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Celiac Disease & Gluten-Free Diet Blogs

Gluten Free[dom] Day#1

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.   I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much i
Live2BWell

Live2BWell

1

Patience, Patience.........

Mine is wearing thin. I still don't have test results from the stool samples, and don't expect biopsy results until early next week sometime. It's been really hard to sit around and NOT dwell on the possibilities. And if those come back negative, what next? I still need to address having the rest of the Celiac Panel done (they only tested for tTG IgA), but other than that, and asking about some of the 'high' reports on my CBC, I'm not sure what the next steps are.   I just know I'm not fee
ohsotired

ohsotired

0

I Survived My Colonoscopy.

This is intended to show the lighter side of my experience with having a colonoscopy. Please bear in mind it was NOT funny as I was going through it, but in retrospect, it's hilarious to me. I hope you find amusement in it as well.   First of all, let me say that I was terrified - TERRIFIED - of having this done. Other than a skull fracture when I was 4yo and having a baby, I've never been hospitalized or had any type of procedure done for anything. So I was freaked out about the prep. I wa
ohsotired

ohsotired

0

Colonoscopy, Igg Food Intolerance, And Feeling Ick

I ordered a home IgG food Intolerance kit from a medical/home-health supplier, and I was shocked at the results (and suggest anyone getting one! If I could I'd get the one that tested for more intolerances, but it was too $$$) Anyway, the test was for 21 foods - Gluten, Wheat (excluding Gluten), Oat (excluding Gluten), Rice, Whole Milk, Whole Egg, Shell Fish Mix (Shrimp, Crab, Prawn, Lobster, Muscle) Nut mix (Almond, Cashew, Hazelnut, Peanut) Soya Bean, Cocoa Bean, Mushroom, Yeast, Chicken, &amp
Live2BWell

Live2BWell

1

Blood Test Results

Got a phone call from the GI office today.   Blood test results.......(drum roll)...............normal. No further details on what normal means or what all they tested for. I'm going to swing by tomorrow and pick up printed copies for my records and see what exactly they tested for.   Stool samples were dropped off on 7/21 so still waiting on those results.       UPDATE: I got the printed copy of the results. It doesn't appear that they ran the entire Celiac Panel. All that show
ohsotired

ohsotired

0

Gluten Hangover Lingering...

I accidentally consumed gluten almost three weeks ago and I'm still suffering with the serious consequences. It usually takes me a solid month, depending upon the amount consumed, to fully recover from being "gluten-poisoned"...so it's been a long and challenging few weeks, to say the least. I am a super-diligent gluten-free eater and am constantly researching new products, stores, and restaurants that are safe, etc. - so to have been caught so off guard this time around, is really disappointin
Aimee Eiguren

Aimee Eiguren

29

Silly Yak

I rode the Silly Yak and avoided a gluten attack. As I suspected and expected, my midwest jaunt to spend quality time with my grandma (and mother and aunt- all of us traveled from both coasts and gathered in one tiny house with my grandma's mentally disabled brother- in support of my grandma's terminal diagnosis with cancer) did turn out to be ultra celiac-friendly. The marvelous trip to Bunky's Pizza (Madison, WI, area) where I indulged in fabulous gluten-free pizza-I chose shrimp and swapped
brendygirl

brendygirl

0

Gi Visit

Today was my visit with the GI doctor. I think I like this guy. He asked a lot of questions, and took a lot of notes. I told him that there's a history of IBS in my family, as well as Diverticulitis and Ulcerative Colitis. I also told him that I'd been 'diagnosed' with IBS about 8 years ago. He asked me "How were you diagnosed?" I must have had a funny look on my face, because he then asks "Were there any tests run?" I said, "No, she listened to me for about five minutes and then said 'Oh y
ohsotired

ohsotired

0

Gluten-free Information

Stepdaughter has been here for a few days and is already gone to church camp. Her dad went with her to make sre she can get to the right gluten-free foods etc. I think we did ok with her meals while she was home though. She eats buddig lunch meat and block cheese and lays potato chips for lunch, which she seems happy about and is what she eats at her mom's... and for dinner we had bean soup, pot roast, spaghetti, and taco salad so far.   Now, to be honest, I know for a fact I contaminated her
toddzgrrl02

toddzgrrl02

0

Pasta With Italian Sausage

My new favorite Gluten Free Pasta: Open Original Shared Link One of my favorite meals ever... Pasta with sauce and Italian Sausage. That was pre-celiac-diagnosis. Since finding out I have to live gluten free I have spent countless hours researching brands of sauce, tasting different brands of gluten free pasta, and usually avoiding sausage, unsure if gluten might be hiding in the spices or even the casing. All of this includes shopping at 9 different stores and on a few online sites as well
Beth41777

Beth41777

0

A Brief Intro

My blog here is probably going to be random, as I have a personal blog elsewhere and I also run a blog networking site (unrelated to Celiac) For now, my blog is going to be jots of this and jots of that - info, random venting, progress (or lackthereof)   As of today, July 10 2008, I have been actively "sick" for almost 2 years with a Mystery Diagnosis of sorts Although I've had GI problems since I was very young, symptoms were managed with tablespoons of mineral oil (for the "big C") and I
Live2BWell

Live2BWell

0

Doctor Visit

(I'm a little behind in posting, so this has been backdated.)   So I saw a doctor today. He seemed really receptive to the things that I was telling him, but he said to me "well if you think it's gluten related then stop eating it for a while and see what happens." I asked him about the possibility of that affecting test results and he says "Oh they can still run the tests." So obviously he doesn't know much about Celiac Disease testing, or the disease in general. We did no testing of a
ohsotired

ohsotired

0

Make It Stop!

Six days back into a glutenous diet, and last night I wanted to die. With a capital D. I ate a ceasar salad for dinner that had chicken, feta and parmesan cheese, portabella mushrooms and croutons. I also had a couple slices of foccacia bread with asiago cheese on it. Within 30 minutes of finishing dinner, I had a stomach ache. Within an hour, it felt like there was a knife twisting around inside my stomach. By 11pm, it was lower abdominal pain and it was BAD. I felt nauseous, was freezing col
ohsotired

ohsotired

2

My Rant!

Hi all, I'm only really doing this so that i can vent what has been building up for quite some time now!!!! I have been slow and lame, it has taken me 4 years to realise that when it comes to doctors it is either really hard or basically impossible to find one that actually listens to their patients. It is my own personal opinion that they are just there to say hi, put things in your ears, check your throat, say it's all in your head, but, have this script anyway!! This is the treatmen
samantha79

samantha79

2

Day 4

I felt better today than I have in years. My mind was clear and I could actually concentrate on something for more than a few minutes. Absolutely no gas or cramping, and I had more energy too. The only kink in the chain today was that Auntie Flo is in town so I had my usual back cramps and a slight headache. I had bad night sweats again last night, despite having the A/C set at 75 before going to bed. That makes three nights in a row that I got up in the middle of the night to change out of a
ohsotired

ohsotired

2

Gluten Free Day Three

Being gluten free seems to be helping with my issues. I felt pretty good today. No stomach cramping or bloating, just a bit of C - but I actually went to the bathroom today, and that's a major accomplishment sometimes! (Ok, TMI, but pretty much everyone here goes through this, right?)   After doing some more research here, I've realized that my cystic acne issues popped up at about the same time my GI issues did. I'm thinking there's a connection, although I can't say I've seen an improvement
ohsotired

ohsotired

0

Review: Larabar

I thought I would add some reviews of the gluten free items I try. I know there are other blogs out there that do this, such as Open Original Shared Link (and they seem to do an excellent job) but I thought I would do this just in case there are any other people out there that have 'texture issues' like I do. (If you don't know what that means, then I'm guessing you don't have it - I can try a protein bar and love the flavor but have a major issue with the texture - too cakey, too gooey, etc - w
ohsotired

ohsotired

0

A Long Beginning.....

It's already been a long beginning, but it's about to get longer.   I'm not diagnosed celiac disease or even gluten-intolerant, but I've done enough research to suspect that one of these things is what's wrong with me. I plan on using this blog as a way to gather my thoughts in one place, maybe keep a food journal and review various gluten-free products I try, as well as, hopefully, help someone else along the way. It's a scary, lonely road (mine has been, anyway) and if I can reach out and h
ohsotired

ohsotired

2

My Emails

I contacted Koda Farms and they told me and the store I buy it from that their Mochiko sweet rice flour is G.F? Did you learn otherwise? I just got Diagnosed and that is one of the brands that I eat every day , my main symptom is severe abdominal psin which is not gone yet. The box said that our product is suitable for G.F diets. What do you think ? is their regular rice not G.F or made in a facility that is contaminated with gluten. I do worry about cc my goal is to eliminate every trace pos
amandasmommy2

amandasmommy2

1

A Disastrous Luncheon

This article humorously depicts a disastrous luncheon I attended. It brings home the message that living gluten-free can be challenging! Today I went to a business women’s power lunch.  Now I am not a businesswoman and could give many examples of my failed attempts at staying-home-and-making-millions-while-I-do-the-laundry-and-change-diapers, but I had better not.  However, I attended the luncheon after a generous invitation from a successful acquaintance who thought I’d meet the right pers
Jennifer Arrington

Jennifer Arrington

7

Quick Question

Hello -   I am shocked at the prices for Gluten-Free foods. It seems really unfair. I can understand organic food because it's a choice to buy it or not, but gluten-free food is not a choice. Any suggestions out there? I just paid over $4 for a box of pasta and $7 for a bag of pretzels. Give me a break. What a market.   Sorry to sound whinny.
Bogaert

Bogaert

4

On The Prairie

Tried the prairie bread everyone loves, and I'd give it 3 stars out of five. The texture and flavor are not as good as the frozen white Kinnickinnick (Kinn)breads I eat. (I have found out how to prepare the Kinn bread just the way I like it. I either defrost it in the microwave or fry it in the pan.) Anyway, the prairie bread earned three stars because it is edible and the seeds make it seem healthy in some way. I can only eat one slice- no sandwich. I got glutened the first night at my
brendygirl

brendygirl

0

What's Going On?

What's up with this new blog format? I don't like it at all.   We have a restaurant near us called the Fish City Grill. I had eaten there a few times when they first opened up a couple of years ago, but they had very little gluten-free items on the menu. My daughter went there yesterday and found that they now have a gluten-free menu. She spoke with one of the "higher ups" in management that was visiting from Chicago who has celiac disease herself and she said they are trying to add more a
Mosaics

Mosaics

1

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  • Blog Comments

    • dixonpete
      Well how about that!

      John Scott pointed me to Wiki entry about the effect of diet on hookworm egg production: https://www.helminthictherapywiki.org/wiki/NA_incubation:_very_detailed_method_by_Alana#Promotion_of_egg_viability_by_dietary_manipulation

      Nothing presently in my diet was mentioned in the article, but it does bring up the obvious point that my diet would naturally affect the health and wellness of the hookworms that live in my gut. Something to think about.

    • Scott Adams
      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      Yes, there are several gluten-free certifications out there (one is the GFCO), and the usual standard they claim is 10ppm, however, recent findings indicate that even the GFCO's higher standards may not ensure that foods they certify are gluten-free:

       

      @Lauraferleo Simple Mills may have issues and is included in this article:

       

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