katinagj's Blog

Just got back from the store and bought a bunch of different gluten free flours! I plan to do some experimenting this week and I'm excited to get started! My dad found out from my grandma that my great grandpa had issues with wheat. He never could eat it, his whole life. So I am wondering if he didn't have celiac disease. I mean back then I doubt anyone was really getting diagnosed. My grandma also has stomach and heartburn issues, similar to the issues I have and seemed interested in the gluten free diet. My blood tests came back negative, but I had already gone gluten free. I think I am going to wonder forever whether I have celiac disease or just gluten intolerance. Since I was gluten free for a week before getting blood taken, I wonder if it messed up the blood test. I wish I had thought about it before I went gluten free but I didn't realise at the time that it would bring inaccurate results from the blood tests...I think I need advice. Stay gluten free and forget about the endoscopy or go back on gluten feel terribly sick and get an actual diagnosis.... I'm personally very afraid to eat wheat. I've gotten glutened a few times since going gluten free, because of lack of know how with this diet. It is definitely hard to stay completely away from gluten! But I am working on it(hence the going out to buy gluten free flours today!). But really curious. Is it worth it to go back on gluten to get an accurate diagnosis? It seems everytime I get gluten I end up with a bad headache, bloated stomach, moderate to severe joint pain(to the point I have to walk with a cane), and a horrible searing burning pain just beneath my ribs on the left side. Can't decide if this is coming from my small intestine, colon, or if I have a stomach ulcer...but nothing but my allergies seems to cause the burning pain. It happens when I have cheese, corn chips and anything with gluten. I'm going to have to test out the corn and cheese... I might be lactose intolerant. Though I am hoping not!!