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Celiac Disease & Gluten-Free Diet Blogs

Every Day Is A Learning Day It Seems ...

20th April - I have dragged myself through this beautiful spring day feeling horrendous, trying to comfort my two boys (it looks very much like they have chicken pox) whilst feeling like I just want to curl up under my duvet in the dark and sleep through the next 3 weeks - of course I would fail my gluten challenge if I did this ... So after a gluten free day I have just consumed my quota for the day and look forward to the misery of tomorrow with my poorly boys whilst my husband goes to work
Ohmyword

Ohmyword

3

Its Looking More Than Likely ....

Well ... where to start...   15th March 2012 - After spending the previous 2 days in agony (Left hip and lower back) and being unable to walk I took myself off to the doctors to be refferred back to physio .... again -At Drs - Physio appointment secured (for 3 weeks time!!! - not happy considering I have a 2.5 yr old and very heavy 6 month baby) after mentioning as a side issue that I thought my milk sensitivity was getting worse the Dr. looked at me curiously ...'What milk sensitivity? and ho
Ohmyword

Ohmyword

1

Was That This Too?

19th April - Headache from hell, tummy is well and truely stodged feel like I have food sitting right up to my throat - How did I do it, how did I manage to battle through everyday feeling like this? Its a beautiful spring day, the sun is shining but Im exhausted cant motivate mysellf to go outside .....got me thinking was the dandruff, the itching and the mouth ulcers this too? I can feel ulcers starting in my mouth again and havent been able to stop scratching my head and wrists (normally its
Ohmyword

Ohmyword

0

CYE: Celiac Youth of Europe

CYE: Celiac Youth of Europe is an umbrella organization for all celiac youth groups in Europe and consists currently out of 17 participating countries. They meet once a year and initiate a project to raise awareness about CD or help improve the life of coeliacs. One of these annual projects was the Bulletin Beat the Wheat. Beat the Wheat: The Bulletin is a tool for informing coeliacs about various topics. A normal bulletin therefore encompasses articles about travelling, recipes, diagnosis sto
Scott Adams

Scott Adams

0

Backing Off. I Am To Have No More Foods That I Have Antibodies For!

Here I go again into territory I have not yet conquered. The challenge: to eat only foods, I had no measured intolerances to, for 6 weeks. These 10 good foods included 5 protein foods, 2 vegetables, and 3 fruits. The test had been for about 85 foods and of them, I had 10 left. I also may eat any food not tested.   I heard the average American only eats 12 foods over and over. For the test, I strived to take in most of the 85 items. Some I already knew I have a problem with, so I avoided them.
1desperateladysaved

1desperateladysaved

7

The Good, The Bad And The Ugly. Nutrient Test Interpretation

I learned a few things from a Functional Medicine nurse I visited with the other day.   The adrenal glands manufacture a substance called cortisol which helps the body deal with stress. On the day of my nutrient absorption test, I tested as not having the nutrients to build cortisol. My system was depressed having had to fight celiac disease for 30 years. This depressed was a physical thing. It didn't even consider any emotional trauma I was suffering. If you have celiac and are depressed, you
1desperateladysaved

1desperateladysaved

0

Celiac Issue's

Hello so Im very new at all this stuff and am looking for some help. I have many question to ask of people in need of help. Well as I said I was recently diagnosed with celiac after many many years of being very sick from pnemonia every few months to headaches, very bad stomach pain, diaria,costaption and just not feeling like getting out of bed. I have always been about 120 and I looked healthy but just didnt feel it. Now that I am trying to follow this glutin free diet which hasn't been easy
Melissa.77

Melissa.77

2

Scary Issue Yesterday

I'm not sure what was going on but yesterday I ended up having some severe confusion about 7 or 8pm. I really think it had everything to do with eating malted milk balls. I'm not yet diagnosed with celiac though. I am definitely calling my GP tomorrow to get an appointment this week for the bloodwork needed to hopefully diagnose me one way or the other. I was quite irritable yesterday evening as well. I'm still feeling a little on edge but otherwise my mood seems fine. As a side note, my left bi
learning2cope

learning2cope

0

Possible Celiac Here

Hi! My name is Brittany, I am 28 years old and just recently started researching Celiac Disease and how it can affect people. I have come to find out that most of my various health problems can be related to and caused by celiac disease. Here is a list of what ails me currently:   bipolar disorder type 2 diabetes neuropathy in legs severe generalized anxiety disorder "palmoplantar pustular psoriasis" which I know believe is actually dermatitis herpetiformis hypothyroidism high cholestero
learning2cope

learning2cope

0

Back In The Fog. Hard New Plans.

I had been living with a nice clear mind for at least a couple of months. I put up with brain fog for nearly 30 years, but now I know something better. Now, when I have to deal with it, I want back out. A taste of the good life makes me more desperate to gain a clear mind back again.   Since I started my rotational diet and a couple of supplements, one to heal my gut, and enzymes to help break down my food I had a nice clear mind. I don't just know what I did, but there are a few options.
1desperateladysaved

1desperateladysaved

1

Let's Talk About Celiac Disease And Infertility

One of my favorite Celiac Disease-related pages on Facebook is that of the University of Chicago’s Celiac Disease Center. One of the first “tidbits” that I read on this page, after discovering it last fall, was the following statement: “Women who have experienced persistent miscarriages or infertility without a known medical cause should be tested for celiac disease.” I had no idea that there was such a strong association between Celiac Disease and infertility until I read this sentence.   I h
jebby

jebby

0

The Gluten Contamination Elimination Diet (Summary Of Dr. Fasano's Recent Paper)

As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “no gluten ingredients” brownie which I had prepared in my own gluten free kitchen for a potluck.   Just last week, Dr. Fasano and colleague
jebby

jebby

15

Busy Restaurant Not A Good Sign

Just a funny for the day. We were in Arizona recently and facing the grueling task of finding something to eat for lunch. I.say grueling because I was with family that treat my diagnosis as if I do it for attention. We spotted a cute place that was quite busy which is usually a good sign. However, once seated I realized most were waiting for food and there was one frantic waitress. Having worked for awhile in the occupation I could empathize so we just waited patiently. When it came time to orde
Colleeney

Colleeney

1

Do I Hide It Well, Or What? 30 Years Of Untreated Celiac: Piece Of Cake?

Yesterday, my family went to a prayer meeting for a friend with vasculitis, an Auto Immune disease. He has had very obvious problems and was hospitalized twice and once it was for a very long time. The prayer meeting was patterned after James 5. (Bible)   After arriving home, my husband talked with the children if they thought a prayer meeting like that is a good thing. They affirmed that it was a good thing. Then he asked if we should have one. They could not imagine who in the family w
1desperateladysaved

1desperateladysaved

2

Hemochromatosis + Fructose-Free, Gluten-Free Diet = Fun Times

I'm a 35-year-old woman with hereditary hemochromatosis. I'm supposed to have zero problems til menopause, but in my 20s I had severe iron overload.   After the bloodlettings, things went along OK. But now I'm diagnosed celiac and gluten-free...and my celiac anemia tendencies are removed, allowing the iron free rein in my system. It's running in my system like toddlers after cake.   So I feel like crap. Yay. Thanks, genes.   BUT I also have crazy high blood sugar after eating. This is
Chaff

Chaff

2

Non Celiac Gluten Sensitivity

Yes, this is a real diagnosis, and it effects between 6 to 8% of our population, or approximately 18 million people. Many doctors and patients are unaware that it exists. Most of the papers on this topic have only been published in the last 2-3 years. The British Medical Journal published a case study and review of gluten sensitivity in their November 30, 2012 edition. It is the first case study I have come across in a major medical journal in which a patient self-diagnoses based on information
jebby

jebby

4

Celiac Disease And The Innate Immune System

I know that this title sounds very boring (so much so that I doubt that many will read any further than this). But, if you can bear with me, there is some fascinating research involving the role of the innate immune system in reactions to wheat. Trust me!   The role of the immune system is to fight infection. There are two main types of immunity: innate and adaptive. The adaptive immune system is highly evolved and involves antibody formation. The ability of our bodies to “remember” previous
jebby

jebby

0

Yes, It Is "safe" To Raise Non Celiac Kids Gluten Free

I’ve realized that I have not written for almost a week and I think I am okay with this. When I started this blog two months ago, I anticipated being able to post about once a week, so I think I am on track. Between working full-time, running, and trying to squeeze in some sleep, the main reason that I have not had time is that I have four small children. I am trying my best to cherish this phase of our family life, as I know that someday I will have four teenagers at once!   None of my kids
jebby

jebby

4

Chiken Wings

I found a place in redondo beach California where they sell gluten free pizza and chicken wings I I ate three times there and it's real good no problems after eating it the name of the place is fresh brothers pizza they are great in service. Same at pf changs they have one of the biggest menu fir gluten free
Ronnie310

Ronnie310

0

Cross Contamination Ocd!

Next week will be my 4th month gluten free and I have only recently discovered how badly my body reacts to any cross contamination.   The first time it happened (and last time! so far..) I had made my dinner completely gluten free. Then I made my daughters lunches for the next morning, some rice pilaf and cut up meat, and while cutting up the meat some of the rice fell onto the counter. I picked it up and threw it away. Later sat down to watch tv and snack on some gluten-free pretzels and the
gancan

gancan

3

The Effects Of Gluten On The Brain And Nervous System

Most of the articles about gluten and celiac disease I’ve came across in the media have focused on symptoms related to digestion, such as abdominal pain and bloating after eating gluten, and damage to the small intestine. The bulk of the gluten-related discussions on the celiac forums I’ve perused concern questions and answers regarding the diagnosis of celiac disease and tips for following the gluten free diet. There have been several papers published over the last few years about the neurologi
jebby

jebby

2

So Many Different Symptoms I Don't Know What Is Going On

Hi there,   So I need some help if anyone wouldn't mind just taking a sec to give this a read. I have been suffering with problems with my stomach for over two years now. I had been on the waiting list in Ireland with the hospital to put the camera down for a year and a half but have now moved to Scotland so waiting to get tests done here.   The problems started in a part of my life which was very stressful. The symptoms started with just random foods causing my tummy to swell and a feeling
carolannjane

carolannjane

5

Eosinophilic Esophagitis And Celiac Disease

Eosinophilic Esophagitis, also known as “EE,” is a gastrointestinal disorder that, like Celiac Disease, seems to be increasing in frequency of diagnosis. I first heard of EE when I was in my pediatric residency. I worked with a Pediatric GI specialist who seemed to diagnose all of his infant patients with gastroesophageal reflux (GERD) with EE. While I was learning about EE I had no idea that my dear husband had the very same disease!   My husband was diagnosed with EE in 2009 after having sev
jebby

jebby

0

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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