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Celiac Disease & Gluten-Free Diet Blogs

A Diagnosis? Or Not........

FINALLY! A call from the GI doc's office (8/22) and the nurse tells me "it looks like you may have a mild case of Celiac Disease; try a gluten free diet for a few weeks to see how you feel." LOL I asked her to send me a copy of my results for my records, which arrived yesterday (8/25).   I was thinking that since this office didn't seem to know much about Celiac Disease, that maybe they didn't really know how to interpret the test results, and that by looking at them myself I'd see definitiv
ohsotired

ohsotired

3

Gluten Free Raleigh Blog

Ok here goes nothing... This is my first attempt at blogging so bare with me. I was diagnosed with Celiac Disease in June this year and have since been on a quest to find all things gluten-free in Raleigh, NC. There are some folks in this town already established in this realm and new folks coming on all the time. I would like to use this blog to highlight these people and to drum up exposure for them and hopefully draw others into the game. Most gluten-free blogs are mainly recipe blogs so I wi
GlutenFreeRaleigh

GlutenFreeRaleigh

1

I'm A Silly-yak

So much has gone on over the last several weeks. I've been busy, tired, and overwhelmed. Um, did I mentioned TIRED ?!   I really need to work on the whole sleep thing. I notice that when I take my sleep meds (prescribed) that I feel better the next day. I do not ache as bad, I have more energy also.   Sometimes, though, I do not take my sleep meds because I'm up too late doing my homework, and therefore don't have enough sleep-time. So I really need to make some tweaks in my schedule.
Live2BWell

Live2BWell

0

Waiting, And Feeling Worse

I had a follow up with my GI doc on Thursday, and he said that everything is 'normal' (colonscopy/biopsy, stool samples, blood work). We talked about the high values on some of my previous blood results and he said it was really nothing to worry about, but that we could do testing for B12/Folic acid levels. I pushed for the rest of the Celiac Panel blood tests, and his response was that the TtG IgA was the most sensitive, but that we would go ahead and do the rest of them anyway. (Gee, thanks.
ohsotired

ohsotired

13

Hey! I'm Not "Allergic" to Wheat!

Hey! I’m not “allergic” to wheat, barley, or rye; but I know that living without them takes a knack. The term “allergy” doesn’t really apply when my immune system begins its attack. I can get sensitive to other foods—so sly are my body’s defenses when they’re out of whack! I am, or have celiac (Greek for abdomen)— no allergy but an autoimmune disease, such that I cannot eat a type of gluten. So on my order, hold what’s macro-processed, please! Or better yet, I’ll bring my mea
Paul Jackson

Paul Jackson

8

First Week Gluten Free

I have been gluten free for a week. I was seriously torn with going gluten free, because I hadn't had a conclusive diagnosis that requires me to be off gluten. I was worried about feeling deprived, about feeling left out, about feeling.... uncomfortable with changing everything   Yet, I am dumfounded, this is easier than I thought it would be. No, not for the fact that it's "easy" but for the fact that even though I feel better, the change is quite different, and even though it's far from go
Live2BWell

Live2BWell

0

Not So Saintly (or Gluten-Free) Ham!

Food, food, food. The one thing I realize since being diagnosed with celiac disease, is how much time was not spent on food before. I must spend half of my recent waking hours thinking about what to eat. I have told myself that I am trying too hard and that all I need to do is convert my pantry to gluten free and stay with fresh, whole foods. Easy right? This has however, not been the case. It seems that at least once a week I am mistakingly adding some ingredient that I cannot eat. Tonig
Kimberly McGowan

Kimberly McGowan

0

Kim's Gluten-Free Artichoke Salad

Ingredients: 2 Large cans gluten-free artichoke hearts, drained 8 baby carrots, sliced lengthwise 10 asparagus stalks previously steamed until bright green and tender crisp 1 medium tomato ½ yellow or red bell pepper 5 fresh basil leaves, chopped 4-6 oz. feta cheese 4 tablespoons fresh grated Romano (or Parmesan) cheese Dressing: 2 tablespoons olive oil 1 tablespoon white wine or rice vinegar 1 tablespoon balsamic vinegar 2 cloves fresh pressed garlic ¾ teaspoon dry mustard Fresh groun
Kimberly McGowan

Kimberly McGowan

0

Bloodshot Eyes

My eyes have recently been bloodshot. Does anyone know if this could be a symptom of gluten or casein intolerance. I have had the enterolab results that say I am both, but have not had bloodshot eyes until just recently. Thanks for any help.
Lpa

Lpa

1

More Test Results - Normal

Got a phone call from the GI doc's office with test results from the stool samples and my colonoscopy biopsies. "Everything looks normal; no indication of parasites or colitis. Follow ups are usually scheduled for 4-6 weeks after the colonoscopy."   HUH?? All we've done is rule out some pretty bad stuff (for which I am quite grateful, don't get me wrong!). I still feel like crap, and now I need to wait 4-6 weeks before we talk about anything else?   I pushed for an earlier follow up ap
ohsotired

ohsotired

1

Gluten Free[dom] Day#1

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.   I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much i
Live2BWell

Live2BWell

1

Patience, Patience.........

Mine is wearing thin. I still don't have test results from the stool samples, and don't expect biopsy results until early next week sometime. It's been really hard to sit around and NOT dwell on the possibilities. And if those come back negative, what next? I still need to address having the rest of the Celiac Panel done (they only tested for tTG IgA), but other than that, and asking about some of the 'high' reports on my CBC, I'm not sure what the next steps are.   I just know I'm not fee
ohsotired

ohsotired

0

I Survived My Colonoscopy.

This is intended to show the lighter side of my experience with having a colonoscopy. Please bear in mind it was NOT funny as I was going through it, but in retrospect, it's hilarious to me. I hope you find amusement in it as well.   First of all, let me say that I was terrified - TERRIFIED - of having this done. Other than a skull fracture when I was 4yo and having a baby, I've never been hospitalized or had any type of procedure done for anything. So I was freaked out about the prep. I wa
ohsotired

ohsotired

0

Colonoscopy, Igg Food Intolerance, And Feeling Ick

I ordered a home IgG food Intolerance kit from a medical/home-health supplier, and I was shocked at the results (and suggest anyone getting one! If I could I'd get the one that tested for more intolerances, but it was too $$$) Anyway, the test was for 21 foods - Gluten, Wheat (excluding Gluten), Oat (excluding Gluten), Rice, Whole Milk, Whole Egg, Shell Fish Mix (Shrimp, Crab, Prawn, Lobster, Muscle) Nut mix (Almond, Cashew, Hazelnut, Peanut) Soya Bean, Cocoa Bean, Mushroom, Yeast, Chicken, &amp
Live2BWell

Live2BWell

1

Blood Test Results

Got a phone call from the GI office today.   Blood test results.......(drum roll)...............normal. No further details on what normal means or what all they tested for. I'm going to swing by tomorrow and pick up printed copies for my records and see what exactly they tested for.   Stool samples were dropped off on 7/21 so still waiting on those results.       UPDATE: I got the printed copy of the results. It doesn't appear that they ran the entire Celiac Panel. All that show
ohsotired

ohsotired

0

Gluten Hangover Lingering...

I accidentally consumed gluten almost three weeks ago and I'm still suffering with the serious consequences. It usually takes me a solid month, depending upon the amount consumed, to fully recover from being "gluten-poisoned"...so it's been a long and challenging few weeks, to say the least. I am a super-diligent gluten-free eater and am constantly researching new products, stores, and restaurants that are safe, etc. - so to have been caught so off guard this time around, is really disappointin
Aimee Eiguren

Aimee Eiguren

29

Silly Yak

I rode the Silly Yak and avoided a gluten attack. As I suspected and expected, my midwest jaunt to spend quality time with my grandma (and mother and aunt- all of us traveled from both coasts and gathered in one tiny house with my grandma's mentally disabled brother- in support of my grandma's terminal diagnosis with cancer) did turn out to be ultra celiac-friendly. The marvelous trip to Bunky's Pizza (Madison, WI, area) where I indulged in fabulous gluten-free pizza-I chose shrimp and swapped
brendygirl

brendygirl

0

Gi Visit

Today was my visit with the GI doctor. I think I like this guy. He asked a lot of questions, and took a lot of notes. I told him that there's a history of IBS in my family, as well as Diverticulitis and Ulcerative Colitis. I also told him that I'd been 'diagnosed' with IBS about 8 years ago. He asked me "How were you diagnosed?" I must have had a funny look on my face, because he then asks "Were there any tests run?" I said, "No, she listened to me for about five minutes and then said 'Oh y
ohsotired

ohsotired

0

Gluten-free Information

Stepdaughter has been here for a few days and is already gone to church camp. Her dad went with her to make sre she can get to the right gluten-free foods etc. I think we did ok with her meals while she was home though. She eats buddig lunch meat and block cheese and lays potato chips for lunch, which she seems happy about and is what she eats at her mom's... and for dinner we had bean soup, pot roast, spaghetti, and taco salad so far.   Now, to be honest, I know for a fact I contaminated her
toddzgrrl02

toddzgrrl02

0

Pasta With Italian Sausage

My new favorite Gluten Free Pasta: Open Original Shared Link One of my favorite meals ever... Pasta with sauce and Italian Sausage. That was pre-celiac-diagnosis. Since finding out I have to live gluten free I have spent countless hours researching brands of sauce, tasting different brands of gluten free pasta, and usually avoiding sausage, unsure if gluten might be hiding in the spices or even the casing. All of this includes shopping at 9 different stores and on a few online sites as well
Beth41777

Beth41777

0

A Brief Intro

My blog here is probably going to be random, as I have a personal blog elsewhere and I also run a blog networking site (unrelated to Celiac) For now, my blog is going to be jots of this and jots of that - info, random venting, progress (or lackthereof)   As of today, July 10 2008, I have been actively "sick" for almost 2 years with a Mystery Diagnosis of sorts Although I've had GI problems since I was very young, symptoms were managed with tablespoons of mineral oil (for the "big C") and I
Live2BWell

Live2BWell

0

Doctor Visit

(I'm a little behind in posting, so this has been backdated.)   So I saw a doctor today. He seemed really receptive to the things that I was telling him, but he said to me "well if you think it's gluten related then stop eating it for a while and see what happens." I asked him about the possibility of that affecting test results and he says "Oh they can still run the tests." So obviously he doesn't know much about Celiac Disease testing, or the disease in general. We did no testing of a
ohsotired

ohsotired

0

Make It Stop!

Six days back into a glutenous diet, and last night I wanted to die. With a capital D. I ate a ceasar salad for dinner that had chicken, feta and parmesan cheese, portabella mushrooms and croutons. I also had a couple slices of foccacia bread with asiago cheese on it. Within 30 minutes of finishing dinner, I had a stomach ache. Within an hour, it felt like there was a knife twisting around inside my stomach. By 11pm, it was lower abdominal pain and it was BAD. I felt nauseous, was freezing col
ohsotired

ohsotired

2

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  • Blog Comments

    • John Scott
      A video with researcher William Parker about Helminthic Therapy

      1 hour ago, Scott Adams said:

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

      This one page has all the information your friend needs.
      https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD)

      And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's.
      https://www.instagram.com/p/DEdMswtzMNo/ 

    • Scott Adams
      A video with researcher William Parker about Helminthic Therapy

      FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.

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