pchick's Blog

Hello Blogland....

Celiac.com Sponsor (A13):
After a bunch of self research, I asked my doctor for copies of my test results so I can see exactly what he meant by "gluten intolerance". When I looked at the numbers I was VERY confused because it said my Gliadin SIgA was 7 Negative. I immediately posted a question and Korwyn from this forum responded saying that since my total IgA Serum is extremely low, it will affect the Gliadin number and may not be correct.

So I guess that's good ~ for a minute I thought my doctor was crazy and gluten was NOT my enemy.... but I'm glad someone had some good info for me.

The more research I do, the more and more I know this is my problem. I've read about people having the EXACT same problems as I've been dealing with... but it's such a mystery. You would think with 1 out of 100 having celiacs disease, they would routinely test for it somehow... and believe us, the patient, when we tell them we are not feeling good.

Anyway here are my stool sample results:

CS1: +3 candida, +1 saprophytic fungi

GP2: no parasites

MB2 Total intestinal SIgA: <11 (normal range is 400-880)

MB3 Intestinal lysozyme: 4 (normal is 6)

MB4 Alph Anti-Chymotrypsin: <14 (normal is <60)

FG1 Chymotrypsin: <3 (normal is >9)

no allergy to milk, soy, egg

F14 Gliadin Ab SIgA: 7 negative

Does anyone else out there have LOW IgA Counts??? What is your story? Anyone like this who is overweight as well? I would love to find folks who are dealing with the same thing so I can have a few people to really talk to. All my usual friends think I'm a little nutty. I tell them I can't have gluten anymore and they just say "bummer" and walk away. I could really use someone to talk to... maybe even someone from Portland OR...

I feel like an alien right now... I haven't gone out to eat in almost a month ~ and that was my big social time. Now I don't know what to do with myself... time to get working on craft projects I guess. But it gets lonely, even my husband, while very helpful, doesn't really understand what I've been dealing with for soooooo Long!!!

I really hope I get this all figured out and in time I'll feel normal, like a real person. Here's to hoping