april anne's Blog

Hi,
I'm sorry that I can not help you. I have just joined this site. My daughter has now been sick 23 years with what now looks like celiac diease. She is to start IV infusions this week for her anemia. I am wondering if that was the treatment you got for your tiredness. If so, did the infusions make you sick? Did the infusions cause your nausea to start? My daughter is afraid to have the infusions and I am trying to gather info on the side effects of the infusions.
Thanks.
Worried mom, rochesterlynn

[quote name='rochesterlynn' date='Jul 25 2009, 07:53 AM']Hi,
I'm sorry that I can not help you. I have just joined this site. My daughter has now been sick 23 years with what now looks like celiac diease. She is to start IV infusions this week for her anemia. I am wondering if that was the treatment you got for your tiredness. If so, did the infusions make you sick? Did the infusions cause your nausea to start? My daughter is afraid to have the infusions and I am trying to gather info on the side effects of the infusions.
Thanks.
Worried mom, rochesterlynn[/quote]
sorry i cant help you either my anemia didnt reach that level. the nausea with me i dont understand why its so bad. with the constant tiredness went away for some reason i wish i knew what it was. so good luck to your daughter i wish i could help

I have had exactly the same thing. It has been going on for about two years. I didnt have any nausea when I was first diagnosed, just extreme tiredness. Now the tiredness is gone, but I have nausea on an off everyday. I am currently taking anti nausea meds, but not getting anywhere. I am back at the specialist this week, but not holding out much hope.

Look forward to anyone elses ideas.

Have also cut out all dairy, to no benefit.