Angry That I Can't Find The Words
This forum group is a godsend. I'm very comfortable here and wish I could speak up for myself better out in the real world. Things come up, people ask things of me that I cannot give because I don't look sick on the outside. Well, I look tons better after eliminating gluten but, you know, I look normal to others regardless. People make assumptions and a lot of them.
Celiac.com Sponsor (A13):
A caregiver of my Mom's asked me to come (and bring her) to his kid's birthday party on Saturday. I don't like to say "I'm sick" in front of my ailing mother. He really put me on the spot. I can't lift my mom and it's a lot of stress on me to get her out at all even when someone else does the heavy lifting. It's all I can do to make myself look decent and get over to see her. This creates confusion because I put on my happy face and everyone takes me at face value. When I leave, I'm exhausted.
I'm either resting or spending my energy on the house which seems to be falling apart or going to an appointment. I do not have the energy to see friends regularly and not much chance to add in fulfilling experiences which no doubt would help my outlook. I'm severely lacking in the food department as my husband is intolerant to a few things I can eat and prepare well. My mom is on hospice and it's all I can do to scream "LEAVE ME ALONE! I'm doing everything I frigging can!!!!".
I'm at the tail end of a bad reaction to dairy. I'm tired and depressed. I don't even know what to say to people and a big part of me feels stifled, resentful, unheard, misunderstood... My fault for not communicating but how does one communicate something like this especially while feeling ill? It is just talking in circles about it. I don't want to be that person who goes on and on about her ills (except here where it feels safe).
I guess I should be happy I can make myself look healthy and fresh but it seems to create more confusion and my mom insists that I stop wearing the same old thing. Argh!!!!
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