-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Celiac Disease & Gluten-Free Diet Blogs
Feelin' Down Today
I was sitting at work today watching my co-workers chow down on yummy pumpkin muffins for breakfast, and pizza for lunch (free from supervisors)... and I had to excuse myself to go cry. Some days, I just don't know how to handle things. I think... "why me?" Even though I realize I am not alone, and I certainly don't want to end up on my death bed by 45... it's very difficult for me to handle. I am trying to focus on the positive side of things. I am very lucky that I discovered this in myMore Gluten Sensitive Than Ever
This is quite upsetting. The longer I'm on the gluten-free diet, the more sensitive I'm getting. Is it because my system is no longer accustomed to compensating for the gluten influx, or is it just the progression of the disease? I guess I'll never know since I discovered my celiac disease before I suffered many symptoms. Within the past several months I've noticed that when I get glutened my stomache starts to rumble shortly after I've eaten and then it's off to the toilet for me. INew Dna Test Results
Whew! I got here just in time to save my blog from dropping to the second page. So...I've been telling my mom, who has had all kinds of intestinal problems and other celiac symptoms for years, that I think she has celiac disease. It stands to reason, does it not, that she would have it since two of her four children are confirmed CDers and one other has loads of symptoms, but hasn't been diagnosed? She got tested last year with a blood test and her doctor said she didn't have it. IBlood Tests
Well, I went to to the doc Thursday, got the blood tests on Friday. The lab said it would be 3 to 5 days before the tests were back. Hopefully they run the right tests. I went in, turned in my paperwork ect, and then they said "I'm sorry, it will just be a few minutes. We have to make some phone calls regarding your tests." Immediately I'm thinking "Oh great! Am I the only person on the planet who has ever requested this test?" Well, come to find out, from listening in on the phone conveWent To The Doctor Today!
I went to see my GP today. She was very understanding, although I could not tell if she was being true or just pretending. Most importantly, she agreed to run the tests for celiac, along with a slew of other tests. She also referred me to a gastro (my insurance requires a referral) and gave me a prescription for the DH. She said that the rash could be "fungal", to which I answer, fungal infections don't last 10 years! She did admit that until we get the results of the blood test back, fBad Day #3
My name is Melisa. I am 25, married, and have two beautiful daughters, one 5, one 3. I am a fulltime dietetics student and a classically trained chef. Although I have not been dx'd yet, I have been suffering from celiac for 10 years. It was mild for the first 5, but the past 5 years it has been out of control and ruling my life. Since it was only recently that I put the pieces of the puzzle together to come to the conclusion of celiac, I hope to document my symptoms, feelings, ect daily. T*groans*
My problems are starting to scare me. I keep getting worse quickly enough that I swear by the time I actually get the answer to what it is I am going to fall over dead...April 10, 2006
Wow, time has gone fast. I had no idea it had been so long since my last entry. Diet has not gone well this month. I've had some side effects of prednisone and I felt terrible and didn't really care what I ate. I'm paying for it now. I'm off prednisone now and my appetite has all but vanished. It's all I can do to eat one meal a day. Yesterday that's all I did. Because of eating gluten, my joints are horribly stiff, sore and swollen. I just keep going in a circle, I do well, get tPain, My New Favourite Word*rolls Eyes*
Yeah i feel like whining about the pain in here, too. I dont know why I even have this blog, but all I can add (so I dont forget) is that its been 52 days that I have been sick and getting worse...March 03, 2006
uncle had massive heart attack today..his daughter is one of the cousins who found the celiac in the family. wonder if his heart attack was from years of damage to his system. he's not that old. my rheumy appt. went much better yesterday. he still refuses to believe that diet has anything to do with it but I know better lots of vegetables and fruits lately have been good for me.My Celiac Story
Hello every one my Name is Kim I am 34 and I am 92 pounds and 5'2" (Thanks Celiac) I guess I have had Symptoms All my Life, I just didn't know it and was told it was all in my head I was just a nervous Kid There's nothing wrong with the Food Your Being silly, Humm Well I guess There was Something Wrong, Now as an adult I have Sever Food Phobias I was Convinced I was Poisoned , I couldn't be the First one to eat anything out of an unopened Package, Take the First Swig of Soda of a bottle Well IAnother Another Day
This morning I dont feel as good. O well. Last night was a yucky night. I had the worst worst acid/indigestion i have had in a loooooong time before bed. I also got more significant sores on the roof of my mouth and this morning i have small white bumps on my tongue. I had tea last night "yogi tea", they cant guarntee the whole gluten thing, tho they siad that they are gluten-free. They mention cross contamination or something. Had an really urgent BM this morning, feeling gassy right now, kindaAnother Day
Today I woke up and felt kinda tired, but not too bad. I was tired cause i couldnt fall asleep, i was restless. Considering that i only got 6 hrs mabey and my overactive bladder kept me up once agian, i wasnt as exhausted as i would have thought. I even hiked through the snow storm this morning to work and didnt feel too tired when i got there. My stomach was bad this morning. Really constipated this morning, it was brutally painfully. Stomach bloated and gassy and sore. Not a pleasant BM, hardA Turning Point
Today is day 18 gluten-free. An d today i feel is the turning point day. Despite the fact that i didnt sleep well due to my f^cking over active bladder, i had more energy than yesterday. My stomach symptoms were as followed: not as much indigestion/acid, gut twisting aches after eating (pretty intense), gas, pain in lower stomach and lower chest area, quesy feeling. However over all my symptoms were marginally less. I had some pressure headaches today, not as bad tho. Right now my stomach is soA New Day
Today I had an edoscopy for celiac. I am waiting for the results which should be in by tuesday. Yesterday night I had some chicken soup that my mom accidentally added instant powder broth to that contained a small portion of wheat products. About 1 hr after i ate i was really bloated and had gassy pains and discomfort. This morning I had a semi-diarrhea poop and followed by and uncomfortabl wormlike pencil thin poop. Usually i dont poo two days in a row but i did and they were both uncomfortableAnother Day, Gastro. Dr. Visit, Yesterday/today
Yesterday I had an app with the Gastro. Dr. He review all my blood work and other test and said they were normal, accept for a reflux present in the upper GI test. He told me I didnt look "sick" which made me feel confused and frusterated because i am "sick". I was weigthed again yesterday and weighed 94.5 lbs. I has some more energy in the morning,m although as the day preceded, i felt sicker and my enrgy ebcame less and less. I have a schedualed Upper GI biopsy tommorow to test for celiac andDay Continued
Didnt go back to bed until 5:30, woke up at 11:00, i feel tired now becasue i didnt get enough sleep. No sense re writing how i feel emotionally. I have bad constipation this morning. Feels liek rocks in stomach...doesnt seem to be moving. I had a BM before I ate Breakfast ( homemade, gluten-free toast with almond butter and strawberries) Felt alittle sore in stomach after iate, but the symptoms subsided within 1/2 hr. My energy level today is kind of low, because i didnt sleep well. I have beI Am Hating My Life Right Now
Its 2:15 am, i am feeling reaslly restless. My body is crying out for some activity. I feel what i call SKinny fat. I feel like I am skinny but fat at the same time. I feel soft and i wanna workout and move this doggone ( this word may have been changed by editors*) body. I cannot concentrate on my school work partially to whats going on inside me but also because the blood isnt circulating as it did when i was exercising.I feel it is somewhat crucial to move and not be a bum all day long. If onEnergy Is Getter Better
Today is a good day. Some of my energy has returned and I have been able to clear some things off of my desk. I have gotten about a week behind on things, due to the severe exhaustion I have been having. Then I took a bath in my deep whirlpool tub. It felt so great and I really needed the jets on my poor spine. Tonight my sweetie (husband) and I are going to Buffalo Wild Wings for dinner. I am really looking forward to that. Tuesday I see the specialist about my vision. If he has no answAnother (beep) Morning
This morning I didnt get out of bed until 10:30, i went to bed at 11:30, SO THERES 11 hrs of sleep. I feel like ive slept 1 hr. Before bed last night I had some banana muffin thing and peanut butter. It went down fine. My eyes feel so dry right now, like they do every morning. I havent had a BM as of yet this morning. My body felt achey this morning, but i stretched and it seemed to take the aches away. Last night after the chicken i had terrible bloating and gas. I took a Gas-X and it seemed toI Hate This
I feel like crap more so emotionally than physically. I wish I could just stay under my covers. I hate my life, this is unfair and I feel like crying every second of the day. my energy isnt as terrible right now, but iam not expecting it to stay this way because of past experiences. try hard to stay positive is most difficult when you can really beleiev that your life is going to eventually go back to normal and that you will feel better. How the hell do you tell yourself that everything will woI Hate This
I feel crap ( this is not the word i wanted to use) more so emotionally than physically. I wish I could just stay under my covers. I hat my life, this is unfair and I feel like crying every second of the day. my energy is as terrible right now. I tried to make crepes but failed miserably, i had some and was disgusted with every bite, i only like the peanutbutter on them. Last night I had some banana bread and pb, didnt sit well, felt sick, went to bed though so itwasnt so bad. I dont want to go-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Blog Comments
-
1 hour ago, Scott Adams said:FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
This one page has all the information your friend needs.
https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)
And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
https://www.instagram.com/p/DEdMswtzMNo/- dixonpete and Scott Adams
-
2
-
FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
- John Scott and dixonpete
-
2
-