gfreegirl0125's Blog

I was recently diagnosed with "undiagnosable" Celiac Disease/Gluten Intolerance. My primary doctor had started me on a G/free diet prior to the testing so they were unable to get a positive with the blood work or the biopsy. Because I had reponded so well to the G/free diet they are confident with the diagnosis.

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For years I had been from doctor to doctor, speacialist to specialist. They all said it was IBS-C - Eat more Fiber - Exercise - I tried everything - I basically was ready to throw my hands up - I knew it was more than "IBS" - I was in pain, always tired, thirsty, depressed, I would ravish food almost on the verge of binge eating - I was never satisfied - I was always hungry. I didn't understand.- and then I had lost so much weight - I had always been small but I lost 11 pounds in a month and a half - so I knew there was something wrong and that there had to be an answer out there and so as a last resort I switched primary doctors. She did the routine physical and blood tests - My vitamin D levels were really low - but it wasn't my kidneys, wasn't diabetes, and then she asked if I has ever been tested for Celiac Sprue? I was like what is that? So she explained t ome what is was and she has a GI doctor that works in the same office and scheduled an appointment for me. In the meantime she said to try eating a g/free diet - well I FINALLY felt like myself for the first time in years. I had energy, I was moving my bowels more frequently -

When I went to the GI doctor she said that a lot of times doctors will not test patients for Celiac when the main symptom is constipation - and this leads to a lot of mis-diagnosed patients - Then she continued to tell me that she probably couldn't get a positive on me because I hadn't been eating Gluten but she still wanted to do the blood test, and the endoscopy. But regardless if she could get the positive she was sure that we were on to something - I was in tears in her office! For the first time I had answers! It was a blessing - All these years I would have done anything to feel better - And to think all that I had to do was change my diet -

I have not lost anymore weight since starting the g/free diet and my diagnosis - I am 27, 5'0 and 80 pounds - It is frustrating to not see the scale move - I fight for that 1 pound - I gain a pound - I lose a pound - the doctor tells me not to obsess over the scale that the weight will come - BUT - I am so unhappy with how I look - I don't fit into my clothes and that is frustrating!

I try to stay as positive as possible - The doctors say I should see the scale start to move in the next few months as my body heals and starts absorbing nutrients again -

I just wanted to share my story - if there is one person going through what I am going through - I just want to let them know I understand - It is frustrating, and there is so much information out there that it can be overwhelming - But feeling better and healing is worth all of it -