The Patient Celiac

Thank you so much for posting this, and the reference too!

I was put on a very similar diet by my doctor because I got muchbetter but not fully well on a GF diet even if I seem to only have NCGS. My blood panel negative, nurse here told me gluten would make no difference to me; so I went ahead and GF; felt much better but not "normal" yet; doc in Italy put me on a diet pretty much like the above - he calls it the "grandma's diet" minus rice and beans (I cannot yet tolerate them) and plus coconut flour - that's the only exception to that list :) It is helping me a lot. I hope it will work for you, too!

Best,

Maria

Hi Maria,

Thanks so much for reading and commenting. I am glad that you are feeling better on the "grandma's diet." It truly makes so much sense for us!

I am going to remember to check this. I haven't scratched out buckwheat, but it is on my lists of suspects.

How are you checked for healing?

Diana

I am going to remember to check this. I haven't scratched out buckwheat, but it is on my lists of suspects.

How are you checked for healing?

Diana

Hi Diana,

The "gold standard" would be a repeat biopsy, but I think that for a lot of us who decide to go this route, we would expect to feel a lot better and experience much less cross contamination.

Jess

I, too, was put on Dr. Fasano's diet. It has been wonderful. It isn't easy but I highly recommend it.

Thanks BitterGrad for sharing your experience. I hope that in the (not to far) future that Fasano's diet becomes the standard of care for newly diagnosed Celiacs. Had I known of this back when I was diagnosed, I would also have stuck with whole foods for the 1st 3-6 months.

Jess

I ended up banning buckwheat and discovered it was indeed a big problem for me.

I am checking my nutrient absorption to check healing. It seems reasonable to me. Great progress has been made the past 7 months!

I ended up banning buckwheat and discovered it was indeed a big problem for me.

I am checking my nutrient absorption to check healing. It seems reasonable to me. Great progress has been made the past 7 months!

That is such great news that you are feeling better and realizing that certain GF grains do not work for you. Quinoa really did a number on me in the beginning.

I've been gluten free for a couple of months. At first I was feeling great, but I wasn't eating any grains. I just couldn't swallow them. Then I added BRM "gluten free" grains and felt like some of my symptoms returned. Quinoa for example tore me up for days, and I couldn't figure it out until I read about cross contamination. I'm trying to go off grains again, but I feel like I'm starving all the time. I recently made rice and curry, when I read that curry could help with inflammation.

...It was not pretty, and I thought that rice was the culprit. Then I read the curry label and saw it was proceessed in a plant that processes wheat. I'm going to try rice again and see how it goes.

Hi NoPainNoGrain,
Thank you for sharing your story. It sounds like your intestines may not be fully healed yet (and, hence, not ready for grains). I hope that you find a diet this works for you.
Jess

NoGrainNoPain,

Last week I had some gluten free crackers that were made with quinoa (from my local health store) I have been in pain ever since, it took me a couple of days to work out what was making me ill. By that time, I had eaten them 3 days in a row. I have had terrible stomach cramps etc. When I read an article about the protein in quinoa mimicking the protein found in wheat, barley and rye I was astounded that it can be classed as safe for Coeliacs to eat. I know a few people have said they don't have a problem with quinoa, but it may be they don't have symptoms, but it still maybe damaging their gut.

I've been gluten free for a couple of months. At first I was feeling great, but I wasn't eating any grains. I just couldn't swallow them. Then I added BRM "gluten free" grains and felt like some of my symptoms returned. Quinoa for example tore me up for days, and I couldn't figure it out until I read about cross contamination. I'm trying to go off grains again, but I feel like I'm starving all the time. I recently made rice and curry, when I read that curry could help with inflammation.
...It was not pretty, and I thought that rice was the culprit. Then I read the curry label and saw it was proceessed in a plant that processes wheat. I'm going to try rice again and see how it goes.

Hello, our family started the Fasano diet today, and I would appreciate any tips, support or recipes that can be shared.  Our daughter with celiac has been strictly gluten free for 3 years, but her TTG remains over 2,600 and last week's endoscopy showed that she still hasn't healed.  Her Doctor recommended this diet, so we cleaned out our pantry, bought a deep fryer, a spiralizer, and a kit to grow herbs at home.  These first 3 weeks will be the hardest, since she is used to 3 servings of milk every day (she's 5 years old).  We are making lots of Popsicles out of juice and homemade potato chips.  Any tips on how to get through this diet?  Are dried spices allowed, such as ground pepper, cinammon stick, ground mustard?  We're assuming not but we're not sure.  Thank you.

Did your doctor give you the diet?  Here it is buried in this report:

Open Original Shared Link

I would say that based on the diet, spices are out, unless you grow them yourselves.  Stick to plain foods.  For example, I can not tolerate chili peppers.  So, I cook a batch of shredded park without seasonings.  The rest of my family can add chilis or sauces to their tacos, etc.  Boring but safe.  

Why does she have to give up dairy?  Does she have symptoms of lactose intolerance or is just her TTG super high?  

I have heard of this diet. I am planning to try it. The only issui have with this diet is the allowed salt. Regular table salt has dextrose in it as an anti caking agnet which is derived from corn. I will be doing sea salt and taking an iodine suppliment . i also was tested by cyrex labs array 4 gluten contamination food list. I think every celiac should be tested for this...especially when they arent responding to gluten-free diet. I wish i would have know about the cyrex lab and this diet 2 yrs ago! If you have non responsive celiac please look into cyrex lab array 4! I have problems with most of the gluten-free grains in the test except for quiona rice egg tapioca and soy. If i did the diet but ate salt id still be getting traces of corn and wouldnt heal! The array 4 is very important key

A very helpful post.  Thank you, I'm going to try this.