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Colleen's blog

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Writing A Book And Looking For The Celiac Story!


hcg

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I am new to blogging but I need some help from the celiac community. I have a background in psychology and I have set out to write a book. I have been diagnosed for 5 years (am 32 years old) after years and years of misdiagnosis. After being sick for most of my life...I feel I have only just 'awoke' to realize that I have much more mental and physical capacity than I did when I was trying to cope with life undiagnosed. However, this doesn't discount where I have been, on my quest and journey to health...what I have found is that we are offered many practical ways of dealing with a diagnosis, however the emotional issues that go along with having had a relatively easy yet elusive cure to years of chronic illness is what still gets me down on many days. I guess this is where I still feel alone...even though I know that I am not..I think it would help to read others honest, very honest stories about where they have been in their journey for health. So with that said, I am collecting stories, real people and real stories about what it was like before, during and after diagnosis. Also, it can be anonymous if you choose!

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Please email me with any questions or comments, concerns or suggestions!

 

helenacolleen@gmail.com

 

Best, Colleen

2 Comments


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quietmorning01
Hi, Colleen,

I can so relate to what you've written above. I have a blog here, and I do try to keep up with it, and will continue to do so. At this point I am not confirmed as being Celiac - I see my doc Tuesday to talk to him more about it. I'm positive for the biopsy, negative for blood work. I've been misdiagnosed a million times and can also give you THOSE experiences (nightmares).

You are welcome to PM me any time with questions or anything I can help with.
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hcg
[quote name='quietmorning01' date='Mar 27 2009, 02:24 PM']Hi, Colleen,

I can so relate to what you've written above. I have a blog here, and I do try to keep up with it, and will continue to do so. At this point I am not confirmed as being Celiac - I see my doc Tuesday to talk to him more about it. I'm positive for the biopsy, negative for blood work. I've been misdiagnosed a million times and can also give you THOSE experiences (nightmares).

You are welcome to PM me any time with questions or anything I can help with.[/quote]

Hello, yes..I would not worry about the blood work personally but I know it may help to have for insurance, etc. However, if I tried something that actually worked then I would have stuck with it. I found journals were I committed to eating more broccoli incase that would make me feel better, I likely ate it in a salad with croutons...ridiculous looking back. Anyway, I am interested in documenting those nightmares because I think it would help people realize that other people share the same experience and I think it could help people who are newly diagnosed not feel so alone in their quest for health while reckoning with their past. So feel free to tell me any or all of your story...

Be well!
Colleen
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