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Celiac Disease & Gluten-Free Diet Blogs

USA Recalls

Shakespeare’s Pizza Issues an Allergy Alert Concerning Undeclared Wheat in Its Frozen Pizzas

Shakespeare’s Pizza of Columbia, Missouri is recalling all its frozen pizzas from grocery stores, as they contain wheat, but do not declare the presence of wheat on their labels. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. Our pizzas are distributed in grocery stores throughout Missouri, and in a small number of grocers in Kansas, in the Kansas City metro area. Affected products liste
Scott Adams

Scott Adams in USA Recalls

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USA Recalls

Lara’s Bakery 3 LLC, Issues Allergy Alert on Undeclared (Sesame Seed, Coconut, Soy, Wheat, Milk and Eggs) in Pan de Racho, Panque, Tres Leches, Chocoflan and Pan Surtido

Lara’s Bakery 3 LLC of Marshalltown, IA is recalling Pan de Racho, Panque, and Pan Surtido (Concha, Cema, Polvoron, Flan, Chocoflan, Tres Leches, Tostado de Guatemala, Pan de Guatemala, Canasta, Garibaldi, Marianas, Muffin, Pan Fino, Pastel de Glass, Pan de Trigo, Puerco, Bolillo, Telera), because it contains undeclared sesame seed, coconut, soy, wheat, milk, and egg. People who have an allergy or severe sensitivity to specific sesame seed, coconut, soy, wheat, milk and egg run the risk of serio
Scott Adams

Scott Adams in USA Recalls

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My Vitamin Deficiencies

Thiamine Deficiency Disorders

I developed vitamin and mineral deficiencies before my diagnosis.   Thiamine deficiency made me have a voracious appetite at some times and at other times, I had no appetite at all.  Thiamine affects the satiety center in the brain that tells you to eat more or you've had enough.   Thiamine deficiency also causes nausea.  I would wake up ravenous, but have nausea so bad I didn't want to eat.  Nausea sometimes occurred after eating.  My food just sat there and didn't seem to move.  Gast
knitty kitty
4
Gluten Challenge

Gluten Challenge Revised

According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kin
knitty kitty

knitty kitty in Gluten Challenge

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Hookworms

An uneventful inoculation

It's been a week since my latest hookworm inoculation with my usual 25 Necator americanus (NA) larvae. The skin reaction this time has been mild. As I look at it now I just see some redness and several marks, really nothing to look at. The site was mildly itchy for a few days and that was the extent of it. I was using a topical corticosteroid cream 3x a day and I expect that helped. People talk about experiencing a 'bounce' of extra energy or wellness after inoculation, but I've never noticed an
dixonpete

dixonpete in Hookworms

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Thiamine and IgA production

Antibody production and Thiamine

I found these neat articles. B cells defined by immunoglobulin isotypes https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9985177/ And... Mode of Bioenergetic Metabolism during B Cell Differentiation in the Intestine Determines the Distinct Requirement for Vitamin B1 https://pubmed.ncbi.nlm.nih.gov/26411688/ And... Metabolism of Dietary and Microbial Vitamin B Family in the Regulation of Host Immunity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6478888/ A
knitty kitty
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USA Recalls

10-Year-Old Celiac Activist Files Citizen Petition with the FDA to Label Gluten as a Major Food Allergen

Celiac Journey’s Citizen Petition Informed by 2021 FAO-WHO Expert Consultation on Risk Assessment of Food Allergens and 1,576 Public Comments Submitted to the FDA in Evaluating the Public Health Importance of Requiring the Labeling of Gluten On All Packaged Foods Jax Bari, age 10, has filed a Citizen Petition with the FDA to label Gluten as a Major Food Allergen. Celiac Journey’s Citizen Petition is requesting a long-overdue reckoning by the FDA to better protect more than 3.3 million
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Inoculation was delayed but luckily completed

About 10 days ago I was called away out of my city on a family emergency. I had to leave on a Sunday, just before the courier with my hookworms were to arrive. I was frantic because were they to be sent back or lost I might not be able to get more until the spring as larvae often are killed in the cold weather. If that happened, I would soon have to go gluten-free and would experience colitis for months till I could reorder when the weather warmed. The package was sent internationally but I
dixonpete

dixonpete in Hookworms

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Hookworms

On my controversial celiac status

It's been suggested that I clarify my claim of being celiac. Something of some importance as I am making the claim that at least for myself using hookworms has improved my life as a celiac, and making that claim on a celiac-oriented site no less. I have never had a positive biopsy test for celiac disease. There, I've said it. That said, I maintain that there is very little doubt that I am celiac, and the only reason I don't have that positive test is that I get far, far too sick to be
dixonpete

dixonpete in Hookworms

2
Hookworms

I just made my hopefully last order of hookworm larvae

My renewal date came up on the weekend based on my new inoculation schedule of 5 months and I reordered larvae. All much simpler than it used to be, but I guess that's what you get once you learn the angles. Just a quick email to confirm the price and a visit to PayPal to send the money, and then the Provider then gave me a tracking code. The larvae should arrive in 9-11 days. Next month I'll order pipettes and vials from AliExpress and in 2-3 months I'll order a microscope and slides from
dixonpete

dixonpete in Hookworms

2
USA Recalls

Circle K Nuts, Seeds and Nut Mixes Recalled Due to Undeclared Wheat

A variety of packaged nuts and nut mixes made by Azar Nut Co. in El Paso, TX have been voluntarily recalled by Azar Nut Co. due to wheat not being declared on their labels.  The recalled products include: Power Snacks Honey Roasted Sunflower Kernels Circle K Sweet & Spicy Mix Circle K Get Up Trail Mix Circle K Honey Roasted Peanuts Select Cashews Halves & Pieces Honey Roasted More info is at: fda.gov
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Harvesting hookworms and a new Discord Server for the Group

This week I've been reading up on self supply of hookworms, not just to save money but to ensure access. Covid made getting larvae difficult, and here in Canada it's hit or miss once the cold weather sets in. Larvae don't like temps below 5C and they can die in transit because of the cold. Providers usually resend for free but that still means being symptomatic for the duration. I once spent an entire winter gluten-free because of a DOA shipment. I've been shopping supplies on Amazon - a bi
dixonpete

dixonpete in Hookworms

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Hookworms

Mid-September Health Update

A few weeks ago I had a bad day marked by considerable GI distress. It was bad enough I figured I must have lost my hookworm colony. Immediately I went gluten-free and was better, so I thought I'd have to pony up earlier than I expected for my next inoculation. After a further 4-5 gluten-free days I reintroduced meat and gluten expecting the worst, but there was nothing, everything was still all good. Since then I've been on a regular gluten diet and I've had days of perfection where there
dixonpete

dixonpete in Hookworms

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USA Recalls

Kirkland Signature "Gluten-Free" Chicken Tortilla Soup Recalled by Kettle Cuisine Due to Gluten

A September 9, 2023 letter from Kettle Cuisine: Source: costco.com
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Detailed study of hookworms as therapy calls it feasible, safe, and well-tolerated

https://doi.org/10.1093/ibd/izad110  Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the way for future full-scale randomized controlled trials regarding efficacy. The study used 30 Necator americanus larvae. The self-treatin
dixonpete

dixonpete in Hookworms

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Hookworms

Getting hookwormed - Step by Step

So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually hookworms) themselves, and can answer any questions you might have. John Scott is the leader of the group and has been a hookworm host for ye
dixonpete

dixonpete in Hookworms

1
USA Recalls

Stonewall Kitchen Issues Allergy Alert on Undeclared Soy, Wheat, and Peanuts in Peanut Butter Maltballs (6oz.)

Celiac.com 08/16/2023 - Stonewall Kitchen of York, Maine is recalling a limited amount of their Peanut Butter Maltballs (6oz.) because the product contains undeclared allergens: Soy, Wheat, Peanuts. People who have an allergy or severe sensitivity to peanuts, wheat, and/or soy run the risk of serious or life-threatening allergic reaction if they consume these products. This product was distributed through Stonewall Kitchen Company retail stores located in Maine, New Hampshire, Massachusetts
Scott Adams

Scott Adams in USA Recalls

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Withdrawal

Withdrawal

How bad can gluten withdrawal get? My head hurts so bad and I'm so dizzy I can't stand up. Coming up on 2 weeks gluten free. I'm getting worried 
shawn s

shawn s in Withdrawal

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Hookworms

Should celiacs try hookworms?

I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life.  Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet missteps and likely contributes to the development of a variety of other health conditions. Hookworms help with the primary expression
dixonpete

dixonpete in Hookworms

1
USA Recalls

Frito-Lay Issues Allergy Alert on Undeclared Soy and Wheat in Doritos Nacho Cheese Flavored Tortilla Chips Distributed in Pennsylvania

Frito-Lay has issued a voluntary recall of a limited number – less than 7,000 bags – of 14.5 oz and 1 oz Doritos Nacho Cheese Flavored Tortilla Chips that may contain undeclared soy and wheat ingredients from spicy sweet chili tortilla chips. Those with an allergy or severe sensitivity to soy or wheat run the risk of illness should they consume these products. The products covered by this recall were distributed at retail stores only in Pennsylvania and other outlets, such as foodservice lo
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Side effects of Helminthic Therapy

I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to maximize my bang for my buck. I'm on the large side so I probably contributed to me not having problems with this strategy. Outside of the ini
dixonpete

dixonpete in Hookworms

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USA Recalls

Richin Trading Inc. Issues Allergy Alert on Undeclared Soy and Wheat in Black Melon Seed

Richin Trading Inc. of Alhambra, CA is recalling its 6 ounce and 12 ounce packages of Tim Heung Yuen brand black melon seed because they may contain undeclared soy and wheat. People who have allergies to soy and wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled products were distributed nationwide in retail stores. The recalled products were packed in plastic bags and can be identified by UPC 715685190013 and UPC 715685190020.
Scott Adams

Scott Adams in USA Recalls

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Hookworms

What is it like to be on hookworms?

I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods were making me sick I could have become 80-90% better, but I was still damaged and always a crumb away from being devastatingly ill. With
dixonpete

dixonpete in Hookworms

1

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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