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Celiac Disease & Gluten-Free Diet Blogs

The Fireworks Are Flying

Onedesperatelady may need a new name! Getting giddy usually happens to me before the next dive comes. Dive after dive has come to me since I have been really battling celiac disease (mostly Undiagnosed) for 6 years! By battling, I mean spending much efforts to help my body work right, my actual plight with celiac. disease has been at least 30 years.   This time I have cause to rejoice. I feel better. I jumped out of bed this morning at 6 am, because I felt like getting up. Some nigh
1desperateladysaved

1desperateladysaved

2

Right Side Back Pain

I have had celiac for 12 years and have may food intolerances but have been feeling very sick again. Neuropathy is much worse and I have gained weight quickly but feel like I am starving. I have back pain on the right side when I eat foods with a fat content, chicken, avocado etc...   I have been experiencing all over pain and stiffness with exhaustion once again and am waiting on blood workup to come back. Has anyone else had right side back pain often?
AuntT

AuntT

3

Gluten Free 4 Years New Allergies?

So,   I never "passed" any of the tests to guarantee that I am gluten intolerant but I know I was because as soon as I stopped eating it all of the digestive challenges I had my entire life were greatly reduced and the horrible skin problems I had rec%$#$ly begun to be afflicted with stopped. BUT, now I find I am having severe brain fog issues and it seems to happen after I consume quinoa. Anyone else have this issue? Help!!! It is becoming a problem at work.
mkmaren

mkmaren

1

"up To Date" Management Of Celiac Disease In Adults

“Up to Date” is an online medical database for physicians and other practitioners. I use it almost every day when I am at work to get a brief overview of the most recent evidence regarding the diagnosis and management of my patients’ problems.   I just reviewed the most recent “Up to Date” highlights on the management of Celiac Disease in adults (published April 10, 2013). Here are some of the highlights:   There are 6 key elements in the management of Celiac patients (note pneumonic CELIAC)
jebby

jebby

9

Non-Responsive Celiac Disease

Nonresponders are the 5% of Celiac patients who have either persistent symptoms and/or abnormally high Celiac antibodies after two years on the gluten free diet.   According the most recent medical review in the “Up to Date” database, there are 5 main categories of nonresponders to the gluten free diet:   -Patient is continuing to eat gluten. This is the most common cause of persistent symptoms. This can be on purpose (i.e. taking a little bite of a gluten containing food every once in a whi
jebby

jebby

0

Dear Future Amy

Dear Future Amy,   I know you are doubting your intolerance/sensitivity to gluten. I'm sure, now that time has gone on, you're starting to doubt the trouble it has caused you. You have forgotten how very miserable your gluten challenge was, and have started allowing the if's and the but's and the maybe's into your mind. So, I'm writing to you now, to remind you...read this and think back. Remember. Accept. And for the love of God, put down the Vanilla Porter, or the flat bread, or the Oreo, it
NotMollyRingwald

NotMollyRingwald

5

Thank You for the Opportunity to Blog about Celiac Disease

Thank you for the opportunity to blog about celiac! I have been on a stringent diet for intolerance to all grains, milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch and MSG since 2000. Dealing with the social ramifications of not participating as others do in the "normal" dietary regimens of "normal" America has been a daunting challenge, but one that continues daily to help me learn greater strength, renewed courage, and increased persistence, all traits whic
Welda Johnson

Welda Johnson

0

Is This Thing Working?

We seem to be having problems with the blog section. I'm just trying it.   11/29/2017 - Wow! It is letting me edit
kareng

kareng

5

Chick-Fil-A

Does any know if Chick-Fil-A's PepperJack Cheese is gluten free?
jab1980

jab1980

2

Alert-Other Possible Cause Of Celiac Like Symptoms

well tried to copy and paste my story...but didn't work...so here it is....   I have been going thru some things over the last 18 months that led me to be tested for Celiac, 3 blood tests were normal, as well as biopsies...everything I was tested for came out normal, however I was having severe reactions to gluten ingestion only after 20 minutes or so...I also have had a chronic caugh for the last 8 months, that was getting worse....I changed my primary care provider because she just wasn't he
mitchellbarbara

mitchellbarbara

2

Finding Food Where I Can

Drifting along Highway 37 in Northern British Columbia.
Bear with me

Bear with me

1

Oh, Hullo!

So, hi! I've been wanting to start a blog for a long time. I've always been a bit of a journal-writer, and when it comes to nutrition, I think I'm going to need more than just my own inkling and whims on paper.   I'm not new to gluten-sensitivity. Most of my relatives on my father's side have quite serious forms of Celiac. I distinctly remember one time when my mum and I had forgotten our house keys. We knew my dad was home, because his car was parked out the front. Making a bit of a joke out
elizaeloise

elizaeloise

2

Another Day, Another Bin

Darn, I can't find anything gluten-free in this trash can.
Bear with me

Bear with me

4

Endoscopy Day

Its over - not as bad as I thought - didnt end up having the sedative either so I could get out quicker and get home to my baba - Don't get me wrong it wasnt nice being able to feel the tube moving up and down my throat or being aware of this thing moving around inside my stomach but it made it a hell of a lot quicker. Dr. couldnt see anything other than that my tummy was distended (but I could have told him that!) and only one biopsy taken :/ had understood that he was taking more than one - o
Ohmyword

Ohmyword

1

My Last Doughnut.... :)

It will be with great joy this lunch time that I sink my teeth into my last ever glutenous doughnut - I only have 13 and a half hours left of eating this stuff that has made me sick for so many years I CANT WAIT! Scopy tomorrow, not sure what to expect but looking forward to the first day of the rest of my life   .....just to add to my ever growing list of suspected gluten induced symptoms .... It doesnt happen very often but when it does it leaves me really disorientated and sick to my tum
Ohmyword

Ohmyword

0

2 Gluten Days To Go :)

6th May: A beautiful warm day - had family round for a bbq (those willing to brave the dreaded chicken pox anyhow) and only 2 gluten eating days to go - hoorah - I have tried to enter other posts but my STUPID computer keeps deleting my entries! also I have 2 entries sat off with draft marked on them and dont know how to get it off anyhow.....I feel dreadful headachy, achy in general and tired, tired, tired. Im not sure if I have had a reaction to something Ive eaten today but my throat feels r
Ohmyword

Ohmyword

1

Quicky

Health visitor seemed to have a knowledge of gluten intolerance/celiac and seems to think that babys 1 off mucous nappy is a reaction to my change in diet and not to worry about it... still not heard back from breast feeding association (although tbh this is the first time I have sat down today and not checkked emails)- fx that they think so too. As a complete turn around to my normal toileting issues I now seem to be constipated however Im feeling less bad and more old 'normal' today although
Ohmyword

Ohmyword

0

....and It Continues ...

I was slightly annoyed with our beautful sunny day yesterday because of ....well, basically the sun ... it was too, well ... sunny! the light hurt my eyes...I drive around with my sun visor down (and have done for years) because the light is to bright - the computer back light is turned real low (DH keeps highering it up); and driving at night wow who needs drugs! the lights from street and headlights - its like looking at starbursts with rays of light shooting from the centre.   My DH will be
Ohmyword

Ohmyword

0

The Grief Of Getting Better?!

For this post, a "smiley" with tears gushing out both sides of the face is what I needed. One would think that getting better would be nothing but happy, but I found that grief engulfed me.   For years I had lived in the fog and I knew nothing else. Then one glorious day, the fog cleared. Then the realization struck. I had lived in the fog for 25 years! Another fantastic day, I had more energy then I knew what to do with. I learned that I had lived with extreme fatigue for 25 years. During t
1desperateladysaved

1desperateladysaved

3

Bread Question

I was wondering if anyone on here had a good gluten free bread made from scratch I ask because I wanna try a homemade version   like one that would be good for sandwiches.
Tabz

Tabz

2

Free Shipping @ The Gluten-Free Mall

Open Original Shared LinkMany people with celiac disease of gluten sensitivity will be happy to know that The Gluten-Free Mall now offers free non-frozen food shipping within the 48 contiguous states on orders over $75! Hopefully this will make gluten-free food more affordable for those who need it most. Use coupon code "free123" and be sure to Open Original Shared Link.
Scott Adams

Scott Adams

0

Celiac Disease And The Thyroid Gland

If you have Celiac Disease, it is important that you know a bit about your thyroid gland, as you are at a high risk of autoimmune thyroid disease. Experts estimate that between 8 and 12% of people with Celiac Disease have, or will eventually develop, problems with their thyroid gland. Conversely, between 3 and 5% of people with autoimmune thyroid disease will develop Celiac Disease. I was diagnosed with Hashimoto’s Disease (hypothyroidism) in 2003, seven years before my Celiac diagnosis.   The
jebby

jebby

0

Hmmm Weepy Eyes To! Really? Is There No End To This!?

21st April - So then, let me add weepy eyes to my seemingly neverending list of symptoms - previously endured with barely a second thought! - everything it seems, can be linked back to gluten. I look terrible the dark circles under my eyes seem to be darker than ever, although headache and heartburn not as bad. But head fog back cant keep simple things in my head and keep losing what im saying in conversation. Im going to go visit the Dr's this week to get checked out for Diabetes (due to my in
Ohmyword

Ohmyword

0

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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