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Celiac Disease & Gluten-Free Diet Blogs

Acceptance Is Coming

I have so many things I need to check for gluten! Mostly vitamins and remedies. I took a Hyland's Calme/forte tablet in the middle of the night when my son kept waking me up and I was unable to get back to sleep. Within a few minutes I had a stomach ache that kept me awake... the opposite of what I was hoping for. lol   About half of my vitamins are obviously gluten-free. I'll have to look into the rest.   I really gotta look into the bacon... that's killing me. lol   I'm getting les
nvsmom

nvsmom

2

Starting gluten-free

I "think" I went gluten-free yesterday... not sure. This is what I ate:   m1 - 2-3 egg bake w/ red pepper, onion, spinach, spices and rice milk, 2 slices chicken bacon m2 - no snack - out of house running a field trip. m3 - 3-4 egg leftover m4 - apple m5 - bratwurst, sauerkraut, peas, cottage cheese, yams m6 - bowl popcorn and spices   Today I double checked the bacon I ate since I was going to have more at breakfast, and it has smoke flavour... that often has gluten! I guess I need to
nvsmom

nvsmom

0

Grrr

Today I'm just annoyed. I'm mad that I've had this for 30+ years and didn't figure it out... and that my doctor had no clue even when I went to see him about it as a child.   Grrrr.   Apparently pain is NOT normal for most people! Most people don't have pain moving or eating... I feel quite ripped off!   Grr.
nvsmom

nvsmom

0

It Is Celiac - Without A Doubt

Bummer.   I went for my appointment today and I was half expecting the doctor to say I was fine and then I'd have to decide to go gluten-free on my own... but with the back-up plan that I could probably abandon it some day... Nope.   I definitely, without a doubt, have celiac.   The home test I did, with not quite enough blood, gave me a very faint positive after increasing my gluten for about 2 weeks. I wasn't sure I had it but it really looked like I did. I kept saying to myself, w
nvsmom

nvsmom

0

Results In But Dr Won't Give Over Phone

I called my Dr's office today because I was starting to strongly suspect that my results were in but they were normal (or very close to normal) so my doctor didn't call me... he's done that before. In fact, that seems to be pretty standard practice for drs around here.   Anyway, I was right and the results were in but they won't release results over the phone. So I had to make an appointment to get them; I go in on Wednesday now.   So since the doctor didn't call me to make an appointment,
nvsmom

nvsmom

0

More Waiting For Test Results

I'm bad at waiting. really. I thought since I am going a little nutsy about finding out if I'm celiac, I would buy another Biocard home test and retest my IgA tTg to double check if that faint line really was a positive test. Maybe I somehow did it wrong... maybe I second guess myself too much. Anyway, the store was out of tests! they only had them for a special promotion, probably for celiac awareness month... I dunno.   Ugh. I was counting on that to help me stop obsessing. Instead
nvsmom

nvsmom

0

Glutening Sounds Bad

I've been lurking around the forum and I gotta say that the idea of being "glutened" after being gluten-free scares me. I'm still waiting for my blood tests, so I'm not even 100% sure I'm celiac yet (just a positive IgA tTg home test), but the symptoms I do have don't seem as bad as the symptoms many people have.   Yes, I get bloated, often to the point of looking 5 month pg again. I get stomach aches a few times a day but I can usually fake my way through them and no one has a clue. I get
nvsmom

nvsmom

0

The Gluten Free Fad

I have noticed within the last year or two that the gluten free diet is becoming more and more popular among non-Celiacs. It’s been on the news, celebrities are talking about it, and major restaurant chains are advertising new gluten free options. However, I have really started to doubt the sincerity of some that are embarking on a gluten free diet. I am not trying to discourage anyone from trying a gluten free diet. In fact, the more people that go gluten free the easier and cheaper my food
Angela Strand

Angela Strand

10

Sicca Syndrome

I've had Sicca for some years now and as it progresses your organs get less hydration. I wonder if there is a connection to the whole breathing, blacking out things. Do lungs get dryer and that could be effecting them? I guess it's time for more research. Will give me something to do while waiting for the tests.
GF Lover

GF Lover

0

Cardiologist

Had my appt with the cardiologist yesterday. Taking two routes. Stress test, looking for an electrical problem. Second is lung capacity testing. That one worries me most. My breathing is progressively worse, the weakness in muscles is coming on very quick. Heart rate is 56 - 60 bpm and doesn't accelerate quickly enough causing dizzyness, visual auras, un balanced and blackout. Can only walk at a leisurely pace now, no hills. Out of breath within minutes of exertion. Using an inhaler no
GF Lover

GF Lover

0

Impatient For Test Results

I had my celiac screen test yesterday and I am soooo impatiently waiting for the results! I had a positive tTg home test so I'm pretty sure I have it but I want confirming positive blood tests before I drop so many of my favourite foods!   The celiac screen up here in Alberta is for tTg IgA and EMA and from what I understand, if I get positives on that then I'm in the club.... and if I get negatives then I am most likely in the club... LOL   I'm just not great with sticking with dietary c
nvsmom

nvsmom

0

New To Gluten Free Diet Please Help

HI,   Since my blood test was inconclusive and I am due to have an endoscopy in July I am told it may be negative too since I have been gluten free for a month. I feel better since stopping the gluten but I went out for dinner for the first time on Friday and order skirt steak and a baked potato. I told the server to just grill the steak no sauce as it did come with one. When I started to eat it there was some sort of seasoning because it did not need salt. Needless to say my stomach acted up
Nonna2

Nonna2

2

Catching Up. Been Gone And Slacking.

Today- water, milk, cocoa pebbles, salad with lettuce, bacon, egg, green onion, radish, gluten-free ranch dressing, cheese. Culvers choc scoops with hot fudge.   I was sick to my stomach this morning.   Yesterday - cocoa pebbles, mcds fries, cheseburger no bun, gluten-free toffee ice cream.   Thursday - omelette with ham, cheesem, mushrooms, onion in galena, il. Wonder roast chicken, gluten-free garlic mashed potatoes in box. Salad.   Thursday i was sick as a dog with big D.   Wed - c
trayne91

trayne91

0

Could It Be Celiac?

I've suspected for a few years that I could be celiac. I wasn't having crippling pains or running to the toilet but I often get a stomach ache about 20 minutes after I ate, I always take extra fibre or things don't move, and a few days a week I get painful bloating in the evenings. It's been like that since I was a child. About 30 years ago, I remember my mother taking me to the doctor who said,"she's one of those people who gets a stomach ache after she eats." Even as a child I remember thi
nvsmom

nvsmom

2

Weekend Food

Saturday -bbq chicken on grill, plum, gluten-free brownie, banana, cocoa pebbles, milk, salad, radish, green onion, gluten-free dressing, cheese, gluten-free ice cream, asaragus   Sunday - gluten-free brownie, banana, quiche, eggs, spinach, bacon, cheese, dijon mustard, salt, pepper, asparagus, polishes   Friday - brats, lays bbq stacks, cauliflower, broccoli, banana, chicken soup, chicken, carrot, green onion, mushrooms
trayne91

trayne91

0

Bit Better Today But Oh So Tired

Today my itchy belly and sore back are gone.   Breakfast - banana Lunch - homemeade chicken soup - chicken mushrooms celery carrots Banana Supper - nachos - tortilla chips refreied beans hamburger sour cream, fresh onion, gluten-free salsa, mexican cheese.   Went kayaking but couldnt paddle far. Got too tired too quick.   Walked 1.3 miles. Got anxiety. Always do when i get hot or tired. Charlie horse in left calve that never happens.   Could fall asleep now. Must exhausted and have
trayne91

trayne91

0

Okay, Figured The Blog Out.

Today I decided I have to start keeping track of what I eat and what is happening with my body so I can go back and make decisions about what I ate and any reactions that may have been caused by certain foods. After going gluten-free initially, I felt great for about 3 or 4 days and then I felt like I ran into a brick wall and was totally exhausted for day, but also had insomnia as well.   That passed and I now realize that one day I feel great and the next day mediocre and the next day terri
trayne91

trayne91

0

Low Heart Rate

I had the tilt-table test, was fine, just mild syncope. But, and this always seems to happen, I find out today when I went to doc about the thyroid that during the test my resting heartbeat was 58 and highest was 98.   So, my doc ruled out any thyroid changes that might have cropped up and instead said, because of the slow heart rate, your going to a cardiologist to see what, if anything, is going on with your heart.   So that's where I stand with the whirlwind of specialists I've seen and
GF Lover

GF Lover

0

Portland Mayor Declares "Gluten-Free Beer Day"

Last month, Portland, Oregon mayor Sam Adams declared May 16th to be Portland's “Gluten-Free Beer Day”, falling within what has come to be considered Celiac Awareness Month by many celiac organizations. The declaration seems to be borne of equal parts enthusiasm for Portland brewing culture, and concern for celiac disease awareness. A number of gluten-free brewers attended the official ceremony at Portland City Hall, including Omission Beer, Deschutes Brewery and Harvester Brewing. Sam Ada
Gryphon Myers

Gryphon Myers

1

Opinions Should Be Created Equally!

It really upsets me that if I offer a different opinion from the norm(on the forum) that it gets completely brushed off by some posters who must think their opinion is more valuable than mine. Just because someone has a diagnosis with a condition unrelated or related to celiac, doesn't make that diagnosis wrong or frivolous.   I do not go looking for things that are wrong with me. Alot of my conditions are actually found by accident.   Because a particular issue seems to bother some, I
GF Lover

GF Lover

0

Left Arm Too

Yup, the EMG on the left arm also shoes carpel tunnel. Now I match which is good because I love semetry.   I gave my daughter a hair day at the salon for her birthday. We are going today, I'm very excited for her and to spend some time with her. She works 14 and 10 hours days 6-7 days a week so we don't get a chance like this very often. Happy Memorial Day to everyone. Be well.
GF Lover

GF Lover

0

Ocd Continued

So I finally finished the sunroom. It looks fantastic and I haven't let man nor animal in yet. You know how a husband can wreak a room just by walking thru and the dogs leave nose prints on the windows. I just need the rest of the day to enjoy then the doors open. I can hardly move tho. Every muscle, joint and even skin hurts but it's worth the price. When I recover I will do the kitchen. Have an appt this afternoon or would go to bed. Good thing is I am holding off the depression but at
GF Lover

GF Lover

0

Ocd An Inconvenient Truth.

Interesting thing happened on the way to my depression. I was in bed. (of course) and all of a sudden, with my head under the covers crying, my husband rolles in with the carpet shampooer. Dang, kicked out of bed. I believe he did it intentionally, I know I would have.   Anyway, so I'm walking thru the house and WHAM, the sunroom needs spring cleaning. I mean head to toe. If you are OCD like me you know what an undertaking this can be.   Starting with the ceilings, the fan and light, on to
GF Lover

GF Lover

0

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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