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Celiac Disease & Gluten-Free Diet Blogs

Hyperceliac Blog

Seeking Advice as a New Mom with Celiac-Hyperthyroidism

Hi! Though I am new as a member of this forum, I just want to say how much it has helped me, with all the articles and forums, to be able to manage my conditions. It has been an absolute lifesaver! So, a month ago, I was blessed with the unexpected surprise of a baby. (The clinic I had gone to had claimed I wasn't pregnant, and a lot of the pregnancy symptoms really mimicked many of the effects I have when my body is triggered by something I should not have eat, plus my body at the time had
Hyperceliac

Hyperceliac

3
Kathy P's Blogs

Celiac in seniors

I am new to this and just learning. My dad has been diagnosed w celiac disease at 76.  He was completely healthy, on zero medications, eating healthy meals cooked by my mom, and taking vitamins for years!  When he was first diagnosed (after weight loss and weakness completely disabled him), ever Dr he saw said No, you can’t have celiac. You’re too old. But slowly we have learned that celiac in older people is more and more common. This is an auto immune disorder, yes?  Are there any studies rega
KathyPodesto

KathyPodesto

2
Zinc, Magnesium, and Selenium

Zinc, Magnesium and Selenium in IBS

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7411643/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4231515/#B160 https://ods.od.nih.gov/factsheets/Zinc-HealthProfessional/ Also zinc plays a role in wound repair.  This is likely relevant for healing in the intestine.  https://www.medicalnewstoday.com/articles/263176#Zinc-and-COVID-19 There is also other information online about balancing zinc and magnesium, as well as copper and selenium. For more information on the topic
Blue-Sky

Blue-Sky

6
A Blog by Yvonne (Vonnie) Mostat, RN

Vonnie Mostat

Whatever you do, DO NOT fail to mention that you are a Celiac if you have to go into your local hospital, even if it is not an admission for celiac disease:- It is dangerous not to mention to your nurse, or any nurse treating you, that you are a brittle celiac.  I have had so many "accidental issues" - outbreaks of dermatitis herpetiformis and celiac disease issues. From the nurse that told me she would make me a "Nice cup of tea with some cheese crackers" when I could not get back to sleep
Yvonne (Vonnie) Mostat, RN

Yvonne (Vonnie) Mostat, RN

4
JCH13's Blog

Head ache after eating

Hi! My 19 year old daughter was diagnosed with Celiac Disease this past May.  She is completely gluten free and was feeling good until a cross contamination in November.  For the past three weeks she has been having headaches and they get worse after she eats.  She is so on top of her eating and we know it’s not caused by gluten.  Doctor said to take magnesium and vitamin B12 supplements but nothing is helping.  Has anyone had this issue or have suggestions? It breaks my heart she feels so yucky
JCH13

JCH13

6
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Amended – Flowers Foods Issues Voluntary Recall of Two Canyon Bakehouse Products Due to Possible Presence of Gluten

Flowers Foods, Inc. (NYSE: FLO) has amended its December 3, 2020 voluntary recall press release on two Canyon Bakehouse products to reflect additional geographic distribution for the Canyon Bakehouse Everything Bagels. The expanded distribution for the Canyon Bakehouse Everything Bagels includes retail customers in Connecticut, Massachusetts, New York, and Rhode Island. On December 3, 2020, the company recalled certain Canyon Bakehouse Mountain White Bread and Canyon Bakehouse Everythi
Scott Adams

Scott Adams

3
Posterboy's Blog

Genetics, Nutrition, and Stress the Threeway Model of How Gluten Triggers an Immune Reaction in Severely Malnourished IE Vitamin Deficient Individuals

Genetics Nutrition and Stress the Threeway Model of How Gluten Triggers an Immune Reaction in Severely Malnourished IE Vitamin Deficient Individuals consuming a High Calorie Diet This blog post is WTL again....I tried breaking it into to two Posterboy Blog posts but decided to go ahead.... And post it instead as one due to other things IRL that are taking up most of my time these days..... So thanks in advance to every one who actually completes it! I truly believe it will he
Posterboy

Posterboy

2
Posterboy's Blog

Is there a Type I and Type II Celiac Disease IF so what is your Type: What the Diabetic Model can tell us about Celiac Disease Subtypes?

Is there a Type I and Type II Celiac Disease IF so what is your Type: What the Diabetic Model can tell us about Celiac Disease Subtypes? ****these opinions are my own and are not an endorsement by Celiac.com….these are only my conclusions after years of research.  I am sharing to generate thought, feedback, opinions, progress on the topic and change if they make sense to you. I would say there are two types of Celiac disease based on all the available research I have read. Th
Posterboy

Posterboy

18
Geoff

Rice? !!!

After the onset of gut problems over 5 years ago I was diagnosed with Celiac.  After some experimentation over months (years) I have shown that wheat, rye, barley hurt me. But that Oats, even gluten-free oats hurt me. And now I have realised that I get bloating from RICE!. Living in asia that seems to be the final injustice!  I avoid all gluten, Soy sauce, bottled sauces etc.  I can eat Quinoa and I make my own bread from coconut and tapioca/casava flour.  I had lunch out today (Bicol expre
Geoff01

Geoff01

5
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Grand River Foods Ltd. Unmeatable brand Southern-style Breaded Strips recalled due to undeclared wheat

Grand River Foods Ltd. is recalling Unmeatable brand Southern-style Breaded Strips from the marketplace because they may contain wheat which is not declared on the label. People who have an allergy to wheat or have celiac disease or other gluten-related disorders should not consume the recalled product described below. Brand Product Size UPC Codes Unmeatable Southern-style Breaded Strips
Scott Adams

Scott Adams

0
Johny

Wheat and durum

Hi everyone I am new to this forum. I got my blood tests done . It shows I am allergic to wheat but not to durum. Not even to gliadin. If anyone knows about it please explain. It's very confusing. Because wheat and durum has same proteins. Is it possible both have different DNA. And possible it is true? Thanks
johnyji123

johnyji123

15
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Trader Joe's brand Gluten Free Battered Halibut Issues Allergy Alert on Undeclared Wheat and Milk Allergens

Orca Bay Foods of Seattle, WA is recalling 4,450 lb. (356 cases) of 10 oz. retail box Trader Joe's brand Gluten Free Battered Halibut SKU 00503822, because it contains undeclared wheat and milk allergens. People who have an allergy or severe sensitivity to wheat and milk run the risk of serious or life-threatening allergic reaction if they consume this product. Product was sold in Trader Joe's stores in Connecticut, Illinois, Indiana, Iowa, Kansas, Kentucky, Maine, Massachusetts, Michigan,
Scott Adams

Scott Adams

0
Posterboy's Blog

If your Celiac disease was, in part, triggered by a Vitamin Deficiency would you take B Complex for it?

To All,  Who might read this Posterboy blog post. Some house keeping to start with by way of some notes: This is as I see it currently so this a "Cliff Notes" version as a working hypothesis to keep it short enough to read…. I didn’t mention Magnesium or explain how Magnesium Is necessary for the body to use….Thiamine as an example… see Addendum at the end if you have  more interest of learning how Pellagra, Beri Beri and Pellagra Sine Pellgra presents today ALL together
Posterboy

Posterboy

1
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Food Recall Warning (Allergen) - Certain Goodfood brand Roasted Sweet Potato Power Bowls recalled due to undeclared almonds, pecans, wheat and gluten

Goodfood Market Corp is recalling certain Roasted Sweet Potato Power Bowls with Feta, Quinoa & Crunchy Cabbage Salad from the marketplace because they may contain almonds, pecans, wheat, and gluten which are not declared on the label. People who have an allergy to almonds, pecans, wheat, or have celiac disease or other gluten-related disorders should not consume the recalled product described below. Recalled product: Brand Product Size
Scott Adams

Scott Adams

0
Thiamine Thiamine Thiamine

Vitamin Deficiency Testing

I found this site linked below, written by a pathologist for doctors doing vitamin deficiency testing.   Open Original Shared Link Points of interest include: Patient should not be taking supplements at time of testing.  Ideally, supplements should be discontinued three to six weeks before testing for vitamin deficiencies.  There are exceptions.  Most B vitamins can not be stored in the body longer than three weeks.  Supplementing with vitamins will skew the tests for deficiencies
knitty kitty

knitty kitty

7
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Possible undeclared gluten in President's Choice brand "gluten-free" chicken strips

In response to several reported reactions from consumers, the Canadian Food Inspection Agency (CFIA) is recommending individuals with celiac disease, or others with gluten-related disorders, to not consume the product described below as it may contain undeclared gluten.  The product described below has been distributed nationally.  No other lots are known to be affected at this time. President's Choice Chicken strips - 600g (UPC 060383 20488 4 - Codes: 2021 AL 20) Thi
Scott Adams

Scott Adams

0
Posterboy's Blog

A Case for Thiamine Supplemenation in Celiacs IF only for a Season in Time

A Case for Thiamine Supplementation in Celiac’s IF only for a Season in Time I have been doing Posterboy blog posts every so often now for a while now to share my experience with supplementation. I have settled on the fact that many of the existing GI issues can triggered by existing nutritional deficiencies. ((I think most people must think I still take Niacinamide or Thiamine or a B-complex.....I do not now take any of these things.  I only took them for a Season in Time an
Posterboy

Posterboy

0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

H-E-B Issues Recall for Blue Cheese Salmon Burgers Due to Undeclared Wheat

Products contain wheat, a known allergen, which is not declared on the product label H-E-B is voluntarily issuing an all-store recall for Blue Cheese Salmon Burgers due to an undeclared allergen. The products contain wheat, a known allergen, which is not declared on the product label. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. All affected product has been removed from store she
Scott Adams

Scott Adams

0
Melissa

is Cheerios gluten free

A few years ago cheerios had aired commercial  saying that the cereal is gluten free by removing the wheat germ in in the gain. I don't get it I thought about cross-contamination .just because you remove it. I wish companies were not aloud to say the are gluten free because their factories aren't. For people who eat gluten and revive pain and damage from just the smallest speck that can only be seen through a microscope. And cheerios is a sponsor for celiac disease foundation. Its all hypocritic
Melissa Mandrick

Melissa Mandrick

2
Melissa

no one believes

Just because others can't see what going on inside doesn't mean the the pain you feel isn't there. Not faking it! How long to we have to suffer before someone believes in want we are saying. No one believed me and when I found out I had celiac. Doctor caught it at the last second. He said if no one would have caught it I would have bled out in about one months time at age 14. So when someone says their in pain believe them before it is to late to turn back time. 
Melissa Mandrick

Melissa Mandrick

2
Daily Life and Compromising

July 2020

Well life has been crazy. I guess the biggest issue has been my truck I got so I could travel more and go to farmers markets with. I took it in with a extended warranty to get the A/C fixed and the engine started having problems. Warranty company told the dealership to take it apart so they could inspect but then declined be cause the truck was a ambulance....well the vin says it is a F350 with a ambulance package so they knew that. So I ended up without a vehicle and the initial cost was $21,93
Ennis-TX

Ennis-TX

1
Melissa

Being Compared

Once my celiac disease was compared to a person with a peanut allergy! They have nothing to do with each other.😠
Melissa Mandrick

Melissa Mandrick

4
Musings and Lessons Learned

Good news. And some average news.

I finally had my blood work done. All micros, except iron, are well in the upper ranges of normal. Woot! I guess that means intestines are healing.  Fatigue still plagues me, though. Not as much as it used to, but I feel only 25% better.  The average news is my ALT and AST levels are sitting just above the upper range of normal. I have to now have the emotional calmness to investigate what is causing this. It feels too much to deal with, but I suppose I need to face it.  I am yet
Keight

Keight

6

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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