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Celiac Disease & Gluten-Free Diet Blogs

Eating Gluten-Free at a Japanese Restaurant / Hibachi Grill

My husband and I decided to go out to a Japanese steak house-hibachi grill. After over an hour of searching, trying to find out "what can I eat" I finally gave in and called the restaurant. I'm new to celiac disease, and wasn't sure what I could eat at the restaurant. When I called, at first I was a little leary--the young woman on the phone tried to tell me that they didn't cook with any soy sauce. I knew this to be untrue, but I felt a little more reassured when she said "If you have a specif

Amy Yates

Amy Yates

Old Hands, Old Pans

My aunt is nearing one hundred and one. My mother-in-law lived to be one hundred and two. If my maternal grandmother were alive today, she would be one hundred and twenty. They were all great cooks without recipes. My mother in law always declared her secret...old hands and old pans. Her Primo, Numero Uno prize winning dish was Potato Pudding or "kugel" as it is also known. It was light and fluffy inside and had a hard crisp outer crust with magnificent crunchy corners. We all vied for the four

Carol Frilegh

Carol Frilegh

What do the Specific Carbohydrate Diet and Cirque de Soleil Have in Common? They Both Require Balance!

What do the Specific Carbohydrate Diet and Cirque de Soleil have in common? They both require balance! It frustrates me that even doctors are under the misapprehension that the Specific Carbohydrate Diet is a No Carb or Low Carb diet. It is fairly limited in carbohydrates (grape juice, carrots, a few carbs in the dry curd cottage cheese) for the first few days. The Specific Carbohydrate Diet starts with a brief introductory diet that clears the decks and notifies bad bacteria that change is

Carol Frilegh

Carol Frilegh

Gluten-Free Cinco De Mayo Recipes & Tips

Since most Mexican food is naturally gluten-free, having a gluten-free Cinco De Mayo is not difficult. Watch out for additives and spices that may contain gluten. However, tortillas present the biggest problem. You will want to make sure to use gluten-free tortillas made from corn, rice or other gluten-free grains. Open Original Shared Link If you plan on going to a Mexican restaurant, make sure you are prepared. The Allergy Free Passport is a wonderful pocket guide that can help you make ed

Destiny Stone

Destiny Stone

New Food Intolerances And Sensitivities - Bleh

So, I am still trying to figure out what's behind this latest round of food sensitivities. I just ended my 9 days without eggs and 7 days without dairy or corn. None of this seemed to improve the recent breakouts on my face (covering my whole face, been going on for several weeks now). I'm starting to wonder if it might be a reaction to sufites -- I've seen some threads on this site mentioning it, and it could explain why I seem to be reacting to foods that don't necessarily group neatly into

ellie-lynn

ellie-lynn

Another Product Recall for April

Here is another product recall that just came to my attention-thought it important to share this information. Be safe & have a great weekend everyone! North Carolina Firm Recalls Brunswick Stew Products due to Undeclared Allergens Recall Release CLASS I RECALL FSIS-RC-026-2010 HEALTH RISK: HIGH Congressional and Public Affairs (202) 720-9113 Neil Gaffney WASHINGTON, April 29, 2010 - The Murphy House, a Louisburg, N.C., establishment, is recalling 414 lbs. of Brunswick stew produc

Destiny Stone

Destiny Stone

Help Me Understand

Help me understand this... My son was recently diagnosed with celiac. Prior to his diagnosis, I had never even heard of it before. I have been trying to track down the genetic origin in my family and have thus had genetic testing done. I have been tested positive for DQ2 and DQ8, but have had a negative antibody test result. If I understand this correctly, this means that I am not currently reacting to gluten, but could develop celiac at any point in my life. Also, does this mean that BOTH of

jenlex

jenlex

Not Sticking with the Gluten-Free Diet

Well, It has been 11 months since my hubby's diagnosis and what a ride. At first the doctor scared him straight...that lasted all of 3 months, and since then he has been going down hill and especially in the last 3 months. I cook gluten-free and then he hits a few Oreo cookies. YIKES! what is a person to do? If any of you have or had the same issue please give me some tips on how you handle it. I know the disease is his and he should take care of it, but let's be real here. He is not going

Nancy Kotlowski

Nancy Kotlowski

Is There an Acceptable Gluten Intake Amount?

If you’ve recently been diagnosed with celiac disease it is likely you’re still adapting to a gluten-free lifestyle. It may seem overwhelming at first to a celiac patient to begin the gluten-free road to recovery, as there are many challenges to face in adjusting to a gluten-free diet. One question celiac patients have is: "how much gluten is too much?” Even though the amount of gluten that can be tolerated by celiac patients is variable, there is yet a definite agreed-upon amount of gluten tha

Tina Turbin

Tina Turbin

Happy 40th Birthday Earth Day!

Today is the 40th anniversary of  Earth Day. What began 40 years ago today, is now a global movement, celebrated by people worldwide. The grind of the  day-to-day routine can make it easy for many of us to get caught up with our own problems and  not see the big picture, especially if you suffer from dietary ailments, like celiac disease. This Earth Day, make yourself feel good by making a difference to our Planet. You don't have to necessarily plant a tree, or clean a beach (although that would

Destiny Stone

Destiny Stone

Kudos to General Mills

I say Kudos to General Mills. I used to eat Campbell's Soups, but they have told me that not a single one of their soups is gluten-free, and despite emails from me encouraging them to convert their soups to gluten-free status (any soup without pasta or barley can be made gluten-free without a significant change in taste or texture), they have refused to do so. Phooey on them, I say!" General Mills, however, has taken my suggestions to heart. At first it was just a couple of the Progresso soup

Hallie Davis

Hallie Davis

Our First Gluten-Free Picnic

We had our first support group meeting. It was a picnic. Abby was able to meet some children her age. They grilled hamburgers and sausage. There were about five vendors there to present their foods. We got some great samples, and recipes that each family brought with their food. It was amazing to me how people connect having never met before. That common bond, just having someone that understands, or gets it. There are so many people that have never heard of celiac disease, or if they hav

Robin  Lucas

Robin Lucas

Everlasting Hope

As I have been struggling with health issues for nearly 6 years, I have lost and gained hope so many different times. My chronic states of malnutrition and starvation have taken quite a toll on my body. I suffer from chronic pancreatitis, a heart condition that leaves me with dangerously LOW blood pressure and a likeliness of fainting, my adrenal glands are insufficient, my liver damaged and my thyroid underactive. Through it all I have had several extended hospitalizations, depression and hope.

Trisha McGinley

Trisha McGinley

It's not just Gluten

For me, it's not just gluten! I have adverse digestive responses to yeast, vinegar and dairy as well. For 5 years I have been living a life free of these "toxins" to my body. It is quite challenging to avoid both the gluten & yeast (they so often come hand in hand). Most gluten free breads, pretzels and crackers have yeast! In honesty, they feeding tube has made "eating" much easier. However, my wish is to begin to eat, again, and get off this tube (currently I am identified as a "lifetime"

Trisha McGinley

Trisha McGinley

The Latest Gluten-Free Food Recalls

There have been a few major food recall's in the gluten-free community lately. In case you missed any of them, check out the list below. On Friday April 2nd, 2010, Glutino Food Group of Lawrence, Massachusetts recalled their "Raisin Bread" due to undisclosed "egg" in the ingredients. Friday April 2nd, 2010, Zatarain's Recalled their, "Original Dirty Rice Mix Package" due to unlabeled wheat and barley ingredients.The package comes in 8 oz size and has a UPC code 7142909535 and a "BEST BY" date o

Destiny Stone

Destiny Stone

Having a Bad Day at the Doctor's Office

Why do the nurses at the pediatrician's office have to be so rude? I love our doctor but her nurse stinks. She is rude and unconcerned. She always makes me feel like I am an over reacting mom. I honestly can't stand her today. I need to go and pray and it's a good thing we don't go in to see her until tomorrow, because I will have time to cool down. I just have had it with the run around with my daughter. It took over 2 years to get to where we are now, and you would think that they would jump

Robin  Lucas

Robin Lucas

Safe Food List At Vg's Foog Center

Yesterday my husband and I went to VG's Food center and found a gluten free food list at the service counter. I thought this was very interesting. I am always looking for new things that are gluten-free, and different places that are easier to shop. When I picked up the list I was surprised to find that it was 2 pages long. It was organized by category, product, brand, and put into two very easy to read columns.   Open Original Shared Link to go to their website. It also has a neat feature whe

Carri Ninja

Carri Ninja

Lately...

I have been Gluten Free for about 3 months now. I guess I should re-phrase...I have been aware of and learning to stay away from gluten-laden food items for about 3 months now. I think I am healing and my intestines seem to be getting back to "better." After a post on the forum regarding feeling horrible a few days after eating spicy foods when it had a chance to complete the digestive process, nightshades were mentioned. I have noticed that I don't seem to react to them as much, which gives me

PinkZebra

PinkZebra

Eating Gluten–Free is on the Rise

Dr. Peter Green and the Celiac Disease Center (CDC) at Columbia University is the only center in the US providing comprehensive medical care and nutritional consulting for adults and pediatrics with celiac disease. The cure: a gluten free diet. The CDC diagnoses and treats over 2000 patients annually. Children’s author Tina Turbin has been eating gluten free for about nine years, and has been actively researching, writing and promoting the need for increased awareness of celiac disease as well a

Tina Turbin

Tina Turbin

Please Help Me!

So this is my first time every blogging and i'm not sure how it works but i'm going to try my best. I'm fifteen years old and i've had the symptoms of celiac disease for almost four years now!I don't have celiac disease but i have an exremely high allergic reaction to gluten. Because of this, the docotrs couldn't diagnose me, but my mom and i figured it out for ourselves last summer. Now, i've been trying to stick to the diet and i really have been, but gluten keeps sneaking in! Of course, i hav

halabackgirl9129

halabackgirl9129

Another Day Of Feeling Icky

Icky is a word that I have been using lately. I don't like using it because it reminds me that I don't feel good, great, wonderful, or ready to take on the day. I have a co-worker that has a sixth sense. She can "see" the color in people. I call her my barometer. When I start to feel this "ick" I walk over to her and she takes one look at me and gives me the thumbs down or a so-so gesture (we work in a call center so she can't "talk" to me all the time.) Today was a thumbs down day. I finish

PinkZebra

PinkZebra

Gluten-Free iPod Applications

I recently learned that Triumph Dining has made an iPod/iPhone application based on their wonderful "Gluten-Free Grocery Shopping Guide." I thought, "How Wonderful!" and promptly bought it from the iTunes.com web site. Now I have this wonderful reference with me at the grocery store without having to lug a book along. But, you know what? Now that I've been gluten-free for 2 years, I pretty much know what's gluten free and what's not at my grocery store. And what I would REALLY like is for the p

Hallie Davis

Hallie Davis

Pancreas and Celiac Disease Link?

If I only knew I had celiac disease long before I was finally diagnosed. Now suffering celiac spru, gastroparesis and severe pancreatic insufficiency, I will never regain the full use of my pancreas. I am in the process of learning if the celiac or Lyme Disease was the biggest culprit in damage to my Pancreas. I'll keep you posted if anyone wants to know. My sons have been dianosed with Lyme and with the information on this site I've learned my youngest (16) may also have celiac disease.

Trish McCleary

Trish McCleary

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  • Blog Comments

    • trents

      Welcome to the celiac.com community, @Amiah!

      First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way.

      Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For instance, candida albicans. But the odds are it is nascent celiac disease and there has not been enough time for damage to the lining of the small bowel to manifest itself. 

      At this point, it might be wise to trial the gluten free diet and see if her symptoms improve. If they do, she either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). The GI symptoms of the two overlap significantly. NCGS does not damage the lining of the small bowel and does not have an autoimmune component so there are not tests for it yet. Celiac disease must first be ruled out. The other thing you can do is to have genetic testing done to see if she carries either of the two primary genes known to provide the potential to develop celiac disease. Almost 40% of the population have one or both of the genes but only about 1% of the population develops celiac disease so it is not really a diagnostic test so much as it is a "rule out celiac disease" test.

      I hope this helps.

    • Scott Adams

      Thank you for sharing this—your story is heartbreaking, powerful, and, unfortunately, far too familiar to many in the celiac community. Being dismissed, misdiagnosed, and blamed for symptoms for decades, only to later discover they were all connected to untreated celiac disease and malabsorption, represents a profound failure of the medical system. The permanent damage you’ve endured underscores how serious nutritional deficiencies can be, especially when they’re repeatedly overlooked or minimized. Your perseverance, self-advocacy, and willingness to use your hard-won knowledge to help others is incredibly meaningful, and I know your voice will resonate with people who are still struggling to be believed or properly diagnosed.

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