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About this blog
My name is Nicole and i am 19 years old. I go to college and work, and have a loving family and boyfriend who have got my back. I have been diagnosed with celiac disease, through blood and scope, for more than 4 years now. I also got diagnosed with DH, eczema, and a large file of allergies.
To catch up on what has happened:
About 8 months ago i started to feel very ill with the normal GI symptoms, knowing i had celiac i relooked at my diet, only eating simplistic gluten free meals. When that did not help i began to worry and consulted a doctor for advice. He took my blood, and saw nothing unusual in my levels, sending me home feeling ill and disappointed. As the weeks passed my health declined and my skin started to peel off my body in sheets. The skin around my lips became scaly to the point where they would crack and bleed if i smiled, and my legs became riddled with DH. Something was wrong.
I them transferred to another doctor who redid my blood test and was shocked by what she found. My levels were extremely high for being on a gluten free diet. These being the numbers they normally diagnose patients with she sent me home to write out a food log, and sent in an authorization to get an MRI done.
But before i left her office we had a talk about what this could be. She mentioned that it could just be wheat in my diet, but me having this disease for 4 years, she felt it was highly unlikely. My GI doctor mentioned it could be cancer in my intestines, but the MRI would give us a yes or no answer to that question. The most curious thing she said was that i could be a part of an extremely rare group of people with celiac. This group of people have one very complicated problem..... Our bodies never stop producing antibodies to fight the gluten that is not even there, therefore cause mass destruction throughout our bodies. Shocked by this i though about my sister who has had Chron's for 7 years now, and all the pain she has gone through... Is that my future as well? My doctor went through loads of information on immune suppressors, and the benefits it would have on my body, if it worked. How strong the drug would have to be, and names of prescriptions for me to become informed.
Hearing this was a shock. Wasn't this disease suppose to be easy?..... You stop eating gluten and feel better. None of this was making since.
All that was going through my head when i left the hospital was; You're prescribing me what?!?!
