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Celiac Disease & Gluten-Free Diet Blogs

Two examples about the stupidity of the doctors

Both examples were originally posted on another forum, where I discuss a topic of my initiated. 1. Are doctors able to perform a proper differential diagnosis?  An example about the incompetence of human brain would be medicine. Did you know that the average time that goes for diagnosing Sjogren's Syndrome (an autoimmune disease most often prevalent in middle aged women) is 7 years!? Those poor women suffer years with dry eyes, mouth, and
HayInNeedleStack

HayInNeedleStack

2

Apparently I'm Mycroft Holmes

The last blog entry was about my GI not having a clue what's wrong with me. I was angry, and even more angrier when another senior GI said the exact same thing, although he did say it could be IBS. I loudly thought "f*ck you", because I gave him my whole list of symptoms, and expressed my solemn concern that this list contains A LOT more symptoms than just now cured diarrhea and still present pain in the stomach, which btw is minor. Here is the list: brain fog
HayInNeedleStack

HayInNeedleStack

0

ARZ Fine Foods Brand Ground Cumin Recalled due to Undeclared Wheat

Ground cumin manufactured by ARZ Group Ltd. has been recalled in Canada by the Canadian Food Inspection Agency because it contains wheat. Recall date: December 31, 2015 Reason for recall: Allergen - Gluten, Allergen - Wheat Hazard classification: Class 3 Company / Firm: ARZ Group Ltd. Distribution: Ontario, Quebec Extent of the distribution: Retail Reference number: 10275 Brand Name: ARZ Fine Foods Common Name: Ground Cumin Size: 55 g Code(s) on Product: 17115
Scott Adams

Scott Adams

0

cross country

When I was in cross country we would travel to compete and it was a huge hassle to find something I could eat. Everyone always wanted fast food or pizza. Well i made it through by packing food  or just being hungry until i could find something. Well tomorrow I have a banquet and they are serving pizza.. so again I get to be asked why I'm not eating and "just get over it" , "are you doing this to loose weight" Im tired of people thinking I'm just not eating gluten to get slim! ?
DevynJoy

DevynJoy

3

Dates

I know that I'm a little young to be going on dates. But what can I say, it's my senior year and its time to have fun. Ive been asked on quite a few dates most of which I have turned down (they were not great people), the few I have gone on were terrible. Most people don't realize how hard it is to find somewhere to eat out when you can't eat anything. They always try to take me to certain places which I can't eat, like Panera bread. They always say " its not going to kill you" "you'll be fine"
DevynJoy

DevynJoy

3

Hiding The Symptoms

My sister and I joke around a lot about the creative ways we hide our symptoms from the world. From carrying strong ass perfume, or wearing pads in our shirts, we create laughter and ideas that would send any normal person walking away shaking their head. But at what point does hiding your symptoms take every inch of strength from you? I realized just how weak I was when my symptoms showed on a place I couldn’t hide… My lips. I have been diagnosed with eczema for a while now and I have foun
Nicki Raeleen

Nicki Raeleen

2

Medication.. Medication.. Medication

Medication….. What a dreaded word, surrounded by stigmas and scapegoats. I have been on over 35 prescription medications since I was 13. I am now 19, almost 20, and the list seems to just keep growing. Between My eczema, DH, allergies, and now my un-responsive celiac, I have been a mess of a teenager; but seemed to have grown quickly into an adult. A lot parents are quick to take their children to the doctor, pop pills in their mouth, rub creams on their asses, and expect a result; but that is n
Nicki Raeleen

Nicki Raeleen

4

Joseph Epstein Food Enterprises Recalls Gluten-Free Turkey Meatball Products Due to Excessive Gluten

Joseph Epstein Food Enterprises, Inc., an East Rutherford, N.J. establishment, is recalling approximately 190 pounds of turkey meatball products due to misbranding, the U.S. Department of Agriculture's Food Safety and Inspection Service (FSIS) announced today. The label declares the product as "gluten-free," a false negative claim. The Mama Mancini's gluten-free turkey meatball items were produced on Oct. 19, 2015. The following products are subject to recall: [Open Original Shared Link] &
Scott Adams

Scott Adams

0

Finding The Right Doctor

After my GI doctor told me nothing was wrong with my blood test, even though i was feeling very ill, i knew it was time for a change. This doctor had recommended me to eat products that had wheat and gave me samplers of probiotics that stated "contained wheat" on the back!   The doctor i really wanted to see.... Dr. Crowe at the UCSD celiac clinic. This wonderful place seemed to be the solution to all my gastrointestinal needs. The only problem i faced, my insurance.   The battle began with my
Nicki Raeleen

Nicki Raeleen

0

Herr Foods Announces Recall of Sour Cream & Onion Potato Chips Marked Gluten-Free, but Contain Gluten

Herr Foods Inc. has initiated a voluntary recall of certain bags of its 1.875 oz. Sour Cream & Onion Potato Chip due to a packaging error that incorrectly states that the product is gluten free. While the back panel of the package complies with U.S. Food & Drug Administration (FDA) label regulations by listing "Wheat" in the ingredient statement as well as "Contains Wheat" in its related allergen statement, the front panel of the package erroneously features the words "Gluten Free.
Scott Adams

Scott Adams

0

You're Prescribing Me WHAT!?!

My name is Nicole and i am 19 years old. I go to college and work, and have a loving family and boyfriend who have got my back. I have been diagnosed with celiac disease, through blood and scope, for more than 4 years now. I also got diagnosed with DH, eczema, and a large file of allergies.    To catch up on what has happened:   About 8 months ago i started to feel very ill with the normal GI symptoms, knowing i had celiac i relooked at my diet, only eating simplistic gluten free meals. When tha
Nicki Raeleen

Nicki Raeleen

0

100% Celiac-Free…and other marketing blunders.

We have all been warned about tricksy stunts included in fine print.  We all know someone who has been duped by a some technical legal speak.  But what about the in your face statements that are just plain misleading?  When it comes to gluten free statements, errors whether accidental or intentional can be harmful.  The sad thing is that as more companies want a piece of the gluten-free pie, not all companies take due diligence in understanding gluten-free.   Just yesterday I experienced this no
beachbum

beachbum

0

It's Just One Cookie!

My first blog takes me back 5 years ago when my youngest daughter started her freshman year of high school.  She had been diagnosed Celiac  for 5 years at this point, by now I was sure my daughter had come to terms with her restrictive diet.  She was happy-go-lucky Madeline, ever smiling, always positive, living every day with joy. Little did I suspect that the social acceptance of being a young gluten-free teen was secretly troubling her and it was about to burst forth in a profusion of tears a
beachbum

beachbum

0

General Mills Recalls 1.8 million Boxes of Gluten-free Honey Nut Cheerios

General Mills is voluntarily recalling several days of production of Cheerios and Honey Nut Cheerios cereal produced at its Lodi, California facility on certain dates in July of this year because of an undeclared allergen – wheat – with potential adverse health effects. Because this recall relates to an undeclared allergen, this is a Class I product recall. Cheerios and Honey Nut Cheerios produced on these dates at the company’s Lodi, California facility are being recalled because an isola
Scott Adams

Scott Adams

1

Newly Diagnosed In March-Swallowing Issues

I am a 56 yr old male who was recently diagnosed in March by Endo,Colon and Blood Test. My Blood work was 249 but I have gotten it down to 23. I have been staying on a strict gluten diet and now I am having Swallowing issues. Went back to my Gastrologist and he stretched my Esophagus and said it was due to Muscle Spasms in my Esophagus. He put me on Blood pressure meds which I questioned. This caused more problems with legs swelling which I have never had high Blood pressure and did not at the t
MIchael530btr

MIchael530btr

6

This Is How The Story Always Starts Right?

Since this is my 1st Blog, I thought I'd share a little bit about me and my "off-colored" sense of humor (some people use the words morbid, inappropriate, shocking, wonderful, etc...) to help everyone understand why I might say things. I was diagnosed with Celiac Disease in 2013. It was a long road of mis-diagnosis and frustration. I just happened to get an amazing Gastro Dr because he was the one on call on a particularly awful trip to the local ER. My Dr himself has Celiac and is a very good s
Keishalei

Keishalei

1

Chex Gluten Free Instant Oatmeal

I noticed that Chex has come out with a gluten-free instant oatmeal and tried it out. Don't know if it is a coincidence or whether they contain the gluten that doesn't like me, but the 2 times I tried it, I have had the cooks 2-step. I usually eat Bobs Red Mill Instant Oatmeal or GlutenFreeda and haven't had any problems with those brands.
greendog

greendog

1

Cheerios Are Now Gluten Free

Picked up my first boxes of good old regular Cheerios and Honey&Nut Cheerios at the store. They are now labeled Gluten Free.
greendog

greendog

2

Lots Of Blood Tests

So...   Oncologist doctors and Licensed Naturopathic doctors are still not respecting each other in this valley at least. Doesn't surprise me. I the client am in the the middle. It's like a tug-o-war game really. One person says this, another person says that. There is absolutely no reason under the sun why a oncologist doctor can not respect nutrition. There is equally no reason why a Licensed Naturopathic doctor can't speak with the oncologist doctor before referring a patient.   Yup. That
Celiac Ninja

Celiac Ninja

0

Endoscopy - R/o Esophagitis, Check Up On celiac disease

Well... yesterday I had my second endoscopy performed. My GI doctor wanted to check up on my small intestine to see how its healing, as well as check my esophagus to rule out eosinophilic esophagitis. He took multiple biopsies and said my SI looked atrophied but otherwise I looked good. The combination of versed and demerol is powerful and I did not remember much of the discharge except for the fact that I Don't think I was ready to be discharged I was so out of it. But I slept it off and now I'
moosemalibu

moosemalibu

4

Possible Lymphoma Cancer Again...

Well well well....   Not surprised. Nor scared. I may have cancer again.   I am going to go WHOLE HIPPY NUTS THIS TIME! BooYAA!   I'm allergic to pain killers: no surgery for me. Thank GOD! I'm not interested at all in chemo or radiation again. Been there done that. They will want to bone marrow transplant, I will not tolerate pain killers nor that transplant without painkillers. lol   I am however FAR more aware of what to research, how much to supplement, how little and signs to look
Celiac Ninja

Celiac Ninja

1

Cancer Fighting Regim

The battle ground....   Lymph nodes going up my neck. Nodule 9mm on the back of my right thyroid lobe. (Hard to palpate) Unknown battle ground in chest cavity.   Weapons....   selenium 100mcg x2 each day. (breakfast, dinner) Vitamin E 400 I.U. x2 each day. (To process the selenium better) licorice root tea x2 a day. (helps with menstrual, adrenal and immune) Intolerance Complex x3 each meal (for digesting more than just gluten) Copper 2mg x1 each day (immune boost, oxygen to cells boost) G
Celiac Ninja

Celiac Ninja

3

Allergic Reaction To Glue Used After Surgery

I had surgery two weeks ago for my parathyroid and elevated levels of calcium in blood tests. Surgery went very well except within 24 hours I developed a strong allergic reaction at the incision site. The area got very red , swollen and began to weep quite a bit. Sleep became impossible,went to the doctor and he removed the glue that is commonly used to cover the incision and stitches. Started on, anti-biotics and a steroid. I contacted the mfg of the glue and asked about possible gluten in the
pasqualeb

pasqualeb

2

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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