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Celiac Disease & Gluten-Free Diet Blogs

Day Thirty One

Alright. So its been a month since I've started doing the challenge and now my the tip of my thumb is starting to crack and peel. Now, some of this is to blame on the cold weather, but I DO recall that when I was almost gluten free last year, my thumb hardly split at all.   I am FINALLY free of that cold/laryngitis thing. That only took about two weeks to get rid of.   I'm not starting to find that after I eat, I am still SUPER hungry. Could it just be TTOTM (ladies will understand) or am I
Porcelina

Porcelina

5

Good News/ Bad News

I have just passed through several days of cramping, swelling, and gassiness. All of this as a result of nothing specific that I know of. Perhaps after 19 months gluten free it is just further recovery. Happily, I woke up today without the cramping and felt excellent since.   . Previous blood counts, over the passed 5 years, showed immature blood cells which tended to break easily. These have difficulty carrying oxygen. Late morning I received the happy news. Word came my blood count was nor
1desperateladysaved

1desperateladysaved

1

Gluten Free Desert Pizza Survey

Hi my name is Trevor Snyder and I'm currently a Junior in the Wake Forest Business School; in addition to this I also have Celiac disease. I am writing this blog in the hopes that you guys will complete this short survey that will help me in my marketing project on pushing a gluten free desert pizza, in addition I hope that this blog will help to create awareness for a gluten free pizza one day. Thanks! Open Original Shared Link
deacon11

deacon11

0

Day Twenty Two

I'm still not over this cold/laryngitis. Just when I thought it was over, WHAM! I'm totally fatigued again today and my throat is tightening up. I also noticed that a lymph node at the back of my neck has become swollen. I remember as a kid I used to have swollen nodes in my neck ALL the time and my doctor making a comment on it.   As for symptoms, I'm either battling IBS-C or IBS-D these past few weeks. Oh the joy.
Porcelina

Porcelina

0

Day Nineteen

So this 'cold' turned into laryngitis. I had to leave work on Friday because it hurt too much to talk. On Saturday I just napped and took it easy. However, early this morning at around 1:30am, I had a migraine that almost lead to me throwing up.   I also had insomnia during this whole ordeal, which is probably why the cold turned into laryngitis.   I'm also developing eczema again on my legs.
Porcelina

Porcelina

1

Early Feeding And Risk Of Celiac Disease In A Prospective Birth Cohort

**This is the first guest post on my page by Cristen, an incredibly talented scientist and mother of two children. Her youngest child was diagnosed with Celiac disease earlier this year. Many thanks to Cristen for tackling this challenging topic! Celiac is known to have a large genetic component and people with Celiac disease carry the HLA-DQ2 or HLA-DQ8 genes. However, only around 4% of people that carry these genes develop Celiac (Open Original Shared Link). The big question then is, what el
jebby

jebby

2

Day Fourteen

I didn't eat gluten all day until dinner time. I didn't want to because all day I had stomach cramps. The cramps have begun... I ate a peanut butter sandwich for dinner and within 30 minutes I was wincing from the pain. So not good.   And sorry boys, skip this part as this may be a bit TMI, but I started midcycle spotting again. I always thought it was grain related (I noticed I spotted after eating corn products) but I'm only day 10 into my cycle and I've started to spot. I keep really good
Porcelina

Porcelina

1

Days Twelve And Thirteen

So exactly 24 hours later, just like clockwork, on day 12, a migraine sets in. I'm assuming the pizza because that's what I pigged out on 24 hours earlier. I was also very sore under my armpits and chest, like I was either coming down with the flu or had done push ups the previous day (which I had not).   Today, day 13, I went to the chiropractor as my back was acting up again. And now, I'm getting a cold. My first cold in about 2 years. No, I'm not even joking. I rarely get sick thankfully.
Porcelina

Porcelina

1

Day Ten

Had a regular customer of mine ask me if I was feeling ok today while at work. I asked her why and she told me I had really dark circles under my eyes and I looked tired.   Starting to get stomach cramps after each meal where gluten is consumed.
Porcelina

Porcelina

0

Day Eleven

Not much different other than I enjoyed some licorice and pizza hut for the first time in a couple of years. Very tired by 9 pm, but that could be from the excessive couch potato mode I was in. It was girls weekend, so horror films and junk food were in full pursuit.
Porcelina

Porcelina

0

The Celiac Iceberg Revisited At Icds 2013

The second to last session on day one of the 2013 International Celiac Disease Symposium (ICDS) was a talk entitled, “Melting the Celiac Iceberg-potential, latent, silent: to treat or not to treat?” I was very confused about these terms when I first came across them in the Celiac medical and research literature a few years ago. “Silent” Celiac Disease refers to patients who have Celiac Disease (elevated Celiac antibodies on blood testing and abnormal small bowel mucosa on endoscopy and biopsy)
jebby

jebby

6

Wheat Farmer's Dilemma

Here's a link to Dr. David Perlmutter's website and a recent discussion he posted about wheat farming. Dr. Perlmutter actually answers questions if you read through the comments at the end!   Open Original Shared Link
Rucko

Rucko

0

Day Nine

Heartburn, headaches, fatigue and now eczema on my face is acting up. How lovely.
Porcelina

Porcelina

1

Days Seven And Eight

Well, those two days were almost the same. Nagging headache, starting to feel nausea after eating gluten, running to the bathroom and very tired by 8 pm. On day eight (yesterday), I made a lasagna and black forest cake for my boyfriends birthday. Of course I had some and it was all very delicious, but my guts were just rolling still three hours after and I could hardly go to sleep. My tummy was so full of gas and nothing would come out, so it was just none stop stomach cramps and gas cramps last
Porcelina

Porcelina

0

Someone Needs To Make An Effort

I work over 40 hours a week sometimes and also go to college full time. I was diagnosed about 10 years ago with Celiac disease and soy intolerance. Back when none of these big brands cared whether people with celiac disease could eat their food or not. I have to say the market has gotten a little better. But, as I'm sure everyone can relate, walking in a groceries store is more frustrating than anything. In every store the Gluten free section is in a different isle or its all mixed in with every
wheatisbad

wheatisbad

3

Day Six

Starting to get slight stomach cramps after meals now. As of this moment, my stomach is making gurgling noises even though dinner was gluten free. I'm feeling slightly bloated and gassy now and I've actually gained 5 lbs in the 6 days of starting this, and yet I'm not eating my full days caloric needs (I eat around 1800 a day).   I've also had a niggling of a headache all day. Not enough to require and Advil, but enough as a gentle reminder that something's not quite right. I'm still slightly
Porcelina

Porcelina

3

Day Five

Had 2 pieces of toast for breakfast and felt fine. Had a bagel and cream cheese with tomato soup for lunch, started to feel a little fatigued and gassy. Dinner was fairly low in gluten, just had a touch of bbq sauce that had soy sauce in it and then I decided to have a beer. As soon as it was finished, I developed a migraine and extreme fatigue. I was ready to pass out at 8 pm.
Porcelina

Porcelina

0

Day Four

Still kind of tired today, but not as bad. My back has residual pain after being as sore as it was, but not enough to warrant advil or ruin my sleep.   I noticed last night when I woke up at some point, that my left nostril was plugged. I've never experienced that before other than when having a cold. I also had a mild headache today after eating an apple fritter (like I said, I'm going to make the most of this challenge!) and then heartburn thereafter.   Still going to the washroom lots, a
Porcelina

Porcelina

3

Day Three

Fatigued. SOOOOOOOOOOOOOOOOOO tired. My eyelids droop as I write this.   On an interesting note about how another way gluten may bother me, I saw my chiropractor on Wednesday for an adjustment. I see her once in a blue moon. It seems that as soon as a long weekend comes, my back likes to tweak out (not twirk out thank goodness!).   Anyways, she does a great job on Wednesday and I say 'see ya next month!' Well, yesterday, day 2 of gluten challenge, I'm washing my hair in the shower when my ne
Porcelina

Porcelina

2

My Friend: Pain!

Before I diagnosis, I did not feel celiac pain. I would notice my tummy bloating, my legs swelling, and have a pregnant looking belly. I had extreme fatigue and foggy mind, but didn't realize those until it went away one day. I trudged on with these mysterious symptoms that were "All in my head." Wondering in my dreamy state if something possibly was wrong.   Now, I am 18 months (well there about) into a gluten free diet. Some mysterious way, I got some gluten. Right away I felt sharp pings in
1desperateladysaved

1desperateladysaved

3

Day Two

So here I am on day two. No fatigue or migraines surprisingly. I'm wondering if they have passed as I got those on the weekend when I was accidentally glutenized. Today was more like bloat and making a few mad dashes to the washroom. By the end of the day, my tongue had swollen as I can actually see my teeth imprints on the side of my tongue. Is that even a symptom? Tongue swelling? I can certainly feel a few cankers trying to 'blossom'. As I "poison" myself through this challenge, I thought I
Porcelina

Porcelina

1

Day One

So after a year and a half of being part time gluten free (avoided the obvious sources, but continued with sauces, malt vinegars and beers) I have decided that I want to be tested for celiac. I kept a food journal and after playing around with food eliminations, I discovered that I have fructose/fructan malasorption. So I avoided apples, wheat, onions and garlic for the better part of the year. I also discovered that wheat caused intense pain in my stomach. Since wheat's sugar is fructan, I si
Porcelina

Porcelina

4

The Mystery Rash

For years I had this rash on my right knee right on the side of it. Really itched like crazy. It looked like tiny little blisters they came by twos. they looked like little bites. I would scrach them and they would break open and the juice would spread and then i would have more bumps. I went to see many doctors no one knew what it was nothing helped it. I am now I am convinced its from gluten. Does any one else have these bumps?
jaimekochan

jaimekochan

1

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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