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Celiac Disease & Gluten-Free Diet Blogs

Clash With The Doctors On My Colonoscopy Prep

I am normally a very shy person just wanting to blend in and willingly do what I am asked. However, when doctors told me that I needed to drink high fructose corn syrup, corn in my medications, and plastic (Mira lax) they had overstepped their power and I felt threatened. I swell up if I smell corn, so I knew I couldn't eat it. They dismissed my concern about this saying, "You can do it for the test." I set out to figure out a safe alternative for me to prep for my colonoscopy. This process took
1desperateladysaved

1desperateladysaved

1

3 Weeks Today

Today marks 3 weeks since going gluten free. Overall I feel a world better!!! At first, I was sleeping really good (like the first week and a half), but for the last week and a half or so, I've had horrible insomnia. Now, I am a chronic insomniac anyway, but I was rather enjoying that week and a half of restful sleep   Not sure if it's a gluten thing or not, and hoping the constant waking up/not being able to sleep, doesn't continue on as regular of a basis as of late.   With that said, ov
JesikaBeth

JesikaBeth

3

Hope For A Less Challenging Gluten Challenge

The current “gold standard” tests for celiac disease include testing for celiac antibodies in patients’ blood and performing an endoscopy to obtain small bowel biopsies. In order for these tests to be accurate, one has to be eating gluten up until the time of testing. If a patient is already on the gluten-free diet when these tests are done, the diagnosis of celiac disease can easily be missed. I’ve encountered many people who have decided that they’d like to be tested for celiac disease after
jebby

jebby

1

Celiac Disease Autoimmunity

I first came across the term “celiac disease autoimmunity” a few weeks ago as I read summaries of the article “Risk of Pediatric Celiac Disease According to HLA Haplotype and Country” that was published in the July 3, 2014 issue of the New England Journal of Medicine(NEJM). Based on my reading and interpretation of the article, it seems that celiac disease autoimmunity is interchangeable with the more commonly used term “potential celiac disease.” Both are used to describe cases in which people
jebby

jebby

0

Thanks, Doc

So I went to my follow up appointment with my doctor today, 2 weeks since going gluten free. After HE said to go gluten free and it will help a great deal. So I go in, all excited, that in 2 weeks time my health has improved drastically (I was also put on Savella for fibromyalgia, and taken off my other fibromyalgia medication.)   Anyway, I love my doctor, he's the only one who has ever listening to me - really listened - and he's overall good with a great bedside manner. Anyways, so I'm exc
JesikaBeth

JesikaBeth

2

Damage Assesments At 2 Years Gluten Free: Colonoscopy/endoscopy Prep

Quite possibly I suffered from celiac all of my life. I say 30+ years since I am older than that and can recall bloating and fatigue beginning undeniably at age 19 after a bout with mono-nucleosis. I have been working with my physicians to relieve my symptoms naturally and attempting to get to the roots of problems and solve them since realizing I had a gluten problem about 2 years back.   I haven't been too interested in Medical doctors for years since they could make my eczema go away, but i
1desperateladysaved

1desperateladysaved

3

Coincidence? Starting To Think Not...

So I am starting to think that several of the things I have beend diagnosed with, and/or are struggling with (including severe insomnia) are directly tied to gluten.   Just over a week in, my insomnia has gotten noticeably better. My fibromyalgia pain has gone from constant pain to, seriously, being decreased by over half (granted, I am also on a new fibro medication, but whatever it is is working, so I'm not going to question it!) I have noticed my focus has been slightly better, although it
JesikaBeth

JesikaBeth

3

Stay At Home Mom

With two kids to tend to, glutened by who knows what, and allergic to other stuff, I am finding it hard to survive. At night I have horrible nightmares, have had since I was a kid, but the glutening makes them worse. Also having heart palpitations, tightening, lethargy. Very tired all over as well. The last few weeks the glutening has damaged my gut and I guess I am consuming things that make it swell normally, so going to the restroom is defiantly difficult and painful. I'm loosing quite a lot
Celiac Ninja

Celiac Ninja

2

7 Days Down... A Lifetime To Go!

Well, 7 days down... a whole week gluten free... and I'm feeling hopeful. Good sign, considering I really thought I'd be down in the dumps over this (thank you to this forum and the book 'Living Gluten Free for Dummies by Danna Korn for the push in the hopeful direction!)   We are making our very first grocery store trip this Friday, since my diagnosis. Surprisingly, I'm kind of excited.   I think the prospect of feeling better (which I am already starting to feel MUCH better) is contribut
JesikaBeth

JesikaBeth

2

Getting A Sleep Study Done!

I am getting a sleep study done tonight. My Oncologist referred me for one. I have had chronic insomnia since I was 15 years old. I am now 34. My sleep is awkward, and I go through phases where I literally can't sleep at all (despite being on sleep medication prescribed by my psychiatrist), or I will sleep too much. I also have very little energy. My partner, who works in the medical field, believes I have sleep apnea. I'm interested to finally be having a sleep study done because this wacky
JesikaBeth

JesikaBeth

3

Here We Go!

Here it is, July 2014. I have been going through the run around since 2009 with possible celiac and/or gluten intolerance diagnosis. Over the years, I have not gotten a solid answer; and in the meantime other health issues had taken front seat to my possible gluten problems.   July 3, 2014: Diagnosis received.   So far so good with being gluten free. Today will be day #4.
JesikaBeth

JesikaBeth

2

Gluten Intolerance Doesn't Exist?!

Last night, I heard David Sax speak to a packed crowd in Los Angeles to promote his new book, "The Tastemakers: Why We’re Crazy for Cupcakes But Fed Up With Fondue." As a Toronto-based journalist who's written for publications such as New York Magazine, Vanity Fair, the New York times, NPR and GQ, David's won a James Beard award for Writing and Literature, has written before on food topics and has credibility as a food writer. David's topic was food trends, in this case why Angelenos love Kogi B
Miriam Reiss

Miriam Reiss

13

Baby #2 Born January 2014

Well, my sweet hubby and I had another baby, Surprise! its a girl. ? Yes, we didn't know until month 8.   Doctors told me she was in serious danger because I am Rh-, that is O- blood. I chose not to do the rohgam. It is protein based and I have numerous allergies including to pain meds. When I had cancer I had seizures while the nurse was giving me retuxin, which is animal proteins. I seizured twice on the table and they had already given me banderol. They pulled it out and doped me up with mo
Celiac Ninja

Celiac Ninja

3

Bumps In The Road: Food Intolerances

About 1 1/2 years ago I did a food antibody test to see if I could find some safe foods for me to use and any I should not use. The tests searched for Igg and IgA antibodies made by the body to combat foods that it evidently thinks are invading it. The tests showed me several surprises:   Buckwheat threatened my body the hardest! (I was already off gluten.) 49/60 foods my body interpreted as problems. Surprisingly, this left a few of my favorites which I could eat.   Since, I had so many i
1desperateladysaved

1desperateladysaved

4

Gluten-Related Neurologic Symptoms In Children

There is a well-established relationship between celiac disease (and non-celiac gluten sensitivity) and the development of neurologic problems in adults. According to Dr. Marios Hadjivassiliou, a neurologist in the UK who is one of the world’s experts in this area, up to 50% of adults with newly diagnosed celiac disease have signs or symptoms of neurological problems. I have personally experienced a peripheral neuropathy (nerve damage) as a result of celiac disease and it was my neuropathy that
jebby

jebby

0

I'm Back!:)

Well, I guess I haven't been on since around last Fall or sometime around there. Either way, it's been a while! I just finished my Sophomore year of college with a 4.0 and am finally back home for the summer! Some of you may have heard about us on the news recently actually... we had quite a lot of rain a few weeks ago that basically destroyed half the town. My house is okay though! The roads, however, are not.   Last time I was on here I was still very much struggling with avoiding all thing
lexibrowning

lexibrowning

3

Week 2: Monday, May 5, 2014

Okay so, where do I begin. On Tuesday, April 29, I went to see my naturopathic doctor for the first time. We talked about skin issues and food sensitivities, and he mentioned that a patient of his had rosacea and was tested for food sensitivities. After being tested positive for yeast/wheat sensitivities and giving both up..his rosacea cleared up. I didn't think too much of it at first..until after my dinner. I ate steam fresh brown rice (no additives or sauce) mixed with steam fresh vegetables
Waitingindreams

Waitingindreams

4

The Beginning Of The End Of Celiac Reigning In My Life. Two Years Of Progress.

When I was 19 I fell ill with mononucleosis. From than on I carried what seemed like 100 lbs of fatigue on my back. I tried many natural ways to relieve and energize me. You see that I tried to take care of a large family. Yet, sometimes it seemed that it took more energy to make a meal than I got out of the meal. I felt tired, but the doctor said, "Of coarse you are, you have a big family to care for." I often taught home school, in my living room, lying on the couch. While sitting up, I fell a
1desperateladysaved

1desperateladysaved

1
CaliSparrow

CaliSparrow

0

Gluten Intolerance Can Actually Be Subclinical Celiac Disease

I think most of us have met people who have symptoms of celiac disease, but when tested, are told that their celiac antibody blood tests and biopsy results are negative (normal). Some of these people are labeled “gluten intolerant” or “gluten sensitive” by their doctors, others are told they may have “early” celiac disease, or “pre” celiac disease, and the rest are told that they have nothing wrong and are often advised to continue to eat gluten. Many continue to eat gluten and find themselves
jebby

jebby

3

Week 1: Monday April 28, 2014

I have been lactose intolerant since about 2010. Since giving up gluten in July of 2013, I have not seen any improvements in my sensitivity to lactose. I decided to blog my progress/results that I hope to see from giving up most dairy/all lactose. The only dairy I will eat is the casein found in my almond/rice cheese substitutes. That's it! No more chocolate, pizza, gluten free calzones, nothing...for at least 6 months, possibly a year if I see a lot of progress. I plan on posting a weekly entry
Waitingindreams

Waitingindreams

0

The Celiac Project Documentary Film

As someone who appreciates film, and obviously spends a lot of time spreading the work about celiac disease, I just wanted to share this Kickstarter possibility: Open Original Shared Link
Scott Adams

Scott Adams

2

Wonderful Friends

The last few weeks have been a bit fraught over here with uni finals and The Job Hunt beginning, to the point where I ducked out of a dinner and night out with old school friends on Saturday because I didn't want to join in with the chat about uni and jobhunting, or to once again grill waiters in front of my friends. My friends are fine about it, I just hate having to do it. So just as I was planning a night in on my own with a tub of ice cream my boyfriend's friend rang and invited us to a gath
KCG91

KCG91

2

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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