paige_ann246's Blog

I think it would be best to find a doctor that will help you and be tested. Many of those things can be signs of celiac. It would be so good to see you delivered from that. It would be fun to have someone start blogging and keep blogging beginning before diagnosis, so Keep it up.

Please Get better. Test before you stop eating gluten as soon as possible. Don't forget!

D

I would def. get a Celiac test. If need be change Drs. Or just don't let him do that to you!! You pay him remember? Get that test Girl!! Don't suffer for many years like so many have.

I think it would be best to find a doctor that will help you and be tested. Many of those things can be signs of celiac. It would be so good to see you delivered from that. It would be fun to have someone start blogging and keep blogging beginning before diagnosis, so Keep it up.

Please Get better. Test before you stop eating gluten as soon as possible. Don't forget!

D

Thanks I will continue to blog throughout my journey. I am hoping to find out soon so i can finally start feeling better.

based on what you wrote, I think getting tested would be a great idea! does your rash look like dermatitis herpetiformis? what did the doctor say about the elevated liver numbers? check out this link Open Original Shared Link

that cracking in the corners of your mouth hurts!! I play French horn and it would make that super painful. Since going gluten free, it is gone!!!!!!

spontaneous nose bleeds could be a vitamin K deficiency. check out this link, specifically the bottom of the second paragraph Open Original Shared Link

I would suggest going back to your doctor and asking for a celiac panel to be done. you have a family history of autoimmune problems, so that should be a red flag to your doctor. if you don't think he'd be willing to run the tests, find a new one who is! check out this link for a lot of info that a doctor will find credible Open Original Shared Link

you must be consuming gluten for blood tests and the endoscopy. do not stop eating gluten until ALL testing is complete.

a lot of doctors like to run ttg iga only, but you need the full panel since that one test can miss some celiacs. the full blood panel is

based on what you wrote, I think getting tested would be a great idea! does your rash look like dermatitis herpetiformis? what did the doctor say about the elevated liver numbers? check out this link Open Original Shared Link

that cracking in the corners of your mouth hurts!! I play French horn and it would make that super painful. Since going gluten free, it is gone!!!!!!

spontaneous nose bleeds could be a vitamin K deficiency. check out this link, specifically the bottom of the second paragraph Open Original Shared Link

I would suggest going back to your doctor and asking for a celiac panel to be done. you have a family history of autoimmune problems, so that should be a red flag to your doctor. if you don't think he'd be willing to run the tests, find a new one who is! check out this link for a lot of info that a doctor will find credible Open Original Shared Link

you must be consuming gluten for blood tests and the endoscopy. do not stop eating gluten until ALL testing is complete.

a lot of doctors like to run ttg iga only, but you need the full panel since that one test can miss some celiacs. the full blood panel is

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other

testing

check out page 12 in this report for testing information:

Open Original Shared Link

Open Original Shared Link

also this is a list of common vit/min that should be tested as well

Vitamin/Minerals:

Complete Blood Count (CBC)

Complete Metabolic Profile (CMP)

Vitamin B-12

Folic Acid

Vitamin A, D, E, K

Ferritin

Iron

Magnesium

Zinc

Copper

Niacin

Riboflavin

C-Reactive Protein

Good info from University of Chicago Celiac Center:

Open Original Shared Link

hope this helps!

thank you for all the important information. i will most certainly ask for this next time I go.