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Celiac Disease & Gluten-Free Diet Blogs
Eating Out
Yesterday night was the first time I'd ever eaten out since being diagnosed. (I'm not counting flavored ices at stands and stuff like that.) We (my dad and I) had a GREAT time at the Outback. The food was absolutely delicious, cooked to perfection (their wasabi -soy free - was GREAT!), but that's not what we paid for. The customer service was super, and a waiter that helped us figure out exactly what I could and couldn't have on the menu. He even went into the kitchen to make sure that they diThe Complex World Of Luxury Quality Safe Skincare!
As someone who is afflicted with Celiac Disease IEdema During Recovery
I was recently FINALLY diagnosed with Celiacs. I was suffering from malnutrution, and was very, very thin. Not too long after I started the gluten-free diet, I got "refeeding edema" and gained 25 pounds overnight. It's been 6 weeks and it hasn't resolved itself. My doctors are stumped and say "give it time." Did anyone else have this experience? If so , how long did it last? Is there any effective treatment? I am miserable and feel like an overstuffed sausage! ThankSA Gluten-Free Trip to Hershey Park
Last weekend all 5 of us went to Hershey Park. What an experience to have with a celiac! We did search the official website for Hershey Park and was happy to see they offered a page listing all the ingredients of the food at the park. There was one place that had gluten free hamburger buns. Over all we did have a good time but worrying about what a person can eat and be at an amusement park is difficult. Mostly because the one of the best parts to being there is munching on the junk food. IfOne More Day Till Friday...
Irritable at work today. Very tired in the afternoon. Not sleeping well. Some insomnia. I'm trying to go to sleep earlier but I have a hard time falling asleep then I wake up at least twice a night. This insomnia is new onset. Rash not too bad today. No BM yet. Sorry, I know it's gross but I want to track how I feel on a regular basis. Fruit and hard boiled eggs for breakfast. Pad Thai for lunch. 4 cups of coffee...I have to have my coffee.Rash Rash Go Away...
Tired of this rash on my back and chest. I'm not treating it until after I get tested. Very itchy!!!!! My head has been itchy as well. Belly is...not too bad. Some constipation. I also have a rash on my eyelids. And it seems that a headache is never far away. Gluten free is going to be quite an adjustment but if I will feel better then it'll be worth it.Information
I have celiac disease and I am looking for a nonalcohol gluten free beer and wine. I also am looking for a recipe for a home made pasta that can be made in a pasta machine. I did find out that Micky's sub and pizza place in Brainerd MN has gluten free pizza and it is very good. I as told that the Black Bear bar and grill has gluten free breads.Celiac Fever And Rash Any Ideas?
My daughter is 15 months and has had a fever running between 99 - 101 DEGREES for the past 2 months. She has also had a rash that is recurrent appearing on her ankle, back, belly and armpits. Our family has a history of celiac disease. We are already treating her as if she has it. Both my son and I are also celiac positive. What we are wondering is if she is having a reaction to the dog's food or my husbands food that is in the house that is not gluten free. So far we've been to an ENT (foMy Son
My son is 7 now. He occasionally {about 3 - 5 times a year} has random pain, fever and unexplained clumsiness. I see this and think of all the times I went through that as a child. I have had the Dr give him the blood test for Celiac and it came back negative. I know that blood test isn't always accurate. I am on a very strict gluten free diet. He eats gluten free - by choice - for the most part. It still worries me because of all the genetic problems that run in my family.My Story
"I'm sick but I'm pretty." I was always told not to complain because I had it good compared to my autistic cousin and aunt with Cerebral palsy. Agreeing with this I suffered year after year silently as I could imprisoned in my own body knowing something was wrong. So here it is about the real - sick - me. If you take the time to read this I thank you. There are several stories on this board that have been truly inspiring. I hope I can do the same for at least one more person! I haPersonal Story
Hello, everyone! This is the first time I've ever posted anything. The following is an exerpt from my final research paper for an English class. Let me know what you think. Around the beginning of the summer, I started having intense stomach cramps after almost every meal. I have always had lots of food intolerances (bananas, papaya, poppy seeds, eggs, pineapple, spinach, broccoli, you name it), but I was not eating any of those, and I did not know what was making me so sick. Food that I lovActual Results
Hello Blogland.... After a bunch of self research, I asked my doctor for copies of my test results so I can see exactly what he meant by "gluten intolerance". When I looked at the numbers I was VERY confused because it said my Gliadin SIgA was 7 Negative. I immediately posted a question and Korwyn from this forum responded saying that since my total IgA Serum is extremely low, it will affect the Gliadin number and may not be correct. So I guess that's good ~ for a minute I thought my doctoNew Diagnosis
Some of you are very lucky to be diagnosed early. i have suffered for 46 years only to finally find out I have celiac disease. i have had so many doctors think I am a hypochondriac.....because i don't really show the intestinal symptoms of celiac......just other symptoms. i have felt badly for 46 years! mind you, i have slowly cut a lot of foods out of my diet on my own because they did make me feel badly, so going on the diet isn't difficult for me, but didn't know if there was a common link beCurious About Cross Contamination
I've been reading online and on this forum about cross contamination and I'm wondering how serious I have to take this. I haven't been gluten free long enough to know if having flour in my kitchen is going to be hazardous. You see, my husband loves to bake ~ pies especially. Now I have very good will power because I really want to get better... so they are not tempting for me to be around... I won't eat any. But I'm curious if I could get "glutened" by being in the kitchen while he is makingFeeling Better Than Yesterday
I broke down and charged a new air conditioner yesterday. I was too hot, and I'm just a wimp... I swear, the heat makes me a different person. We put it in our daughter's room and put all the fish tanks in there (otherwise we'd have fish soup!) so now we have one room nice and cool to sit in when necessary. Plus it's keeping the whole house a little cooler (95 inside 104 outside). Sorry ~ this may not be the place to write about the heat... but it turns very physical for me. My intestineDoctors Appointment
Went to the GI doctor today. I am not sure that it was worth going or not. He is going to do a colonoscopy and an endoscopy. When he does the endoscopy he is going to do some biopsies also. Thankfully enough this doctor does not think that I am making all of this. However he did say that he does not think that I have Celiacs. But he still wants to look and make sure. I am just confused. By one side I am told "you have it" and the other side "you don't have it". It makesCrazy Heat
It's 12:30am and my house is down to 89 after a day of record highs (106) in Portland today. My husband is tired of hearing me complain. The heat really zaps me, and my feet are so swollen they hurt to walk on. It's making me super emotional, and I've been breaking down crying off and on all day today. Not so good at cooking when it's so hot, so I didn't eat much today and so I'm feeling a little woozy right now... and of course, I don't think I have anything in the house that is ready toIt Took Forever To Figure This Out! So Many Symtoms!
Hello, I am a new member. I have never written anything publicly before, but I want to share my experience on this board because I now know what is wrong with me! Here is my story. I haven't felt well for years. (As long as I can remember!) I am early 40's. As a child I had terrible allergies. I would swell up in huge red welts, rashes, asthma attacks, throat closing, all kinds of scary things. I NEVER felt well even as kid, but I was taught to be "tough" and I was, so I rarely complainedNot Happy
Ok obviously I am not sure what I am doing as of yet. But I have got to vent. I went to a doctor's appointment this morning. Obviously this doctor did not know the first thing about celiac disease. This doctor just sat and looked at me as if I had totally lost. He had the nerve to tell me that I had made all of this up in my head. This was after the fact that I told him I was diagnosed with celiac disease as a young child. Eventually I lost my cool with him. I told him that IGreat Family and Friends to Support Your Gluten-Free Diet!
Good Morning All! Well as good as it can be considering it is Monday. I have to tell you all how important a great support system is when it comes to celiac disease. As the only cook in my house for my husband I cannot tell you what a blessing it is to have friends and family who help you with this chore of love. We had a party to attend on Saturday and my friend went out of her way (it was her daughter's 13th b-day party) to make my husband the best pasta salad he has had in a while. We aA New Language...
Being this is my first blog entry here, I'd like to give a bit of my history so as to explain how I got here in the first place. I'm 40 now, and was just diagnosed Gluten Intolerant by my naturopath from stool samples, and bloodwork. Then I came right home and started my own research... that is how I found this space. I'm not sure if I'm a true "celiac", but I was told I was born with this. That makes sense to me too... as a kid, I was ALWAYS nauseas with lots of rumbly tummy aches.Gluten Free Vacation
Well, in less than a week I'll be going on my second gluten free vacation. My first one was to a camp. I had only been gluten free for about a month, two months then. I brought along a good deal of Ziploc bags filled with stuff such as beef stew, chicken, rice, and peppers, and a variety of breakfast foods. The camp nurse was wheat free, so she knew something of what I could and could not have. So that week I lived almost purely on beef stew and chicken and rice ...and some desserts I had broug-
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Blog Comments
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1 hour ago, Scott Adams said:FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
This one page has all the information your friend needs.
https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)
And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
https://www.instagram.com/p/DEdMswtzMNo/- Scott Adams and dixonpete
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FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.
- dixonpete and John Scott
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