Confusing Diagnosis Process
I have been aggresively trying to figure out what has been wrong with me for the past 18 months. I am 40 years old and have dealt with loose stools, fatigue and all over joint pain for 7 years. The results I have received so far are: vitamin d deficiency, vitamin b12 deficiency, esophagitis, chronic gastritis, duodenitis, delayed small bowel transit time, negative blood tests for celiac, postive gene tests for celiac, and the biopsies that were performed were negative BUT they were only taken from the 2nd portion of the duodenum and not the duodenal bulb where the inflammtion was noted. I have now been told by my 3rd gastroenterologist that he would like to do another upper endoscopy so that he can carefully inspect every inch and make sure he takes sufficient biopsies in ALL locations. My question is can you have negative blood tests, negative original biopsies with positive gene tests along with active symptoms and celiac be the problem? Going gluten free is a huge endeavor and I feel that I need to be completely sure before I go this route. I would really appreciate any input to this post. This whole process has been quite exhausting and frustrating.
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