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Celiac Disease & Gluten-Free Diet Blogs

USA Recalls

Circle K Nuts, Seeds and Nut Mixes Recalled Due to Undeclared Wheat

A variety of packaged nuts and nut mixes made by Azar Nut Co. in El Paso, TX have been voluntarily recalled by Azar Nut Co. due to wheat not being declared on their labels.  The recalled products include: Power Snacks Honey Roasted Sunflower Kernels Circle K Sweet & Spicy Mix Circle K Get Up Trail Mix Circle K Honey Roasted Peanuts Select Cashews Halves & Pieces Honey Roasted More info is at: fda.gov
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Harvesting hookworms and a new Discord Server for the Group

This week I've been reading up on self supply of hookworms, not just to save money but to ensure access. Covid made getting larvae difficult, and here in Canada it's hit or miss once the cold weather sets in. Larvae don't like temps below 5C and they can die in transit because of the cold. Providers usually resend for free but that still means being symptomatic for the duration. I once spent an entire winter gluten-free because of a DOA shipment. I've been shopping supplies on Amazon - a bi
dixonpete

dixonpete in Hookworms

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Hookworms

Mid-September Health Update

A few weeks ago I had a bad day marked by considerable GI distress. It was bad enough I figured I must have lost my hookworm colony. Immediately I went gluten-free and was better, so I thought I'd have to pony up earlier than I expected for my next inoculation. After a further 4-5 gluten-free days I reintroduced meat and gluten expecting the worst, but there was nothing, everything was still all good. Since then I've been on a regular gluten diet and I've had days of perfection where there
dixonpete

dixonpete in Hookworms

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USA Recalls

Kirkland Signature "Gluten-Free" Chicken Tortilla Soup Recalled by Kettle Cuisine Due to Gluten

A September 9, 2023 letter from Kettle Cuisine: Source: costco.com
Scott Adams

Scott Adams in USA Recalls

2
Hookworms

Detailed study of hookworms as therapy calls it feasible, safe, and well-tolerated

https://doi.org/10.1093/ibd/izad110  Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the way for future full-scale randomized controlled trials regarding efficacy. The study used 30 Necator americanus larvae. The self-treatin
dixonpete

dixonpete in Hookworms

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Hookworms

Getting hookwormed - Step by Step

So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually hookworms) themselves, and can answer any questions you might have. John Scott is the leader of the group and has been a hookworm host for ye
dixonpete

dixonpete in Hookworms

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USA Recalls

Stonewall Kitchen Issues Allergy Alert on Undeclared Soy, Wheat, and Peanuts in Peanut Butter Maltballs (6oz.)

Celiac.com 08/16/2023 - Stonewall Kitchen of York, Maine is recalling a limited amount of their Peanut Butter Maltballs (6oz.) because the product contains undeclared allergens: Soy, Wheat, Peanuts. People who have an allergy or severe sensitivity to peanuts, wheat, and/or soy run the risk of serious or life-threatening allergic reaction if they consume these products. This product was distributed through Stonewall Kitchen Company retail stores located in Maine, New Hampshire, Massachusetts
Scott Adams

Scott Adams in USA Recalls

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Withdrawal

Withdrawal

How bad can gluten withdrawal get? My head hurts so bad and I'm so dizzy I can't stand up. Coming up on 2 weeks gluten free. I'm getting worried 
shawn s

shawn s in Withdrawal

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Hookworms

Should celiacs try hookworms?

I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life.  Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet missteps and likely contributes to the development of a variety of other health conditions. Hookworms help with the primary expression
dixonpete

dixonpete in Hookworms

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USA Recalls

Frito-Lay Issues Allergy Alert on Undeclared Soy and Wheat in Doritos Nacho Cheese Flavored Tortilla Chips Distributed in Pennsylvania

Frito-Lay has issued a voluntary recall of a limited number – less than 7,000 bags – of 14.5 oz and 1 oz Doritos Nacho Cheese Flavored Tortilla Chips that may contain undeclared soy and wheat ingredients from spicy sweet chili tortilla chips. Those with an allergy or severe sensitivity to soy or wheat run the risk of illness should they consume these products. The products covered by this recall were distributed at retail stores only in Pennsylvania and other outlets, such as foodservice lo
Scott Adams

Scott Adams in USA Recalls

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Hookworms

Side effects of Helminthic Therapy

I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to maximize my bang for my buck. I'm on the large side so I probably contributed to me not having problems with this strategy. Outside of the ini
dixonpete

dixonpete in Hookworms

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USA Recalls

Richin Trading Inc. Issues Allergy Alert on Undeclared Soy and Wheat in Black Melon Seed

Richin Trading Inc. of Alhambra, CA is recalling its 6 ounce and 12 ounce packages of Tim Heung Yuen brand black melon seed because they may contain undeclared soy and wheat. People who have allergies to soy and wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled products were distributed nationwide in retail stores. The recalled products were packed in plastic bags and can be identified by UPC 715685190013 and UPC 715685190020.
Scott Adams

Scott Adams in USA Recalls

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Hookworms

What is it like to be on hookworms?

I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods were making me sick I could have become 80-90% better, but I was still damaged and always a crumb away from being devastatingly ill. With
dixonpete

dixonpete in Hookworms

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Hookworms

Other Helminthic Therapy blogs

Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN8L0so01_lbcXA#Blogs Which begs the question, what is the future for this blog? What I've done so far is talk about my past, how I got
dixonpete

dixonpete in Hookworms

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Hookworms

Helminthic Therapy videos

The Helminthic Therapy Support Group on Facebook maintains a repository of all its gained knowledge in the form of the freely available Helminthic Therapy Wiki (Google it). In it there's a listing of videos that the group has found most useful: https://helminthictherapywiki.org/wiki/Helminthic_therapy_in_the_media#Featured_videos I did a YouTube search for Helminthic Therapy and found a bunch more, many of them from people from the general public who did their own research. I noted factual
dixonpete

dixonpete in Hookworms

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Hookworms

Still a happy gluten camper

In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming gluten. She's derived other benefits (remission from colitis) but she never took the step of trying gluten. Makes me think I'm braver tha
dixonpete

dixonpete in Hookworms

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USA Recalls

Food Recall of Van’s Gluten Free Original Waffles Due to Potential Presence of Undeclared Wheat Allergen

Van’s International Foods (“Van’s”) is voluntarily recalling certain packages of Van’s Gluten Free Original Waffles, because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The affected products are labeled with Lot Code #UW40193L and have an expiration date of 1/19/2024 with UPC 0 89947 30206 4. To identify the Lot Code, expiration date, and UPC, please
Scott Adams

Scott Adams in USA Recalls

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Hookworms

I'm back in remission

I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but as all celiacs know, risking a gluten exposure is not for the faint of heart. Back in the day I've had some hella violent reactions where I bec
dixonpete

dixonpete in Hookworms

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Hookworms

So far so good

The oatmeal yesterday didn't cause any reaction whatsoever. I decided to take the plunge this morning and ate a whole Wheat Thins cracker. If anything would unambiguously cause a reaction that much gluten would. In the past pre-hookworms an exposure 1/10th that much would have had me sitting on the toilet for a couple of hours. If I don't react by the end of today I'm going to assume I'm good to go. That would imply that for me the ramp up to a non-celiac state after inoculation with the la
dixonpete

dixonpete in Hookworms

1
Hookworms

Re-thinking my reintroduction to gluten

As I've written about before, the last time I ran out of hookworms (or perhaps effective hookworms) was with my first cycle spanning early August 2018 to the first week of March 2019. That end point was when I had to go back on a gluten-free diet. Putting those dates together that's 5 months for 2018 and 2 months of 2019. I was slow in testing gluten that time (because celiac!) but it's reasonable to think I could have gone on a regular diet after 40 days post inoculation. That would have m
dixonpete

dixonpete in Hookworms

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Hookworms

Day 27 post inoculation

Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days are over. From now on I'll aim for a 5-month cycle between inoculations.
dixonpete

dixonpete in Hookworms

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Hookworms

Blast from the past

Yesterday I got sick. Twice. Just like I remember being sick in my celiac pre-hookworm days when I was still eating gluten. A colonoscopy cleanse level sick. I had been eating gluten-free this month letting my critters grow and mature into their adult forms so I wasn't sure what happened. Then I remembered I had eaten a new oatmeal. I didn't say gluten-free on the front but I figured a little gluten probably wouldn't phase me. Well I figured wrong. I checked the ingredients list and yep, in
dixonpete

dixonpete in Hookworms

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UK Recalls

Snaktastic Gluten-Free Sea Salt Lentil Bites misdeclared as gluten free

The below batch of Snaktastic gluten-free sea salt lentil bites has been misdeclared as gluten free. This product is labelled as gluten-free but contains gluten, this may make the batches unsafe for consumers who are allergic to or intolerant of cereals containing gluten. Allergen(s): Cereals containing gluten Product Identification: Snaktastic Lentil Bites – Sea Salt; Pack Size 113g Batch Code3139; best before date 13/02/2024 Country Of Origin: United Kingdom
Scott Adams

Scott Adams in UK Recalls

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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