throwing up. I cal
A Little History - My Celiac Disease Diagnosis
I've written in journals, on pieces of scratch paper, on torn-out magazine pages while sitting in airports, just about anywhere I can put pen to paper when the moment strikes and inspires me to move the ink across the page...I suppose I have much to say...not that anyone has to listen - writing and expression are like breathing for me - essentials. I was diagnosed with Celiac Disease on April 15, 2000 - the Millennium year proved to be quite significant for my life, minus any YK2 computer crash-
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Blog Comments
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John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation
Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.
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Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:
@Lauraferleo Simple Mills may have issues and is included in this article:
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Recent Activity
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- Helen Vajk commented on Scott Adams's article in Kids and Celiac Disease2
What Parents Need to Know About Raising a Child with Celiac Disease (+Video)
Reared a gluten-free kid who is now doing great in his 40s. Some stress in earlier childhood, but by mid-high school had it all figured out. I heard a comment back then that gave me hope. "By the time a celiac kid reaches college age, he or she has developed a hundred ways to say 'No, thank you' and make it stick." The celiac kids end up knowing that...- 1
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