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Celiac Disease & Gluten-Free Diet Blogs

Musings and Lessons Learned

Good news. And some average news.

I finally had my blood work done. All micros, except iron, are well in the upper ranges of normal. Woot! I guess that means intestines are healing.  Fatigue still plagues me, though. Not as much as it used to, but I feel only 25% better.  The average news is my ALT and AST levels are sitting just above the upper range of normal. I have to now have the emotional calmness to investigate what is causing this. It feels too much to deal with, but I suppose I need to face it.  I am yet
Keight

Keight

6
Posterboy's Blog

Is Refeeding Syndrome being misdiagnosed as a Celiac Crisis today? Latest Research indicates a Celiac Crisis Could be Refeeding Syndrome being Misdiagnosed Instead

To All. Is Refeeding Syndrome being misdiagnosed as Celiac Disease today? Refeeding Syndrome happens among the severely malnourished and having Celiac disease is a risk for a Refeeding Syndrome leading to a Celiac Crisis aka Celiac diagnosis. See this research entitled “Celiac Crisis: an unusual presentation of gluten-sensitive enteropathy” where the Symptoms of Refeeding Syndrome (Electrolyte Imbalances) is being diagnosed as “Celiac Crisis” instead…. Open Original Shared Link
Posterboy

Posterboy

2
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Rusty’s Seafood Market Issues Allergy Alert on Undeclared Wheat

Rusty’s Seafood Market of Lorida, Florida, is recalling all five of its Captain Rusty’s Seafood Dips due to the presence of undeclared allergens. People who have allergies to fish (mahi, salmon, whiting, pollock, threadfin bream), crustacean shellfish (crab, lobster, shrimp), wheat, eggs, soy or milk run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled Captain Rusty’s Seafood Dips were distributed in South Florida, Sarasota, FL., Tampa,
Scott Adams

Scott Adams

0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Johnson Sea Products Issues Allergy Alert on Undeclared Wheat & Soy in “Home Style Crab Cakes”

Johnson Sea Products of Coden, AL, is recalling its 12oz package of frozen “Home Style Crab cakes” because they contain undeclared ingredients of wheat and soy. People who have allergies to wheat or soy run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled “Home Style Crab Cakes” were distributed in retail markets throughout Alabama and Florida from 4/28/20 through 5/11/20. Julian date of 212220 is stamped on master cases for distributors
Scott Adams

Scott Adams

0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Food Recall Warning (Allergen) - Farm Boy brand Broccoli Cheddar Soup recalled due to undeclared gluten

Recall date: May 8, 2020 Reason for recall: Allergen - Gluten, Allergen - Sulphites Hazard classification: Class 3 Company / Firm: Farm Boy Company Inc. Distribution: Ontario, Canada Extent of the distribution: Retail Recalled products Brand Name Common Name Size UPC Code(s) on Product Farm Boy Broccoli Cheddar Soup 680 ml 8 08912 00
Scott Adams

Scott Adams

0
Thiamine Thiamine Thiamine

Thiamine

Some interesting articles about Thiamine Thiamine Deficiency Promotes T Cell Infiltration in Experimental Autoimmune Encephalomyelitis: the Involvement of CCL2 Open Original Shared Link   Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis Open Original Shared Link   Celiac Disease: A Disorder Emerging from Antiquity, Its Evolving Classification and Risk, and Potential New
knitty kitty

knitty kitty

2
Gluten Free Recipes - Blog

Gluten Free Chicken Recipes (3rd Week of April, 2020)

Note to myself... Gluten free sweet chicken: Open Original Shared Link Gluten free baked oregano chicken: Open Original Shared Link Gluten free chicken skewers: Open Original Shared Link Pad Thai (substitute with chicken): Open Original Shared Link Chicken Parmesan (use gluten-free crumbs): Open Original Shared Link
glutenfreehusband

glutenfreehusband

0
Gluten Free and Specialty Diet Recipes

Carrot Cake Muffins

Been working on this for the past 4 days and got it about perfect. 120g (1 cup) Almond Flour 100g (1/2 cup) Swerve Granular (Erythritiol) 2tbsp  Flax Meal 2 tsp Baking Powder 2 tsp Cinnamon Powder 1tsp Ginger Powder 1/4 tsp Nutmeg Powder 1/4 tsp Salt 60g (1/2 cup) Chopped Walnuts 1/2 Cup Melted Nutivia Butter Flavored Coconut Oil 3 Eggs Whisked ROOM TEMP 56g (1/4 cup) Cream Cheese  (Kite Hill Almond Base, or Miyoko Cream Cheese work to keep it dairy Free) 2 tsp Va
Ennis-TX

Ennis-TX

0
Musings and Lessons Learned

Update April 2020

Well, well! It has been a while. I needed time away from social media and only inching back towards the more sensible ones now. I hope you are all well and keeping sane in these very ... unique times.  I decided to try the carnivore diet. I had been listening to Drs Ted Naiman and Paul Saladino, and began looking at what the Armstrong Sisters were up to. This led me to the Paleomedicina group and their seeming successes with a PKD lifestyle (paleolithic ketogentic diet). Given how things ar
Keight

Keight

3
Posterboy's Blog

Mayo Clinic Study Shows Micronutrient Deficiencies Are (Still) Common in Contemporary Celiac Disease Despite Lack of Overt Malabsorption Symptoms

Micronutrient deficiencies remain common in adults with Celiac Disease despite increased non classic presentation new Mayo Clinic study shows; or How Under/Undiagnosed Malnutrition is making you Sick…. The  Posterboys Story of How Taking Magnesium and a B-Complex help him address asymptomatic Vitamin Deficiencies in Celiac disease They (Mayo Clinic) titled it… Micronutrient Deficiencies Are Common in Contemporary Celiac Disease Despite Lack of Overt Malabsorption Symptoms…but
Posterboy

Posterboy

26
Daily Life and Compromising

April 2020

Recovered fully from having the surgery removing my appendix in 12 days...literally back to lifting weights (no more then 40lbs for the first month is my personal set limit)....day 1 after I was back to 10 miles a day on a under desk elliptical...but I go crazy if not moving. This Virus has shut down the farmers markets, and only had 1 order in the past month, so paying bills is not possible via normal methods.....I am cooking meals for my landlord daily to pay rent. Thinking I might try of
Ennis-TX

Ennis-TX

0
Gluten Free and Specialty Diet Recipes

Pop Tarts

So with the COVID apocalypse going on I been working on some bucket foods that are safe for me first on the list was pop tarts. I filled these with Miyoko dairy free cream cheese mixed with a bit of stevia and Swerve Confectioner. I plan on later trying a version with mock apple pie filler (minced stewed chayote squash mixed with swerve, lemon juice, and apple pie spice) that is blended into a pulp filling. Dough 120g (1 cup) Almond Flour 28g (1/4 Cup) Coconut Flour 1/4 cup Nutiva Butter
Ennis-TX

Ennis-TX

0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Raw Seafoods, Inc. Issues Allergy Alert on Undeclared Wheat in Wegmans Brand Oven Safe Salmon Teriyaki and Oven Safe Ginger Salmon

Raw Seafoods, Inc is initiating a limited voluntary recall of the following products: Product Name and PLU Code Code on Packaging Best By Date Wegmans Ginger Salmon, Oven Safe - 6474 7608 01/23/2021 7659 02/13/2021 Wegmans Salmon Teriyaki, Oven Safe - 6408 7688 02/24/2021 7692 02/25/2021 This recall i
Scott Adams

Scott Adams

0
Daily Life and Compromising

Appendicitis

So pain started last night in my lower right abdomen with vomiting and fever. Took tramadol to sleep then woke up taking it again in the morning and vomitted when I tried eating. 99F fever Drove mysel to the ER got blood work wih raised white blold cell count, cat scan showed it was my appendix. Ambulance ride to Baylor and going for surgery in 3 hours....funny but the pain felt like my UC flaring but was in a odd location and not moving, and hurts to walk or move.
Ennis-TX

Ennis-TX

7
Posterboy's Blog

The LUPUS Inflammation Model for Sickness Beginning with B-Vitamin Deficiencies in Celiac's and other Inflammation triggered diseases….

Inflammation Model for Sickness Beginning with B-Vitamin Deficiency in Celiac's and other Inflammation triggered diseases…. AKA The LUPUS Inflammation Model or How the ignorance about nutrition is killing us today or how and why B Vitamins are being diagnosed as genetic GI diseases like Celiac disease today Note to blog reader :::::::) I get in the weeds sometimes...If you decide to read this anyway...don't say I didn't warn you.... from an earlier correspondence with Scott w
Posterboy

Posterboy

1
Daily Life and Compromising

March 2020

Actually in the hospital now getting a gastric emptying test done, I brought some Julian Bakery Bread since they want me to eat bread with the eggs. The cooked it all in the microwave in disposable containers so I have no worry about getting gluten or any other allergen in the foods. So far the first 2 x-ray have shown the food not to have moved...sorta expected this without digestive enzymes or flushing it with liquid (only allowed 4oz of water). Well my truck has been up and down with per
Ennis-TX

Ennis-TX

6
A Blog by Yvonne (Vonnie) Mostat, RN

More Celiac Resources

Do you know about Open Original Shared Link about the path to his celiac disease.  My knowledge of the National Celiac Organization was limited until the past few years when I was very restricted with the cousin to T.B. - M.A.C. and I found myself spending more hours researching my nursing degree books (out-dated of course) and all the new information regarding celiac disease from throughout the known world. It is amazing how many inaccuracies you find and the statistics can be confusing be
Yvonne (Vonnie) Mostat, RN
0
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Sierra Soups Issues Allergy Alert on Undeclared Gluten in “Pasta e Fagioli” Soup

Celiac.com 02/25/2020 - Sierra Soups of Fresno, Ca is recalling its 13 ounce packages of "Pasta e Fagioli" because the soup mix contains an individually wrapped package of pasta, which contains gluten. However outer packaging states the product is Gluten Free. People who have allergies to gluten run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled "" were distributed in Nationwide in retail stores and through mail orders. The produc
Scott Adams

Scott Adams

0
Daily Life and Compromising

Febuary 2020

So life has been crazy and busy, I got a new truck, a retired ambulance to be honest and have been working on modifications to work as a RV and a work truck. Ran into a bunch of issues the previous owner forgot to mention about the engine...Bad A/C Compressor, Fuel filters way past change time, fuel leak (leaking on top of engine...yes I am driving it with this), misfires on 2 cylinders and low fuel flow (this is built on a diesel 2011 Ford F350- base) The generator has me concerned also, it wor
Ennis-TX

Ennis-TX

2
Daily Life and Compromising

January 2020

So starting off the new year with a bit of a big investment using all my savings. Due to health issues being worse now traveling has become a joke, like removing the second row seating from my vehicle and replacing it with a portable toilet with chemical disposal tank....yeah I had to. So this topped with having to rent a hotel every time I want to stay out late has made me invest in a new vehicle with bathroom, sink, bed, and kitchen area. Initially I was thinking a small RV like a Class B wh
Ennis-TX

Ennis-TX

0
Musings and Lessons Learned

These days...

I left off my last blog entry about to see my GP for my ongoing lethargy issues. My iron stores are now in the normal range (yay!) and my fasting blood glucose is 5.4. She left me with the advice to allow time to heal things and that there is nothing she can find that is wrong with me.  Resting my entire weekend, every weekend, away is not what I call living. I am literally living to work, eat and sleep. I am finding it very difficult to reconcile this being my life for the immediate future
Keight

Keight

2
Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Cargill Voluntarily Recalls 39 One-Pound Bags of Product Packaged as Wilbur Dark Chocolate Covered Cashews Wheat Allergen Presence

Cargill is voluntarily recalling 39 one-pound bags of product incorrectly packaged as Wilbur Dark Chocolate Covered Cashews. Sold locally through the Wilbur Chocolate Store in Lititz, Penn., the bags are being recalled out of an abundance of caution because of a wheat allergen presence. Wilbur Dark Chocolate Malted Milk Balls were incorrectly labeled and packaged as Dark Chocolate Covered Cashews. The Malted Milk Balls contain wheat, which is not listed on the incorrect ingredient label. Th
Scott Adams

Scott Adams

0
Musings and Lessons Learned

Introduce myself

G'day to you. Nice to see you here. I'm Keight; a middle aged woman from Australia. I am a truck mechanic by trade and I have two teen sons, who are the light of my life.  As a baby, I had massive intestinal issues and could not hold down the baby formulas on the market at that time. Eventually, I was given a mix of evaporated milk and vitamin drops. I have had a life long problem with severe constipation, always thrived on meats, fruit and veg, had stomach cramps with milk and yoghurt, and
Keight

Keight

6

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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